Novo Nordisk Haemophilia & Haemoglobinopathies Foundation

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Novo Nordisk Haemophilia & Haemoglobinopathies Foundation

Together with local partners, NNHF facilitates access to care for people with haemophilia and haemoglobinopathies in low- and middle-income countries.
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19/06/2026

On 𝗪𝗼𝗿𝗹𝗱 𝗦𝗶𝗰𝗸𝗹𝗲 𝗖𝗲𝗹𝗹 𝗗𝗮𝘆, we celebrate the role of partnership beyond borders. ❤️
💙

Across francophone West Africa, partners from 𝗖ô𝘁𝗲 𝗱’𝗜𝘃𝗼𝗶𝗿𝗲, 𝗕𝗲𝗻𝗶𝗻, 𝗚𝘂𝗶𝗻𝗲𝗮, 𝗠𝗮𝗹𝗶 𝗮𝗻𝗱 𝗦𝗲𝗻𝗲𝗴𝗮𝗹 are uniting to improve care for people living with sickle cell disease and haemophilia.

🎥 Watch the film that brings together voices from partners and government representatives, reflecting a shared commitment to stronger care systems, sustained collaboration and long-term change across francophone West Africa.

🔗An integrated care approach can help strengthen diagnosis, care pathways and health system capacity, ensuring that sickle cell disease is better recognised and addressed, while building on areas where alignment with haemophilia care makes sense.

On World Sickle Cell Day, and every day, we thank our partners and all those working together across organisations and countries to turn local needs into stronger care, so more people can receive the care they need.

31/05/2026

📸 Impact Spotlight: May 📸

𝐅𝐫𝐨𝐦 𝐭𝐫𝐚𝐢𝐧𝐢𝐧𝐠 𝐭𝐨 𝐢𝐦𝐩𝐚𝐜𝐭

Pictured here is César Alejandro Figueroa Morán, a physiotherapist from El Salvador, during specialised training on sickle cell disease and haemophilia at Universidade Estadual de Campinas in Brazil, alongside expert volunteer Janina Bosso da Silva Ricciardi.

The training is part of a broader capacity-building effort related to the ongoing -supported project in El Salvador.
🔎 A key objective of the project is to establish an integrated, multidisciplinary care team at Hospital Nacional de Niños Benjamín Bloom, the paediatric reference hospital in the capital city.

🏥 Additional training sessions took place earlier this year at other host institutions in Barcelona and Panama City, enabling healthcare professionals to exchange practical knowledge across settings and strengthen their clinical skills.
✅ The training goals included Transcranial Doppler scanning to help predict stroke risk in people with sickle cell disease, as well as musculoskeletal care and gynaecology support for reproductive health for both disease areas.

📊 Following the programme, the trained specialists will support the decentralisation of basic care in two regions of El Salvador and contribute to improved care for around 650 people living with disorders and .

❤️ A warm thank you to the host institutions, Universidade Estadual de Campinas, Hospital Universitari Vall d'Hebron and Hospital del Niño Dr. José Renán Esquivel in Panama, as well as all expert volunteers, for sharing their time, expertise and commitment. 👏

30/05/2026

📣 Today, we publish the report from the Inherited Blood Disorders Leadership Forum held in Abuja, Nigeria. 📣

Together, partners and policymakers explored what it will take to strengthen care for people living with haemophilia and sickle cell disease, and focused on practical, action-ready recommendations.

Key themes include better government ownership, ring-fenced domestic financing, expanded insurance coverage, decentralised services, and national data systems so decisions are evidence-led.

👉 We invite you to read the report and be inspired to advocate for real-world change: https://bit.ly/4fOqz8M 🌍

Novo Nordisk Foundation NSHBT Official Josephine Olunaike Haemophilia Foundation of Nigeria

29/05/2026

🌍 Present, grateful and connected 🫶

Three words that capture our recent team days in Zurich, Switzerland.

Alongside strategic discussions on advancing NNHF’s 2030 strategy, the NNHF Council meeting took place, including the welcoming of new Council members.

We also visited the children’s hospital Kinderspital Zürich together with members of the NNHF Council, gaining fresh perspectives and strengthening our shared commitment to improving access to care for people living with haemophilia and haemoglobinopathies.

A special thank you to SwissFoundations for hosting one of our team sessions in their beautiful, historic office "House of Foundations".

With strong team spirit, we leave inspired and look ahead with continued focus, committed to our tailored partnership approach, while advancing our ambition to quadruple the number of beneficiaries reached through NNHF-supported programmes.

➡️ Meet the NNHF Council and team members here: https://nnhf.org/about-us/our-team/

16/05/2026

🎉 Congratulations to the NNHF Project of the Year 2026 Winner! 🎉

This year’s award goes to the second phase of the East Africa coalition project (Kenya, Rwanda, Tanzania & Uganda), recognising their tireless efforts to expand access to care for people living with haemophilia and sickle cell disease (SCD), working as one team with shared impact.

✨ Key achievements:
✅ 538 new haemophilia diagnoses in 2 years (+25% diagnosis rate)
🏥 28 clinics established or strengthened (including 13 integrated haemophilia & SCD clinics)
⏱️ Up to a 10 hour reduction in travel time to receive care
🎓 Sustainable training pathways and strong advocacy across the region
📄 Read the full article here: https://bit.ly/42BTNA3

The East Africa project has now entered a third phase to strengthen haemophilia and SCD infrastructure, in-country training, improved diagnosis, and ongoing advocacy.

