Novo Nordisk Haemophilia & Haemoglobinopathies Foundation

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Novo Nordisk Haemophilia & Haemoglobinopathies Foundation

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Together with local partners, NNHF facilitates access to care for people with haemophilia and haemoglobinopathies in low- and middle-income countries.
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30/09/2026

📸 Impact spotlight: September 📸

𝐓𝐮𝐫𝐧𝐢𝐧𝐠 𝐚 𝐜𝐨𝐧𝐭𝐢𝐧𝐞𝐧𝐭𝐚𝐥 𝐩𝐥𝐚𝐧 𝐢𝐧𝐭𝐨 𝐜𝐨𝐮𝐧𝐭𝐫𝐲-𝐥𝐞𝐝 𝐚𝐜𝐭𝐢𝐨𝐧

Pictured in Dar es Salaam: a panel discussion at the launch of the Novo Nordisk Haemophilia & Haemoglobinopathies Foundation - Africa CDC partnership. Participants included Council Member Dr Kibet Shikuku and NNHF General Manager Denise Braendgaard, alongside representatives from Africa CDC and Ministries of Health, healthcare experts, and advocates from the sickle cell disease and haemophilia communities.

Co-funded with the Novo Nordisk Foundation , the partnership will support implementation of the Continental Plan for Sickle Cell Disease and Other Inherited Blood Disorders in 10 countries across Africa.

The discussion brought different perspectives to a shared task: turning the Plan into action shaped by local partners and communities.

Read the full story and the African Continental Plan here: https://nnhf.org/nnhf-and-africa-cdc-launch-partnership/

28/09/2026

What happens when young people get the space to lead? 🌱 Watch the Haemophilia Association of Sri Lanka 's (HASL) video from last month’s 𝐘𝐨𝐮𝐭𝐡 𝐂𝐨𝐧𝐧𝐞𝐜𝐭 𝐖𝐨𝐫𝐤𝐬𝐡𝐨𝐩: 𝐄𝐦𝐩𝐨𝐰𝐞𝐫, 𝐈𝐧𝐬𝐩𝐢𝐫𝐞, 𝐋𝐞𝐚𝐝. 🎥

The workshop helped HASL Youth Group members build leadership skills for their personal goals and for the future of their patient organisation. Participants drew on practical lessons from Hemophilia Federation India , whose youth leadership workshop HASL members attended through an NNHF exchange visit in 2025. They brought home ideas for organising programmes and engaging in advocacy.🤝

NNHF has supported HFI’s Youth Group since 2011. Many of its members have since taken on senior roles, including regional committee leadership and the HFI presidency.

Supporting strong patient organisations is part of NNHF’s work to help countries achieve self-sufficiency in haemophilia and bleeding disorders. Developing future leaders, planning for succession and strengthening governance all help make that possible.💪

26/09/2026

at

The Novo Nordisk Haemophilia & Haemoglobinopathies Foundation will be attending the / ASCAT Congress 2026.

This year marks the start of ASCAT’s new multi-year conference series, 𝐇𝐚𝐞𝐦𝐨𝐠𝐥𝐨𝐛𝐢𝐧𝐨𝐩𝐚𝐭𝐡𝐢𝐞𝐬 𝐖𝐢𝐭𝐡𝐨𝐮𝐭 𝐁𝐨𝐫𝐝𝐞𝐫𝐬, beginning with the theme "Building Care That Lasts".

We look forward to being part of this important conversation, learning from experts and peers, and exploring opportunities for collaboration that can contribute to more sustainable and equitable care for people living with sickle cell disease and thalassaemia.

📍 Central Hall Westminster, London
📅 7–10 October 2026
📩 To schedule a meeting, contact us at [email protected]

09/09/2026

🌍 A new chapter for inherited blood disorders in Africa has begun.

Last week in Dar es Salaam, NNHF and Africa CDC launched a partnership, co-funded with the Novo Nordisk Foundation, to support the implementation of the Continental Plan for Sickle Cell Disease and Other Inherited Blood Disorders.

🤝 Bringing together health leaders, government representatives, clinicians, and community advocates, the meeting focused on turning continental commitments into action.

💬 Voices from the haemophilia and sickle cell disease communities reminded us why this work matters: too many people continue to face significant health, social, and economic barriers to care.

📖 Endorsed by all African Union Member States, the Continental Plan provides a clear roadmap for improving care and outcomes.

🌍 Through this partnership, NNHF will support implementation in 10 countries across Africa.

We look forward to sharing the Plan on our platforms once it becomes publicly available.

