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GFCNI

Wegbeschreibung Website

Connecting the world for newborn health! We represent the patient and parent voice in the global arena, transcending country borders and continents.

Connecting the world for newborn health, we at the Global Foundation for the Care of Newborn Infants (GFCNI) envision a future where every baby born receives the right care, at the right time, in the right place! The Global Foundation for the Care of Newborn Infants (GFCNI) works to improve newborn health by advocating for high-quality, accessible, and equitable care, long-term follow-up, and continuing care for both mother and infant in each region of the world. Our particular focus is on infants born too soon, too small, or too sick – those who need special medical care and hospitalization after birth. GFCNI is the first global organization and network to unite patients, families, healthcare professionals, medical staff, and scientists from different disciplines, fields, and countries – all with the joint goal of advancing the health and quality of care for newborns and their families across the globe. We envision a future where every baby born receives the right care, at the right time, in the right place!

04/11/2025

🎥 𝗥𝗲𝗮𝗹 𝗩𝗼𝗶𝗰𝗲𝘀, 𝗥𝗲𝗮𝗹 𝗦𝘁𝗼𝗿𝗶𝗲𝘀: 𝗥𝗦𝗩 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀 𝗪𝗲𝗲𝗸 𝟮𝟬𝟮𝟱
This week, as part of 𝐑𝐒𝐕 𝐀𝐰𝐚𝐫𝐞𝐧𝐞𝐬𝐬 𝐖𝐞𝐞𝐤, we’re sharing our new “Best of RSV Interview Compilation” featuring parents, caregivers and experts who opened up about their experiences with 𝗥𝗲𝘀𝗽𝗶𝗿𝗮𝘁𝗼𝗿𝘆 𝗦𝘆𝗻𝗰𝘆𝘁𝗶𝗮𝗹 𝗩𝗶𝗿𝘂𝘀 (𝗥𝗦𝗩).💬

Their stories remind us how important it is to 𝗿𝗮𝗶𝘀𝗲 𝗮𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀, 𝗿𝗲𝗰𝗼𝗴𝗻𝗶𝘇𝗲 𝘀𝘆𝗺𝗽𝘁𝗼𝗺𝘀 𝗲𝗮𝗿𝗹𝘆, and 𝗽𝗿𝗼𝘁𝗲𝗰𝘁 𝗼𝘂𝗿 𝗹𝗶𝘁𝘁𝗹𝗲 𝗼𝗻𝗲𝘀 from RSV — a virus that can affect all infants, especially newborns and preterm babies.👶

We’d like to sincerely thank everyone who participated and shared their experience with us in this video: 💙 🇩🇪 Bundesverband "Das frühgeborene Kind" e.V. | 🇫🇷 SOS Préma | 🇵🇱 Koalicja dla wcześniaka | 🇵🇹 XXS

👉 𝙔𝙤𝙪𝙧 𝙫𝙤𝙞𝙘𝙚𝙨 𝙖𝙧𝙚 𝙝𝙚𝙡𝙥𝙞𝙣𝙜 𝙛𝙖𝙢𝙞𝙡𝙞𝙚𝙨 𝙚𝙫𝙚𝙧𝙮𝙬𝙝𝙚𝙧𝙚 𝙨𝙩𝙖𝙮 𝙞𝙣𝙛𝙤𝙧𝙢𝙚𝙙 𝙖𝙣𝙙 𝙨𝙪𝙥𝙥𝙤𝙧𝙩𝙚𝙙.

