Our Rare Leon

Our Rare Leon Πρώτος ασθενής που διαγνώστηκε με νόσο Niemann-Pick (ASMD) στην Κύπρο.
~~~~~~~~~~~~~~~~~
First patient diagnosed with Niemann-Pick disease (ASMD) in Cyprus.

Kalimera!!! ☀️🫂Great news ‼️‼️‼️Leon is feeling much better!Thank you so much for your words of support. ❤️🙏 It means a ...
07/06/2026

Kalimera!!! ☀️🫂
Great news ‼️‼️‼️
Leon is feeling much better!
Thank you so much for your words of support. ❤️🙏 It means a lot at times like these. Especially since the illness came on so suddenly...I'd say it took us by surprise.
We couldn't believe Leon could feel so bad so quickly. Honestly, we'd kind of forgotten what it's like for our warrior to be sick like this.
Fortunately, thanks to enzyme replacement therapy, Leon is stronger, and these things happen less often now.
Look, he is smiling again!😁😍




Leon is struggling with quite severe gastroenteritis...Keep your fingers crossed that he recovers quickly and returns ho...
05/06/2026

Leon is struggling with quite severe gastroenteritis...
Keep your fingers crossed that he recovers quickly and returns home.The weekend doesn't look promising...




Our unique lion is ready for infusion number 91 💪❤️
04/06/2026

Our unique lion is ready for infusion number 91 💪❤️





Hello from Makario Childrens Hospital Nicosia 🫂❤️✨️Today is the 90th dose of enzyme replacement therapy!Everything is go...
21/05/2026

Hello from Makario Childrens Hospital Nicosia 🫂❤️✨️
Today is the 90th dose of enzyme replacement therapy!
Everything is going smoothly!
Leon continues to amaze us. 😁💪






Today is the 89th dose of enzyme replacement therapy ❤️
07/05/2026

Today is the 89th dose of enzyme replacement therapy ❤️







My pride in Leon knows no bounds...❤️
28/04/2026

My pride in Leon knows no bounds...
❤️








Hello friends!🫂Χριστός Ανέστη!✨️The 88th(🤯) dose of enzyme replacement therapy is here.As you can see, nothing can stop ...
23/04/2026

Hello friends!🫂
Χριστός Ανέστη!✨️

The 88th(🤯) dose of enzyme replacement therapy is here.
As you can see, nothing can stop Leon from smiling. 😁
It wasn't always this good...
Walking the halls of Makario Children's Hospital, we see so much fear, helplessness, and suffering in the eyes of the young patients and their families...
There is so much we want to say, but we know there are no words in moments like these, so we just want to let you know that WE SEE YOU!
We know what you are going through. You are not alone.
Never give up!❤️







Hello everyone! 🫂Today is the 87th dose of enzyme replacement therapy.💪Everything is going smoothly. ✨️Leon and his fami...
09/04/2026

Hello everyone! 🫂
Today is the 87th dose of enzyme replacement therapy.💪
Everything is going smoothly. ✨️
Leon and his family wish you a Happy Easter (Καλό Πάσχα).😊
Lots of health and love to all !
❤️🐣💐🐰







Infusion number 86! ❤️
27/03/2026

Infusion number 86! ❤️




...
20/03/2026

...

Address

Koritsas Street
Nicosia
2000

Website

Alerts

Be the first to know and let us send you an email when Our Rare Leon posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Shortcuts

Share

Category