03/09/2026

𝐏𝐀𝐋𝐎𝐏 𝐜𝐨𝐚𝐥𝐢𝐭𝐢𝐨𝐧 𝐢𝐧 𝐚𝐜𝐭𝐢𝐨𝐧: 𝐩𝐫𝐚𝐜𝐭𝐢𝐜𝐚𝐥 𝐡𝐚𝐞𝐦𝐨𝐩𝐡𝐢𝐥𝐢𝐚 𝐭𝐫𝐚𝐢𝐧𝐢𝐧𝐠 𝐢𝐧 𝐀𝐧𝐠𝐨𝐥𝐚

🌍 The NNHF-supported 𝐏𝐀𝐋𝐎𝐏 𝐜𝐨𝐚𝐥𝐢𝐭𝐢𝐨𝐧, connecting 𝐏𝐚í𝐬𝐞𝐬 𝐀𝐟𝐫𝐢𝐜𝐚𝐧𝐨𝐬 𝐝𝐞 𝐋í𝐧𝐠𝐮𝐚 𝐎𝐟𝐢𝐜𝐢𝐚𝐥 𝐏𝐨𝐫𝐭𝐮𝐠𝐮𝐞𝐬𝐚 or Portuguese-speaking African countries, brings together 𝐀𝐧𝐠𝐨𝐥𝐚, 𝐌𝐨𝐳𝐚𝐦𝐛𝐢𝐪𝐮𝐞 𝐚𝐧𝐝 𝐂𝐚𝐩𝐞 𝐕𝐞𝐫𝐝𝐞 to strengthen haemophilia diagnosis, expand care and build regional collaboration.

📍 This August, that collaboration continued in Luanda with the 𝟐𝐧𝐝 𝐈𝐧𝐭𝐞𝐫𝐧𝐚𝐭𝐢𝐨𝐧𝐚𝐥 𝐖𝐨𝐫𝐤𝐬𝐡𝐨𝐩 𝐨𝐧 𝐇𝐚𝐞𝐦𝐨𝐩𝐡𝐢𝐥𝐢𝐚, hosted at the 𝐈𝐧𝐬𝐭𝐢𝐭𝐮𝐭𝐨 𝐇𝐞𝐦𝐚𝐭𝐨𝐥ó𝐠𝐢𝐜𝐨 𝐏𝐞𝐝𝐢á𝐭𝐫𝐢𝐜𝐨 𝐃𝐫𝐚. 𝐕𝐢𝐜𝐭ó𝐫𝐢𝐚 𝐝𝐨 𝐄𝐬𝐩í𝐫𝐢𝐭𝐨 𝐒𝐚𝐧𝐭𝐨.

🤝 The one-week training complemented the 𝐖𝐅𝐇 𝐭𝐰𝐢𝐧𝐧𝐢𝐧𝐠 𝐩𝐫𝐨𝐠𝐫𝐚𝐦𝐦𝐞 𝐛𝐞𝐭𝐰𝐞𝐞𝐧 𝐀𝐧𝐠𝐨𝐥𝐚 𝐚𝐧𝐝 𝐁𝐫𝐚𝐳𝐢𝐥’𝐬 𝐔𝐍𝐈𝐂𝐀𝐌𝐏, bringing together more than 𝟐𝟎 𝐡𝐞𝐚𝐥𝐭𝐡𝐜𝐚𝐫𝐞 𝐩𝐫𝐨𝐟𝐞𝐬𝐬𝐢𝐨𝐧𝐚𝐥𝐬 from 𝐀𝐧𝐠𝐨𝐥𝐚, 𝐌𝐨𝐳𝐚𝐦𝐛𝐢𝐪𝐮𝐞, 𝐂𝐚𝐩𝐞 𝐕𝐞𝐫𝐝𝐞 𝐚𝐧𝐝 𝐁𝐫𝐚𝐳𝐢𝐥. Participants included haematologists, paediatricians, laboratory technicians, nurses, dentists and physiotherapists.

🩸 As NNHF has expanded its support to include haemoglobinopathies, the training also strengthened healthcare professionals’ capacity in sickle cell disease management. Thank you to 𝐃𝐫 𝐁𝐫𝐮𝐧𝐨 𝐁𝐞𝐧𝐢𝐭𝐞𝐬, haemotherapist from 𝐔𝐍𝐈𝐂𝐀𝐌𝐏, 𝐒𝐭𝐚𝐭𝐞 𝐔𝐧𝐢𝐯𝐞𝐫𝐬𝐢𝐭𝐲 𝐨𝐟 𝐂𝐚𝐦𝐩𝐢𝐧𝐚𝐬, for providing specialised training on red blood cell exchange, erythrocytapheresis.

A concrete example of how existing partnerships, shared language and regional learning can help strengthen care across borders.

