Global MPN Scientific Foundation

16/10/2026

🤝 Listening to patients can help us ask better questions.

One of the most important parts of the 6th Global MPN Symposium will be the dedicated MF, PV and ET working groups, creating space for patients and caregivers to share experiences, concerns and needs.

Living with an MPN brings a perspective that may not always appear in a clinic, scientific publication or clinical trial. How do symptoms affect everyday life? Which treatment decisions matter most? What quality-of-life issues need greater attention? Which questions are still unanswered?
Bringing patients, healthcare professionals and researchers into the same conversation may help identify priorities and open new directions for both research and everyday care.

💬 What conversation do you think should be part of an MF, PV or ET working group?

👉 Explore the full program:
https://www.globalmpn.org/post/6th-global-mpn-symposium-barcelona-2026-program

14/10/2026

👩‍⚕️👨‍⚕️ Meet the professionals joining us in Barcelona. At the 6th Global MPN Symposium, specialists from different disciplines and countries will share knowledge, experience and new perspectives on MPN.

Hematology, research, quality of life, regulatory science, biology, clinical care and European collaboration will all be part of the conversation.
Because progress also means connecting expertise and listening to different perspectives.

📍 Barcelona
📅 November 6–8, 2026
🌍 In person + online

👉 Meet the faculty and discover their sessions:
https://www.globalmpn.org/post/6th-global-mpn-symposium-faculty-barcelona-2026

09/10/2026

What makes the 6th Global MPN Symposium different? We do not want this to be simply a series of presentations. We want to create a space where different parts of the MPN community can be part of the same conversation:

👥 more than 25 international patients
🩺 leading MPN experts
🔬 industry representation
🌿 a dedicated focus on wellbeing and quality of life

Different perspectives. Different questions. Different experiences.

But one shared goal: to better understand the needs of people living with MPN and continue building together.
📍 Barcelona
📅 November 6–8, 2026
🌍 In person + online

👉 Explore the full program and register:
https://www.globalmpn.org/post/6th-global-mpn-symposium-barcelona-2026-program

07/10/2026

📅 The program is here!

Three days to talk about MPN, research, patient involvement, working groups, wellbeing and much more.
The 6th Global MPN Symposium is getting closer, and you can now discover everything we have planned for Barcelona.

📍 November 6–8, 2026
🌍 In person + online
🎟️ Free participation

👉 Explore the full program and register:
https://www.globalmpn.org/post/6th-global-mpn-symposium-barcelona-2026-program

See you in Barcelona.

Three days of research, patient voice, working groups and wellbeing. Explore the program and register to join us in Barcelona or online.

06/10/2026

🥑 Nueva serie de podcasts: Nutrición y MPN

Junto a Carla Not, dietista-nutricionista clínica especializada en oncología, abrimos una nueva serie dedicada a la alimentación cotidiana, con información clara, práctica y basada en la evidencia.

🎧 Ya puedes ver la presentación y escuchar el primer episodio, dedicado a los cinco grupos de alimentos y su función en el organismo.

👉 Descubre la serie:
https://www.globalmpn.org/es/post/nutricion-mpn-podcast-carla-not

03/10/2026

🧬 What could a new approach to polycythemia vera look like?

The recording of our webinar with Alberto Martínez, Senior Director of Clinical Science at Silence Therapeutics, is now available.
During the session, we explored the Phase 2 results of SANRECO, the clinical trial investigating divesiran in people living with polycythemia vera (PV).

Among the results presented:
🔬 88% of patients receiving divesiran met the study’s primary response criterion, compared with 19% receiving placebo.
🩸 The mean number of phlebotomies during the 36-week period was 0.2 with divesiran versus 2.1 with placebo.
💉 The study also explored subcutaneous dosing every 6 or 12 weeks.
But the webinar goes much further than the numbers.

Alberto explains what siRNA technology is, how a medicine moves from the laboratory into clinical trials, why drug development can take many years, and what still needs to happen before an investigational treatment could potentially reach patients.

Peter Löffelhardt also brings some of the questions that matter to the PV community:
• How is divesiran administered?
• How often could it be given?
• What happens to iron when phlebotomies decrease?
• What do we know about long-term treatment?
• And what comes next?