🎬 Watch the full video and learn more about RSV and how to prevent it in our 𝗥𝗦𝗩 𝗣𝗮𝗿𝗲𝗻𝘁 𝗕𝗼𝗼𝗸𝗹𝗲𝘁https://www.gfcni.org/fileadmin/www.gfcni.org/Campaigns/RSV_All_Infants/Parent_Booklet/English/2025_GFCNI_RSV_Parentbooklet_6thEdition_EN_web.pdf

04/11/2025

🩺 𝙃𝙤𝙬 𝙘𝙖𝙣 𝙝𝙤𝙨𝙥𝙞𝙩𝙖𝙡𝙨 𝙜𝙞𝙫𝙚 𝙥𝙧𝙚𝙩𝙚𝙧𝙢 𝙗𝙖𝙗𝙞𝙚𝙨 𝙩𝙝𝙚 𝙗𝙚𝙨𝙩 𝙥𝙤𝙨𝙨𝙞𝙗𝙡𝙚 𝙨𝙩𝙖𝙧𝙩?

Join 𝗗𝗿. 𝗔𝗹𝗲𝘅 𝗖𝗹𝗲𝗮𝘁𝗼𝗿, Consultant Neonatologist at Liverpool Women’s Hospital, for an inspiring webinar:
“𝙋𝙧𝙚𝙩𝙚𝙧𝙢 𝙊𝙥𝙩𝙞𝙢𝙞𝙯𝙖𝙩𝙞𝙤𝙣 𝙞𝙣 𝙋𝙧𝙖𝙘𝙩𝙞𝙘𝙚: 𝙄𝙣𝙨𝙞𝙜𝙝𝙩𝙨, 𝙄𝙣𝙣𝙤𝙫𝙖𝙩𝙞𝙤𝙣𝙨 & 𝙍𝙚𝙖𝙡𝙞𝙩𝙞𝙚𝙨 𝙛𝙧𝙤𝙢 𝙖 𝙐𝙆 𝙏𝙚𝙧𝙩𝙞𝙖𝙧𝙮 𝘾𝙚𝙣𝙩𝙧𝙚”

📅 𝗧𝗵𝘂𝗿𝘀𝗱𝗮𝘆, 𝗡𝗼𝘃𝗲𝗺𝗯𝗲𝗿 𝟭𝟯, 𝟮𝟬𝟮𝟱
🕙 𝟭𝟬:𝟬𝟬–𝟭𝟭:𝟬𝟬 𝗔𝗠 𝗖𝗘𝗧 (09:00–10:00 AM UK time)

Learn how experts use the latest evidence, teamwork, and innovation to improve care for preterm babies and their families.

👉 𝗥𝗲𝗴𝗶𝘀𝘁𝗲𝗿 𝗵𝗲𝗿𝗲: https://bit.ly/43h17lm

03/11/2025

💬 𝐖𝐨𝐫𝐝 𝐨𝐟 𝐭𝐡𝐞 𝐰𝐞𝐞𝐤: 𝐁𝐫𝐨𝐧𝐜𝐡𝐨𝐩𝐮𝐥𝐦𝐨𝐧𝐚𝐫𝐲 𝐃𝐲𝐬𝐩𝐥𝐚𝐬𝐢𝐚

🩺 When babies are born preterm, their lungs are often not fully developed. Many require extra oxygen or ventilation support after birth. These procedures are essential and lifesaving, but they can also affect how the lungs develop. For some children, this can lead to long-term breathing problems known as chronic lung disease of prematurity, or Bronchopulmonary Dysplasia (BPD).

👶 What does this mean for families?
Children with BPD may continue to experience breathing problems, frequent respiratory infections, or asthma-like symptoms as they grow older. But the impact is not limited to the child. Families may face increased stress, anxiety, and financial challenges due to ongoing medical appointments, specialist care, and potential hospital readmissions. Despite the serious nature of BPD, its long-term effects are still under-researched.

📝Join the research project on chronic lung disease of prematurity
BronQ Family is an international research project studying how Bronchopulmonary Dysplasia (BPD) affects children and their families' quality of life over time. BronQ Family is looking for parents and caregivers of children born preterm to take part in an anonymous online survey.

💜 Why it matters
By understanding how chronic lung disease affects not just health, but also family life and quality of care, long-term support can be improved.

