12/03/2026
๐๐ ๐ฝ๐น๐ฒ๐ฎ๐๐๐ฟ๐ฒ ๐ฎ ๐ฏ๐ฎ๐ฟ๐ฟ๐ถ๐ฒ๐ฟ ๐ณ๐ผ๐ฟ ๐ฝ๐ฒ๐ผ๐ฝ๐น๐ฒ ๐น๐ถ๐๐ถ๐ป๐ด ๐๐ถ๐๐ต ๐๐?
For many generations, sexuality and intimacy in the context of Epidermolysis Bullosa (EB) have remained a taboo topic.
But ๐ถ๐ป๐๐ถ๐บ๐ฎ๐ฐ๐, ๐ฐ๐ผ๐ป๐ป๐ฒ๐ฐ๐๐ถ๐ผ๐ป, ๐ฎ๐ป๐ฑ ๐ฝ๐น๐ฒ๐ฎ๐๐๐ฟ๐ฒ are part of human life โ and people living with EB deserve ๐ผ๐ฝ๐ฒ๐ป ๐ฐ๐ผ๐ป๐๐ฒ๐ฟ๐๐ฎ๐๐ถ๐ผ๐ป๐ ๐ฎ๐ป๐ฑ ๐ฟ๐ฒ๐น๐ถ๐ฎ๐ฏ๐น๐ฒ ๐ถ๐ป๐ณ๐ผ๐ฟ๐บ๐ฎ๐๐ถ๐ผ๐ป.
The campaign โ๐๐ฃ๐ฉ๐๐ข๐๐๐ฎ ๐๐๐ฉ๐ฉ๐๐ง๐จ โ ๐ผ ๐๐ช๐๐๐ ๐ฉ๐ค ๐๐๐ญ๐ช๐๐ก๐๐ฉ๐ฎ ๐ฌ๐๐ฉ๐ ๐๐ฅ๐๐๐๐ง๐ข๐ค๐ก๐ฎ๐จ๐๐จ ๐ฝ๐ช๐ก๐ก๐ค๐จ๐โ was created to help break this silence and provide patient-centered guidance for the EB community.
๐ The guideline is currently available in ๐๐ป๐ด๐น๐ถ๐๐ต, ๐ฆ๐ฝ๐ฎ๐ป๐ถ๐๐ต, ๐๐๐ฎ๐น๐ถ๐ฎ๐ป, ๐๐ฟ๐ฒ๐ป๐ฐ๐ต, ๐ฎ๐ป๐ฑ ๐๐ฒ๐ฟ๐บ๐ฎ๐ป, and can be found in the EB Patient Guides section on the Debra International website.
Because talking about sexuality is also about body image, self-confidence, and feeling comfortable in your own skin.
๐ฌ ๐๐ค๐ฌ ๐๐๐ฃ ๐๐ฝ ๐จ๐๐๐ฅ๐ ๐ฉ๐๐ ๐ฌ๐๐ฎ ๐จ๐ค๐ข๐๐ค๐ฃ๐ ๐จ๐๐๐จ ๐ฉ๐๐๐๐ง ๐๐ค๐๐ฎ, ๐๐ฃ๐ฉ๐๐ข๐๐๐ฎ, ๐๐ฃ๐ ๐จ๐๐ก๐-๐๐ค๐ฃ๐๐๐๐๐ฃ๐๐?