▶️ Read the article and watch the full webinar:
https://www.globalmpn.org/post/divesiran-polycythemia-vera-phase-2-sanreco-results

Divesiran is an investigational therapy and is not currently approved for the treatment of PV.

02/10/2026

Under 40 and living with an MPN? This is for you.

At the 6th Global MPN Symposium, taking place in Barcelona from 6 to 8 November, we want to create real space for AYA patients: adolescents and young adults living with an MPN.

We want to hear your voice.
We want to meet you.
We want you to be part of this conversation.

If you would like to join us in person in Barcelona, get in touch with us.
Participation is free, and if you are an AYA patient, we would love to hear from you.

📍 Barcelona
📅 6–8 November 2026
📩 [email protected]
📱 WhatsApp: +34 611 59 13 44
🔗 https://www.globalmpn.org/post/6th-global-mpn-symposium-barcelona-2026

Would you like to join us? Know someone who should see this? Share it.

29/09/2026

🧬 How is a compatible bone marrow donor found?

And what happens from the moment the search begins until the transplant takes place?

The recording of our webinar with Dr. Alejandra Martínez Trillo, hematologist from the management team of REDMO, the Spanish Bone Marrow Donor Registry of the Josep Carreras Foundation, is now available.

During the session, we explain the process clearly and step by step, including:

🔬 What CD34 cells are
🧬 What HLA compatibility means
👥 The different types of donors
🌍 How international donor registries work
🩸 How cells are collected through peripheral blood or bone marrow
📦 How cell quality control and transport are coordinated
💬 What happens when a fully compatible donor cannot be found
🧡 And the role transplantation may have for selected people living with MPN, especially in certain cases of myelofibrosis

Not everyone living with an MPN will need a transplant. But understanding how this process works can help patients and families better understand the options available and have more informed conversations with their healthcare teams.

▶️ Watch the full webinar and learn more:

www.globalmpn.org/post/compatible-bone-marrow-donor-redmo-transplant-mpn

Information can open possibilities. Sharing it can too.

28/09/2026

💜 MPNs also affect young people. And their voices need a space of their own.

Global MPN Scientific Foundation joined the second international edition of “Secret Garden of Hematology, young edition” in Bydgoszcz, Poland, as an Honorary Patron.

The meeting focused on the challenges faced by children, adolescents and young adults living with hematological diseases, with the opening sessions placing particular attention on younger people living with myeloproliferative neoplasms (MPNs).

Topics included:
🧬 Diagnosis and treatment of MPNs in younger patients
🔬 JAK2, CALR and new scientific perspectives
🤖 Artificial intelligence in hematology
🤰 Pregnancy and MPN
💙 Fertility and life plans
🌱 Quality of life and the future

Global MPN was also represented by Simon Bevis, a young person living with MPN, bringing an essential perspective to the meeting: the voice of someone experiencing the disease first-hand.

Simon shared:
“Having a rare condition and being in a minority age group for it can feel isolating at times.”

Building community, sharing experiences and making sure the patient voice is part of scientific conversations also matters.

👉 Read the full story:
https://www.globalmpn.org/post/global-mpn-young-patients-secret-garden-hematology-2026

25/09/2026

📣 Save the dates: November 6, 7 and 8, 2026

Barcelona will host the 6th Global MPN Symposium, an international meeting organized by Global MPN Scientific Foundation that will bring together patients, healthcare professionals, MPN experts, patient organizations and industry representatives.

🌍 Hybrid format
You will be able to attend in person in Barcelona or join the different sessions online.

🎟️ Participation is free of charge.

Throughout the symposium, we will explore research, the present and future of MPN, symptoms, quality of life, working groups, patient participation and wellbeing.

Visit the website to find the available information and access the registration form.
👉 Learn more and register:
https://www.globalmpn.org/post/6th-global-mpn-symposium-barcelona-2026

You can also contact us directly:
📩 [email protected]
📱 WhatsApp: +34 611 59 13 44

Three days. One international community. Many conversations that matter.