International Lipoedema Association

Hjem
Danmark
Frederiksberg
International Lipoedema Association

The ILA is a scientific association aiming to advance the understanding of lipoedema.

23/02/2026

𝗜𝗟𝗔 𝘀𝘁𝗿𝗼𝗻𝗴𝗹𝘆 𝗿𝗲𝗽𝗿𝗲𝘀𝗲𝗻𝘁𝗲𝗱 𝗮𝘁 𝘁𝗵𝗲 𝗕𝗼𝘀𝘁𝗼𝗻 𝗟𝘆𝗺𝗽𝗵𝗮𝘁𝗶𝗰 𝗦𝘆𝗺𝗽𝗼𝘀𝗶𝘂𝗺 𝟮𝟬𝟮𝟲!

ILA is strongly represented at this year's Boston Lymphatic Symposium, themed 'A Focus on Lipedema: Bridging Gaps'.

Together with global experts, ILA is engaging in essential conversations that move the field forward — across borders, professions, and perspectives. In several talks, we have addressed widespread misinformation in lipedema care, calling for greater clarity, collaboration, and continued research.

“This year's theme, Bridging Gaps, reflects our shared responsibility to connect expertise and highlight the nuances of lipedema syndrome — and address the knowledge gaps still present in research. Despite the good dialogue, differences remain that still need to be discussed — for example, the question of edema in lipedema, or whether pain and other symptoms should be necessary criteria for diagnosis," shares Gabriele Erbacher, ILA Co-President.

07/01/2026

For HCPs: Please help amplify this important work by taking and sharing this survey within your professional network!

🩺 Are you a healthcare professional involved in the care of individuals with lipedema?

You are invited to participate in a new research survey exploring the perspectives of healthcare professionals on the diagnosis, assessment, and management of lipedema.

This research project, led by ILA board member Dr Belinda Thompson, seeks to identify clinical knowledge gaps and practice challenges in order to inform the development of evidence-based educational resources and care strategies.

🕒 The survey is anonymous and takes approx. 20 minutes to complete.

Understanding the perspectives of healthcare professionals in lipedema: A cross-sectional survey: https://mquni.au1.qualtrics.com/jfe/form/SV_6QZcsGfIA7Yk4xU?Q_CHL=qr

Research team: Luke Davies, Lori Lewis, Katrina Gaitatzis, Louise Koelmeyer & Belinda Thompson

06/01/2026

Please help amplify this important work by sharing this patient survey within your network!

💡 Have you been diagnosed with lipedema—or believe you may be living with it?

You are then invited to participate in a new research survey exploring the educational needs of individuals with lipedema.

This research project, led by ILA board member, Dr Belinda Thompson, seeks to better understand the knowledge gaps and challenges faced by those living with lipedema, in order to inform the development of meaningful educational resources.

🕒 The survey is anonymous and takes approx. 20 minutes to complete.

Exploring the educational needs of individuals living with lipedema: A cross-sectional survey: https://mquni.au1.qualtrics.com/jfe/form/SV_ac7vDc1SE9W4ofA?Q_CHL=qr

29/12/2025

"Weight loss has no impact on lipedema." 🦵

This is a myth!

Patients are often told that weight loss does not affect lipedema.

Understandably, this leads to frustration and the belief that lifestyle changes are irrelevant. But this is not the full picture.

Learn more: https://theila.net/8-myths-about-lipoedema/

Living with lipedema can be confusing, frustrating, and at times overwhelming. Too often, women searching for answers are met with misinformation — repeated misconceptions based on outdated science, and contradictory advice, sometimes leading to costly and ineffective treatment.

The International Lipedema Association (ILA) has launched the awareness campaign “Dispelling 8 Myths About Lipedema” to provide clarity. This campaign has two goals:

22/12/2025

𝗠𝘆𝘁𝗵: "Lipedema is responsible for weight gain."

This is a myth!

Patients are sometimes told that lipedema syndrome is responsible for weight gain. The frequent co-occurrence of lipedema and obesity reinforces the myth.

But the reality is that lipedema itself does not cause weight gain. Actually, it's more the other way around. Weight gain almost always causes lipedema to get worse.

Learn more: https://theila.net/8-myths-about-lipoedema/

More about the campaign:

Living with lipedema can be confusing, frustrating, and at times overwhelming. Too often, women searching for answers are met with misinformation — repeated misconceptions based on outdated science, and contradictory advice, sometimes leading to costly and ineffective treatment.

