Butterfly Children Charity

Casa
España
Marbella
Butterfly Children Charity

Epidermolysis bullosa (EB) is an inherited connective tissue disease causing blisters in the skin and mucosal membranes, with an incidence of 1/50,000.

DEBRA Spain, The Butterfly Children Charity is a NGO, charity dedicated to helping people living with Epidermolysis bullosa (EB), known as Butterfly skin in Spain. Its severity ranges from mild to lethal. It is caused by a mutation in the keratin or collagen gene. As a result, the skin is extremely fragile. Minor mechanical friction or trauma will separate the layers of the skin and form blisters.

People with this condition have an increased risk of cancers of the skin, and many will eventually be diagnosed with it as a complication of the chronic damage done to the skin.

Dirección

Jacinto Benavente Nº 12
Marbella
29601

Página web

https://www.pieldemariposa.es/en/

Notificaciones

Sé el primero en enterarse y déjanos enviarle un correo electrónico cuando Butterfly Children Charity publique noticias y promociones. Su dirección de correo electrónico no se utilizará para ningún otro fin, y puede darse de baja en cualquier momento.