📣 𝐓𝐚𝐤𝐞 𝐩𝐚𝐫𝐭, if you are a parent or caregiver of a child who:
✔ was born preterm,
✔ has already been discharged from their initial hospital stay,
✔ is currently under 18 years old, and
✔ was born or lives in France, Germany, Italy, the Netherlands, Spain, the UK (incl. Northern Ireland), or the US.

🔗 Access the survey: https://de.surveymonkey.com/r/X22GCNJ?lang=en

01/11/2025

💜 November is 𝗣𝗿𝗲𝗲𝗺𝗶𝗲 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀 𝗠𝗼𝗻𝘁𝗵! 💜

All month long, countries and organizations around the world shine a light on the challenges of preterm birth – and the strength of preemies and their families. 🌍👶💪

The highlight? 𝗪𝗼𝗿𝗹𝗱 𝗣𝗿𝗲𝗺𝗮𝘁𝘂𝗿𝗶𝘁𝘆 𝗗𝗮𝘆 on November 17 ✨ This year’s theme: “Give preterm babies a strong start for a brighter future.”

👉 Join us in raising awareness throughout November. Use our toolkit with shareable graphics, sample posts, and more to spread the word: https://ow.ly/saoL50XetfV

Together, we can make sure every baby gets the best possible start in life. 💜

30/10/2025

🗨️ “After almost four months in the hospital, we were finally able to take her home – but not without oxygen support,” says Maria, mother of a child born at just 26 weeks of gestation, diagnosed with Bronchopulmonary Dysplasia (BPD).

“For the first two months at home, she still needed oxygen 24/7. It was a time of joy because we were 𝐟𝐢𝐧𝐚𝐥𝐥𝐲 𝐭𝐨𝐠𝐞𝐭𝐡𝐞𝐫 𝐚𝐬 𝐚 𝐟𝐚𝐦𝐢𝐥𝐲, 𝐛𝐮𝐭 𝐚𝐥𝐬𝐨 𝐨𝐟 𝐬𝐭𝐫𝐞𝐬𝐬 𝐚𝐧𝐝 𝐚𝐧𝐱𝐢𝐞𝐭𝐲, as we had to manage medical equipment and monitor her constantly.”

“Now, our daughter is five years old. She is doing well and lives a seemingly normal life. We go for yearly check-ups with the pulmonology team, but we still have so many unanswered questions. No one has ever clearly told us whether she will have long-term effects from the Bronchopulmonary Dysplasia (BPD) or not.”

Thank you, Maria, for sharing your experience! 💜

𝐇𝐚𝐯𝐞 𝐲𝐨𝐮 𝐞𝐱𝐩𝐞𝐫𝐢𝐞𝐧𝐜𝐞𝐝 𝐬𝐢𝐦𝐢𝐥𝐚𝐫 𝐜𝐡𝐚𝐥𝐥𝐞𝐧𝐠𝐞𝐬 𝐫𝐞𝐥𝐚𝐭𝐞𝐝 𝐭𝐨 𝐩𝐫𝐞𝐭𝐞𝐫𝐦 𝐛𝐢𝐫𝐭𝐡?
📝Join the BronQ Family study and help us understand the impact of preterm birth on families.

📣 𝐂𝐨𝐦𝐩𝐥𝐞𝐭𝐞 𝐭𝐡𝐞 𝐬𝐮𝐫𝐯𝐞𝐲, if you are a parent or caregiver of a child who:
✔ was born preterm,
✔ is currently under 18 years old, and
✔ was born or lives in France, Germany, Italy, the Netherlands, Spain, the UK (incl. Northern Ireland), or the US?
🔗https://de.surveymonkey.com/r/X22GCNJ?lang=en

Som Prematurs - Associació de Prematurs de Catalunya

29/10/2025

📰 𝗢𝘂𝗿 𝗢𝗰𝘁𝗼𝗯𝗲𝗿 𝗻𝗲𝘄𝘀𝗹𝗲𝘁𝘁𝗲𝗿 𝗶𝘀 𝗵𝗲𝗿𝗲!
This month’s edition is all about connection, compassion, and care. 🌍💜

As we prepare for 𝗪𝗼𝗿𝗹𝗱 𝗣𝗿𝗲𝗺𝗮𝘁𝘂𝗿𝗶𝘁𝘆 𝗗𝗮𝘆, explore our new social media toolkit – full of messages, visuals, and resources to raise awareness together.