The International Lipedema Association (ILA) has launched the awareness campaign “Dispelling 8 Myths About Lipedema” to provide clarity.

18/12/2025

Invitation!

The 2026 Boston Lymphatic Symposium – A Focus on Lipedema: Bridging Gaps will be held in February 2026 in Boston.

The program includes two clinical days and one patient day, exploring the molecular basis, lymphatic involvement, and clinical management of lipedema through both medical and psychosocial perspectives.

A key theme is interdisciplinary collaboration among therapists, physicians, and surgeons. International experts and organizations such as the Lymphatic Education & Research Network, Lipedema World Alliance, and International Lipoedema Association will contribute to the program.

Building on six successful previous editions, the symposium continues to bridge gaps in research, practice, and patient advocacy.

Hoping to see you there!

Events and registration: https://theila.net/events/

15/12/2025

𝗠𝘆𝘁𝗵: "Lipedema is a progressive disease."

False!

Lipedema is not inherently progressive. How it develops depends on many factors, which means you are not destined to become less mobile or more limited over time.

Living with lipedema can be confusing, frustrating, and at times overwhelming. Too often, women searching for answers are met with misinformation — repeated misconceptions based on outdated science, and contradictory advice, sometimes leading to costly and ineffective treatment. The International Lipedema Association (ILA) has launched the awareness campaign “Dispelling 8 Myths About Lipedema” to provide clarity.

Learn more: https://theila.net/8-myths-about-lipoedema/

10/12/2025

Thank you for a fantastic ILF 2025 Conference in Niagara Falls!

ILF 2025 was a great success for the ILA. A highlight of the conference was the opening ILA session, during which former ILA President Dr. med. Tobias Bertsch was awarded a Certificate of Honour by the ILA Board.

Thank you to everyone who engaged with the ILA during the conference or visited our ILA booth. We deeply appreciate your interest and support.

Learn more about the conference and our initiatives: https://theila.net/news2/ilf-2025-conference

05/11/2025

The International Lipoedema Association says thank you - we had a blast at !

Over the past days, we’ve shared vital knowledge, challenged outdated myths, and advanced the global dialogue on diagnostics, treatment, and lived experiences of lipedema. From expert panels to patient sessions and the launch of our campaign “Dispelling 8 Myths About Lipedema”, this year’s conference marks an important step forward in our shared mission.

To everyone who visited the ILA booth, took part in discussions, signed up for membership and supported our initiatives — thank you. Let’s continue the work together.

If you haven’t yet, we invite you to join ILA and become part of a global network of healthcare professionals committed to improving lipoedema care through evidence-based practice, collaboration, and advocacy.

26/10/2025

Final ILA-session at :
Professional Stream Session 4

This session highlighted advances in diagnosis, treatment, and patient-centred management.

By fostering global collaboration, the ILA and ILF continue to move the field toward more personalised and evidence-based care.

Become part of this international effort — join the ILA community today!

Members enjoy global networking, exclusive resources, and the opportunity to help define future standards of care.

Join by 26 October 2025 and get the rest of the year FREE! Annual membership: only €25.

25/10/2025

Behind the Scenes at

We're filming new content for our campaign “Dispelling 8 Myths About Lipedema” — a powerful initiative by the ILA designed to confront misinformation and bring clarity to patients and professionals alike.
These videos will help challenge long-standing myths with evidence-based facts, share real experiences, and offer hopeful, practical insight for women living with lipedema.

Stay tuned — and visit the ILA booth to learn more about the campaign and how to get involved.
Join ILA and be part of the global effort to improve understanding and care.

Whether you are a patient or a healthcare professional, we invite you to use this campaign as an opportunity to educate yourself, and to raise awareness — so that women with lipedema receive the recognition and care they deserve.

Check out the first 4 videos on our website: https://theila.net/8-myths-about-lipoedema/

Adresse

Nordre Fasanvej 113
Frederiksberg
2000

Telefon

+4570200305

Internet side

http://theila.net/

Underretninger

Vær den første til at vide, og lad os sende dig en email, når International Lipoedema Association sender nyheder og tilbud. Din e-mail-adresse vil ikke blive brugt til andre formål, og du kan til enhver tid afmelde dig.

Kontakt Organisationen

Send en besked til International Lipoedema Association:

Genveje

Vil du plassere din organisation på toppen av Non Profit Organisation-listen i Frederiksberg?

Del

Type

Nonprofitorganisation