Our Rare Leon

13/08/2026

Hello! 👋🫂
Right now, Leon is back in his hospital bed for enzyme replacement therapy number 96!!
Fighting a rare disease is a non-stop marathon, but looking at that big smile on his face, you would never know it...
Thank you all for keeping our brave boy in your thoughts today and cheering him on! ❤️

30/07/2026

Dose number 95 for Leon today! ❤️ Hospital waits can be tough, but he is currently clearing his mind and de-stressing with a fun game of table football. Love seeing him so relaxed before his magic elixir. 🌟

22/07/2026

❤️‍🩹

This video focuses on a subgroup of lysosomal storage disorders cal...

17/07/2026

It's just a routine ultrasound examination at our favorite place. Everything is fine.❤️

16/07/2026

Leon is receiving his 94th dose of enzyme replacement therapy.

Today is simply not his best day...

❤️

02/07/2026

Leon just finished his 93rd dose of enzyme replacement therapy. ❤️
Everything went smoothly! 😁
Now it's time for some delicious ice cream! 🥵

18/06/2026

School is over, summer vacation has begun and the 92nd infusion needs to be taken...
Leon isn't complaining.
Leon is moving forward.
💪❤️

18/06/2026

This was the first school year in which Leon fully participated.
It strengthened our family's faith for a better tomorrow...
Leon has proven that he can catch up on what he missed in previous years. Leon also met great friends.
All this time, he had to be isolated at home, and we thought it wouldn't be easy for him, but he surprised us again.
Everything about this school year was new and unfamiliar, but that doesn't mean it was impossible.

For anyone who needs to read this today: Don't lose faith! Anything is possible, and anything can happen!

Thank you again to Iamatiki Primary School for the wonderful work you put in to make Leon feel comfortable and safe.

We wish all students a fantastic summer full of smiles, love, and unforgettable, special moments.
Dear teachers, have a wonderful holiday. You deserve it!

Καλό Καλοκαίρι!!! ❤️🎉

13/06/2026

His name is Leon.
He's been through more than most adults...
He had to mature faster to better cope with difficult times...
He never complains.
He's always smiling.
He's our strength, pride, and inspiration. ❤️