We’re also celebrating the amazing work of Frühchen & Neokinder Schweiz, whose 81 trained peer parents offer bedside support to families of preterm and sick newborns across Switzerland. 👶🤝

And don’t miss the latest research on 𝗵𝘂𝗺𝗮𝗻 𝗺𝗶𝗹𝗸 𝗻𝘂𝘁𝗿𝗶𝗲𝗻𝘁𝘀, helping ensure every baby gets the best possible start. ✨

👉 Read the full newsletter: https://mailings.efcni.org/m/16595350

✏️ Sign up for our monthly newsletter here: https://www.gfcni.org/newsletter

28/10/2025

💊 𝗢𝗻𝗲 𝘁𝗶𝗻𝘆 𝗱𝗼𝘀𝗲 𝗰𝗮𝗻 𝗺𝗮𝗸𝗲 𝗮 𝗵𝘂𝗴𝗲 𝗱𝗶𝗳𝗳𝗲𝗿𝗲𝗻𝗰𝗲.

This month’s 𝗦𝘁𝗮𝗻𝗱𝗮𝗿𝗱 𝗶𝗻 𝗕𝗿𝗶𝗲𝗳 is all about the 𝗽𝗿𝗲𝘃𝗲𝗻𝘁𝗶𝗼𝗻 𝗼𝗳 𝗺𝗲𝗱𝗶𝗰𝗮𝘁𝗶𝗼𝗻 𝗲𝗿𝗿𝗼𝗿𝘀 𝗶𝗻 𝗡𝗜𝗖𝗨 𝗽𝗮𝘁𝗶𝗲𝗻𝘁𝘀 – a critical issue in neonatal care.

In the NICU, even the smallest miscalculation can have serious consequences. Preterm and sick newborns need extra care when it comes to medication – accurate doses, clear protocols, and teamwork between nurses, doctors, and pharmacists.

That’s why we’re sharing a 𝗼𝗻𝗲-𝗽𝗮𝗴𝗲 𝘀𝘂𝗺𝗺𝗮𝗿𝘆 of this essential ESCNH standard, highlighting the most important points to help make the information easier to understand and apply. 🙌

📄 Check out the “Standard in Brief” here:
👉 https://newborn-health-standards.org/standards/standards-english/patient-safety-hygiene-practice/prevention-of-medication-errors-in-nicu-patients/

👶 The European Standards of Care for Newborn Health (ESCNH) are expert-developed recommendations that guide high-quality care for preterm and sick babies across Europe and beyond.

27/10/2025

❓ What is Spina Bifida?

Spina bifida is a birth defect that affects the spine. It occurs when a baby’s spine and spinal cord do not develop properly in the womb, leaving the spine open. 🎗️

💡 Spina bifida is a type of neural tube defect (NTD). The neural tube is an early structure that forms the brain and spinal cord. It usually closes about four weeks after conception. If it does not close completely, however, the spinal cord and nerves can be exposed or damaged, leading to lifelong challenges ranging from mild to severe.

🩺 The outcome depends largely on the form of spina bifida. There are three types:

🔹 Myelomeningocele:
This is the most severe type, where part of the spinal cord and nerves push through an opening in the back. It can result in weakness or paralysis of the legs, as well as bladder and bowel problems, and hydrocephalus, which is a buildup of fluid in the brain.

🔹 Meningocele:
A sac of fluid pushes through the spine, but the spinal cord remains inside. This type often causes milder disabilities.