Congratulations to all partners and stakeholders involved in the East Africa project! 🙌

Haemophilia Foundation of Uganda Haemophilia Society of Tanzania Kenya Haemophilia Association Hemophilia

08/05/2026

💓On World Thalassaemia Day, we celebrate partners who are striving to improve care, visibility and support for people living with thalassaemia. 💓

🏥At RS Universitas Airlangga in Surabaya, Indonesia, a joint thalassaemia and haemophilia clinic is changing the way affected people experience care: one coordinated pathway covering diagno-sis, treatment, monitoring, and support all in one place. 🤝

Across East Java, 600–700 people are estimated to live with thalassaemia. Each person and family deserves care that is consistent, connected and built around their needs.

“Behind every treatment journey is a person trying to go to school, work, care for their family, and plan for the future. Our responsibility is to make care feel less overwhelming, so patients and families know they are not facing their condition alone", said Dr Pradana Zaky, Haematologist at RS Universitas Airlangga.

Today, we celebrate every concrete action to make better care a reality. Read directly from Dr Zaky and the multidisciplinary team at the clinic how they are contributing to this progress and what integrated care means: https://nnhf.org/integrated-thalassaemia-and-haemophilia-care/

04/05/2026

📣Today, we officially welcome our new President and four new Members to the Novo Nordisk Haemophilia & Haemoglobinopathies Foundation!📣

Habib Bennaceur steps into the role of President, joined by Prof Saliou Diop, Alec van Gelder, Elin Jäger and Liselotte Hyveled as new Council Members. Their diverse expertise spanning medicine, healthcare policy, advocacy and sustainability, will ensure our programmes continue to create sustainable, long-term value for people living with haemophilia or haemoglobinopathies.

At the same time, we say a heartfelt thank you to outgoing President Ludovic Helfgott, who served as Council President for almost six of his seven years on the NNHF Council, and to Ognenka Kozar, Council Member since 2024. Thank you for your guidance, leadership and steadfast dedication to the communities we serve.

Finally, we would like to thank our Vice President Stephanie Seremetis and all our continuing Council members, Dr Amy Shapiro, Prof Johnny Mahlangu, Prof Margareth Ozelo, Dr Tulika Seth and Emeritus Council Member Ulla Hedner, for their leadership and support.

Congratulations to the new Council members! Find out more about our Council here: https://nnhf.org/about-us/our-team/

27/04/2026

We were truly impressed by the exemplary infrastructure and the quality of care you provide for people with haemophilia and thalassaemia. Thank you 🙏 for the warm hospitality, we look forward to continuing the collaboration!

21/04/2026

in Kuala Lumpur, Malaysia

What a Congress so far. The energy, exchanges, and connections have been truly inspiring ! Here are a few snapshots. 📷

Please keep sharing your meeting moments and encounters on social media - and don’t forget to tag us! We love seeing all your photos and amazing activities. 😍

Still in Kuala Lumpur?🙌🏻
Us too! Come by booth 402 today, and connect with us before the Congress wraps up. 👋

17/04/2026

📸 Impact Spotlight: April 📸

Welcome to the latest spotlight on : We are proud to share a story that speaks directly to this year's global theme: diagnosis. 🩺

𝗠𝗲𝗲𝘁 𝗠𝗼𝗵𝗮𝗺𝗲𝗱 𝗕𝗮𝗻𝗴𝘂𝗿𝗮
Pictured is Harry Mayeah Koroma, President of Frontiers for Haemophilia and Bleeding Disorders Sierra Leone (left), during a visit in 2024 to young Mohamed, the first haemophilia case ever diagnosed in Sierra Leone, alongside his mother and siblings. A moment that represents much more than one diagnosis. 🤍

𝗪𝗵𝗮𝘁'𝘀 𝗰𝗵𝗮𝗻𝗴𝗶𝗻𝗴 𝗼𝗻 𝘁𝗵𝗲 𝗴𝗿𝗼𝘂𝗻𝗱?
Since the first NNHF project, the total number of diagnosed haemophilia cases has risen from 32 to 47, a 43% increase in diagnosis rates. Behind these numbers are tangible actions:
✅ A core team of champion nurses trained in family tree tracing to identify suspected cases
✅ A dedicated laboratory technician with expertise in haemophilia diagnosis
✅ A trained physician providing basic haemophilia care
✅ Advocacy efforts ensuring the regular availability of diagnostic reagents at Connaught Hospital, made possible with the support of the Mayor of Freetown

𝗪𝗵𝘆 𝗶𝘀 𝘁𝗵𝗶𝘀 𝘄𝗼𝗿𝗸𝗶𝗻𝗴?
At the heart of this progress is a strengthened patient organisation and a committed team of volunteers driving change from within. Outreach workshops across Makeni, Kono and Freetown have raised awareness of haemophilia among healthcare professionals and the wider public, fostering earlier identification and a broader understanding of the condition. 🌍

𝗟𝗼𝗼𝗸𝗶𝗻𝗴 𝗮𝗵𝗲𝗮𝗱 👀
The current project aims to establish multidisciplinary care in the capital and initiate basic and emergency care across three regions, potentially reducing travel time by up to 6 hours for people with haemophilia living outside the city.

Today, we celebrate every diagnosis, every dedicated volunteer and every step forward. The journey of ‘Impacting care. Together’ continues.

Adresse

The Circle 32/38
Zürich
8058

Webseite

http://www.nnhf.org/

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