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Kill Parkinson

Lasst uns Parkinson besiegen. Wir haben eine Idee. Von & für Parkinson-Patienten, mit ❤️ aus Berlin

12/04/2026

Today, our volunteer Katrin runs again.
This time in Bratislava. 🇸🇰🏃‍♀️‍➡️
Another 21 km.
Another opportunity to raise awareness for Parkinson’s.

She’ll be wearing our bright pink shirt with a QR code, turning every step into visibility for the cause.
If you see her, cheer her on.
If you can, support the mission: https://donorbox.org/i-run-to-kill-parkinson-s

Let's Kill Parkinson's.
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11/04/2026

It’s World Parkinson’s Day... again.

We’ve been remembering this discovery for 208 years now.

We think that’s long enough.

What do you think?

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Our new website is live. Learn more about our mission, and be part of the movement.
🔗www.kill-parkinson.org

08/04/2026

Dementia affects up to 1 in 3 people in the later stages of Parkinson’s…
and it’s much more than just forgetfulness.

It can impact attention, decision-making, perception, and even how someone experiences reality.

Understanding these symptoms is key to better support, care, and research.

👉 Swipe to learn what dementia in Parkinson’s looks like.
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02/04/2026

Which questions about Parkinson’s do you feel are not clearly or honestly answered?

Are there topics that still feel unclear – whether about early symptoms, disease progression, daily impact, or anything else?

Your questions matter.
💬 Share them in the comments!

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🧠 Through our global patient-driven registry, we will collect real experiences to better understand Parkinson’s and help accelerate research.
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23/03/2026

Deep-brain stimulation is an important tool to manage symptoms in Parkinson's.
But how risky is brain surgery?

A new study compares DBS to other common elective surgeries.
⬇️ Go through the slides to learn more.

💬 Would you consider DBS? Share your thoughts in the comments!
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17/03/2026

If you could change one thing about your neurologist appointments…

𝗪𝗵𝗮𝘁 𝘄𝗼𝘂𝗹𝗱 𝘆𝗼𝘂 𝗹𝗶𝗸𝗲 𝘆𝗼𝘂𝗿 𝗻𝗲𝘂𝗿𝗼𝗹𝗼𝗴𝗶𝘀𝘁 𝘁𝗼 𝗮𝘀𝗸 𝘆𝗼𝘂 𝗺𝗼𝗿𝗲 𝗼𝗳𝘁𝗲𝗻?

Maybe about symptoms that are often overlooked?
Maybe about your daily life?
Maybe about how you’re really feeling?

Your perspective matters, and it can help highlight what should be discussed more in Parkinson’s care.

💬 Share your thoughts in the comments!

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🧠 Through our global patient-driven registry, we will collect real experiences to better understand Parkinson’s and help accelerate research.
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03/03/2026

The Festival of Lanterns marks the end of Lunar New Year celebrations. Traditionally, it symbolizes light, clarity, and the hope of brighter days ahead.

Lanterns are carried to illuminate what lies in the dark.🏮

In Parkinson’s disease, not all symptoms are visible, and some remain difficult to talk about.

This week, we want to hear from you.
Which topic should we shine a light on next?
💬 Comment the letter below: A, B, C, D or E.

Your voice helps guide our content and ensures we focus on what truly matters to the community.

At Kill Parkinson, we believe listening to patient experiences worldwide is how we accelerate better research and awareness. 🚀

Learn more about our mission: www.kill-parkinson.org

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17/02/2026

🌍 𝗠𝗲𝗲𝘁 𝗢𝘂𝗿 𝗧𝗲𝗮𝗺 – 𝗩𝗼𝗹. 𝟭𝟬

As continues to grow, we’re proud to highlight the incredible volunteers driving this mission forward.

Today, meet Adam, Senior Narrative Designer. With a PhD in Game Design and a background in games for social impact, Adam helps shape the narrative and user experience of our Global Parkinson’s Registry, making it more engaging and intuitive for patients to share their experiences.

By designing story elements, characters, and interaction frameworks, Adam supports a registry that patients want to use – helping transform lived experience into structured data that can reveal patterns, inform research, and accelerate the development of effective therapies.

🔎 Adam is one of the dedicated volunteers giving his time, skills, and energy to build something meaningful and drive change in Parkinson’s research.

📢 Stay tuned as we continue to introduce the people shaping our initiative!

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12/02/2026

As Valentine’s Day approaches, we want to talk about something that’s rarely discussed, but deeply affected by Parkinson’s.

PD doesn’t only impact movement. It can change intimacy, desire, relationships, and the way we connect with our partners.
These experiences matter and deserve visibility. ❤️

At Kill Parkinson, we believe that understanding PD means listening to real lives, not just symptoms.

💬 How have love, sexuality, and intimacy evolved for you since Parkinson’s?
Let us know in the comments!
If you prefer, you can send your testimony by private message – we can share it anonymously.

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Adresse

Berlin

Webseite

https://linktr.ee/killparkinson, https://www.kill-parkinson.org/

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