European Sickle Cell Federation

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Neuss
European Sickle Cell Federation

ESCF is an umbrella organisation for all Sickle Cell patient organisations in Europe.

08/10/2026

What an amazing educational and inspiring day.
The Sickle in View Capacity Building UK workshop was a success. Thank you to the UK planning team led by Santos Freire representing .pt and our CEO

Topics ranged from Understanding Gene Therapy, Sickle Cell Nutrition, Sickle Cell Retinopathy, Mental Health & Trauma, Sickle Cell Has No Colour, Sickle Cell and Women’s Health to holistic interventions and open discussions that helped in navigating deeper hidden traumatic challenges helpful in healing and better quality of life.

Mistake, importantly, this session enabled us to network, learn, share, coordinate, support, listen, and develop new solutions for future advocacy on issues most important in improving all matters relating to

There is so much work to do, and we are determined and ready for the challenge.

We look forward to our next Capacity Building session coming up in a city near you :)).

Thank you to our sponsors and

05/10/2026

With new therapies in Sickle Cell, having the knowledge and understanding of how these life changing therapies can make a huge difference for you or your child is very important.

This is why we are excited to bring to you this very important topic, "Understanding Gene Therapy: For Patients and Caregivers.

This is an important topic you would not like to miss. Happening at 10 am tomorrow 6th October at Riu Hotel london Westminster.

We look forward to seeing you there.

02/10/2026

Our eyes help us experience the world around us, from seeing the faces of loved ones to reading, working, learning, and enjoying the beauty of everyday life.

For someone living with Sickle Cell, these experiences can become a memory at any stage in life.

We are eagerly excited to learn more about Sickle Cell Retinopathy at our upcoming UK Sickle in View Capacity Building Workshop this October 6th.

Delighted to introduce our speaker NHSE Clinical Fellow, Dr Rossby Awadzy.

24/09/2026

Sickle Cell Nutrition: What patients and providers need to know.

Taking place a RIU Hotel London Westminster this coming October 6th.

30/08/2026

COMING UP SOON

01/08/2026

Recap from our representation at the Sickle Cell and Thalassaemia Ireland Sickle Cell & Thalassaemia Ireland charity gala, which took place in Dublin Ireland last month.

It was an amazing and inspiring event as shared lived experiences of living with SCD through the campaign led by Swedish member organisation President Nedda and an impactful lesson from a lived experience shared by our German member organisation president for IST e.V. Elyz Elvie

Thank you to all our members representing various organisations in Europe, John Lawal Aghate Wakunga Marie-Claire Kofi Sickle Cell Welfare Forum.

Collaboration, representation, networking, and community engagement are key to the success of our advocacy.

18/07/2026

Our first phase of the Sickle in View Capacity Building Workshops is complete. We are thankful for the support and sponsorship from our industry partners on this very important and groundbreaking annual initiative.

Thanks to our platinun sponsor , our gold sponsor , and our bronze sponsor

We are currently working on the next phase for the second half of the year as we prepare workshop sessions to take place in various countries in Europe.

27/06/2026

Ending the month of June with gratitude and accomplishment. We are grateful for the ability to have achieved what we set out to do. We are grateful to our special guest speaker, Prof Peter Pritakis, for such an amazing session on Sickle Cell Disease in Sweden. Very informative and very encouraging 👍🏾 💪🏽🙌🏽

We extend our appreciation to our member organisation now known as Sickle Cell Association Sweden (ScAS) President Ms Nedda Al-ammar who bravely led and organised the ESCF Sickle in View Capacity Building Sweden with the support of Ms Marie Claire Kofi President of our member organisation

Thank you to all our members and the community who joined this session most especially our members and leaders Ms Elvie Ingoli President of .v.20 and Ms Maryanne Saunier Vice President for sharing their inspiring lived experiences of going through Bone Marrow Transplants for Sickle Cell at different stages of their lives. Sharing with us the challenges, uncertainty, hopes, and mental health difficulties that come with going through such a life changing treatment.

Their stories left a huge mark in our lives, gave us hope, and a renewed desire to keep up the fight for Sickle Cell patients all over Europe and worldwide. It further highlighted why unity, partnership, and collaboration in advocating for Sickle Cell is important, especially now when the prevalence is rising rapidly and more babies are born every day.

We would not be able to do this work without the support from our sponsors and

Your support has made a huge difference as we continue to improve and upskill our members in effective advocacy, leadership and governance, confidence building, community engagement, policy awareness, and much more.

Thank you to all those who support us behind the scenes, the visible and invisible. We are also grateful for those who push us in other ways, both positive and negative.

We remain committed to improving the lives of people living with in Europe!✨️💫

25/06/2026

Introducing our Sickle in View Capacity Building Gold Sponsor

13/06/2026

We are delighted to introduce our SILVER Sponsor

Their continuous support in ensuring our members organisations become stronger advocates for SCD through our capacity building workshops has generated a strong and positive impact for patients, families, and the community stigma large.

We thank you for your support towards this year's Capacity Building.

Adresse

Rheinallee 1
Neuss
41460

Website

http://www.escfederation.eu/

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