🔹 Spina bifida occulta:
This is the mildest form and often goes unnoticed. It involves a small gap in one or more vertebrae, but there is no visible opening or symptoms.

🛡️ Can it be prevented?
The exact cause is unknown, but not getting enough folic acid before and during the first 12 weeks of pregnancy is a key risk factor. Taking folic acid supplements before conception and during the first trimester can greatly reduce the risk. 🥬🥦

🌍 Spina bifida is a global concern.
It affects thousands of babies each year – an estimated 1 to 10 cases per 10,000 live births worldwide. Access to diagnosis, surgery, and long-term care varies widely, especially in low- and middle-income countries.

✨ In honor of World Spina Bifida and Hydrocephalus Day on October 25, we support the call to for the inclusion, equity, and dignity of all individuals with spina bifida and hydrocephalus. 💛

🔔 Follow us for more information about global newborn and maternal health!

25/10/2025

That’s a wrap on jENS 2025 in Belgrade! 💜✨

Our closing session on patient safety and error management shone a light on what really makes a difference in neonatal care – from delivery room cuddles and reducing hypothermia in the NICU to quality awareness and benchmarking. 🌍

A huge thank you to all speakers, partners, and participants for an unforgettable week of ideas, collaboration, and compassion. Together, we’re shaping safer, more family-centered care for every newborn. 💜

See you at ! 👋

25/10/2025

Neopedia at jENS Congress! 😍

Since launching Neopedia.org in May, we’ve been amazed by the support and reach it has received across countries and communities. 🌍💜

Sharing it with the scientific community here at jENS Congress is a huge step – helping us raise awareness so more families and hospitals can benefit. Every parent on the NICU journey deserves information that’s reliable, compassionate, and available in their own language.

Neopedia.org features expert advice and easy explanations in English, French, German, Italian, and Spanish – with more languages coming in 2026!

A heartfelt thank you to our partner Chiesi for their vision and incredible support. It was wonderful meeting in Belgrade! 🙌

24/10/2025

Day 3 at jENS 2025 – teamwork, science, and heart! 💜✨

From parent partnership in the NICU to nutrition that helps tiny babies thrive, today’s sessions reminded us how collaboration drives better care.

🫶 The morning session with Silke Mader and Teresa Primavesi-Poggio focused on moving from parent involvement to true partnership.
💪 At our Lunch Symposium, Prof. Roy Philip and Prof. Binder spoke about the power of human-milk-based nutrition for preterm infants.
🌍 In the afternoon, sessions on patient safety and global maternal and brought together experts from across the world.

Learning, connecting, and growing together – for every baby, everywhere. 💜

24/10/2025

🌍 Greetings from in Belgrade!

Our Chairwoman Silke Mader met with our valued partners GE HealthCare to talk about one of the most essential parts of preterm care – 𝗸𝗲𝗲𝗽𝗶𝗻𝗴 𝗯𝗮𝗯𝗶𝗲𝘀 𝘄𝗮𝗿𝗺. 💕

Preterm babies can lose body heat quickly because their skin is thin and they have little body fat. ❄️ When they get too cold, their tiny bodies use up energy and oxygen to stay warm, which can affect their breathing and growth. With the right support, we can help them stay warm, safe, and strong. 💪👶

💡 Learn more in our 𝗸𝗲𝗲𝗽𝗶𝗻𝗴 𝗯𝗮𝗯𝗶𝗲𝘀 𝘄𝗮𝗿𝗺 – simple steps can make a big difference!📄 Download here: https://bit.ly/ThermoFactsheet
🌐 More info: https://www.gfcni.org/gfcni-academy/temperature-management-in-preterm-infants

💜

Adresse

Hofmannstraße 7a
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Öffnungszeiten

Montag	08:30 - 17:30
Dienstag	08:30 - 17:30
Mittwoch	08:30 - 17:30
Donnerstag	08:30 - 17:30
Freitag	08:30 - 17:30

Website

https://gfcni.org/

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