08/10/2026
❤️100 journeys of hope❗️
Today, our brave boy Leon hit his 100th infusion of Xenpozyme. 🎗️
When we look at the number 100, we don’t just see medicine.
We see:
-100 early morning wake-ups, packing bags with heavy hearts but hopeful spirits
-️100 times buckling Leon's seatbelt, whispering "we can do this" before hitting the road
-️100 times Leon waving and saying "see you soon" to his younger sister, who always waits for him so patiently at home
-️100 long drives from Limassol to Nicosia
-100 times waiting patiently in the hospital lines
-100 "good mornings" to our wonderful hospital team
-100 blood pressure and heart rate checks
-100 tiny pinpricks of pain, answered by an ocean of courage from a boy braver than an adult
-️100 days daddy put his job on hold to be by Leon's side
-100 hospital meals
-100 quiet victories on the drive back home, watching the Limassol coastline appear and knowing we conquered another day
-100 hopes for a better tomorrow
There are so many more hundreds wrapped up in this journey—hundreds of little moments, tears, smiles, and sleepless nights—that we couldn't possibly write them all down. But looking at Leon today, every single one of those hundreds was completely worth it.
This therapy is our lifeline. It gives Leon the health, the energy, and the future he deserves. He is our ultimate champion! 🏆
To make this milestone even more unforgettable, the amazing hospital team completely surprised us today by welcoming Leon with a beautiful, custom banner! 😭🎉🎈
A huge, heartfelt thank you goes to the incredible Dr.Olga Grafakou and the wonderful team of nurses at Makario Children's Hospital in Nicosia who have become our extended family. You are our angels.
Thank you for your endless care, patience, and love throughout these 100 rounds! ❤️🏥
Thank you to everyone who has cheered us on through every single heartbeat.
Here’s to strength. Here’s to love. Here’s to number 100 and to many more healthy tomorrows! 🥂✨❤️