📘 Explore the 𝐇𝟏 𝟐𝟎𝟐𝟔 𝐇𝐚𝐥𝐟-𝐘𝐞𝐚𝐫 𝐏𝐫𝐨𝐠𝐫𝐚𝐦𝐦𝐞 𝐑𝐞𝐩𝐨𝐫𝐭 to discover how the PALOP project is progressing across Angola, Cape Verde and Mozambique:
https://nnhf.org/wp-content/uploads/2026/08/260812_NNHF-half-yearly-update_H1-2026.pdf

Liga dos Amigos de Doentes Hematológicos de Angola - LADHA
Unicamp - Universidade Estadual de Campinas
World Federation of Hemophilia

28/08/2026

📸Impact Spotlight: August 📸

Meet Karishma, the mother of two boys living with severe haemophilia A in Mauritius 🇲🇺

Before they had access to care and treatment, hospital visits were a regular part of family life. Bleeds and bruises often disrupted school, daily activities and family routines.

Today, with care and treatment available, her sons rarely need hospital care and are no longer missing school 🎒. The family has also benefited from psychosocial support through the NNHF-supported programme with the Haemophilia Association of Mauritius, helping them better understand the condition and navigate everyday life with confidence 💙.

Access to care changes more than health outcomes. It creates opportunities for children to learn, grow and participate fully in life, while giving families the knowledge and support they need 🤝. The current NNHF project aims to further strengthen haemophilia care, bringing comprehensive care closer to more people across the country.

26/08/2026

In the Democratic Republic of the Congo, haemophilia and sickle cell disease remain significantly underdiagnosed due to limited diagnostic capacity, shortages of trained healthcare professionals and challenges in accessing quality care.

📍 As part of the 𝐍𝐍𝐇𝐅-𝐬𝐮𝐩𝐩𝐨𝐫𝐭𝐞𝐝 𝐇𝐞𝐦𝐨𝐝𝐫𝐞𝐩𝐚 𝟐 𝐩𝐫𝐨𝐣𝐞𝐜𝐭, patient associations, paediatricians and nurses from 𝐊𝐢𝐧𝐬𝐡𝐚𝐬𝐚, 𝐋𝐮𝐛𝐮𝐦𝐛𝐚𝐬𝐡𝐢, 𝐊𝐢𝐬𝐚𝐧𝐠𝐚𝐧𝐢 𝐚𝐧𝐝 𝐌𝐛𝐮𝐣𝐢𝐦𝐚𝐲𝐢 came together for an advocacy and communication workshop.

💬 Together, they identified key priorities and developed common advocacy messages aimed at improving awareness, strengthening healthcare worker capacity, expanding access to diagnostic tools and treatment services, and promoting family tree tracing.

➡️ The next step is to engage authorities, healthcare professionals, and technical and financial partners to advance these priorities and strengthen prevention, early diagnosis and comprehensive care across the DRC.

Follow NNHF to learn more about how partner-led action is helping strengthen access to care.

20/08/2026

𝐇𝐨𝐰 𝐜𝐚𝐧 𝐝𝐚𝐭𝐚 𝐡𝐞𝐥𝐩 𝐲𝐨𝐮 𝐚𝐜𝐡𝐢𝐞𝐯𝐞 𝐲𝐨𝐮𝐫 𝐚𝐝𝐯𝐨𝐜𝐚𝐜𝐲 𝐠𝐨𝐚𝐥𝐬?

At our 𝐨𝐧𝐥𝐢𝐧𝐞 𝐏𝐚𝐫𝐭𝐧𝐞𝐫 𝐇𝐢𝐠𝐡𝐥𝐢𝐠𝐡𝐭𝐬 𝐌𝐞𝐞𝐭𝐢𝐧𝐠, partners from across the Novo Nordisk Haemophilia & Haemoglobinopathies Foundation (NNHF) explored how 𝐝𝐚𝐭𝐚-𝐝𝐫𝐢𝐯𝐞𝐧 𝐚𝐝𝐯𝐨𝐜𝐚𝐜𝐲 can help make local realities visible and strengthen the case for more sustainable care.

Two 𝐍𝐇𝐅-𝐬𝐮𝐩𝐩𝐨𝐫𝐭𝐞𝐝 activities from 𝐊𝐞𝐧𝐲𝐚 & 𝐔𝐠𝐚𝐧𝐝𝐚 and 𝐈𝐧𝐝𝐢𝐚 highlighted how evidence on economic burden, quality of life and financial protection can support advocacy, policy dialogue and action.

A warm thank you to our speakers, 𝐃𝐫 𝐑𝐢𝐜𝐡𝐚𝐫𝐝 𝐒𝐚𝐧𝐲𝐚 and 𝐃𝐫 𝐌 𝐉𝐨𝐬𝐞𝐩𝐡 𝐉𝐨𝐡𝐧, and to all partners who joined online, asked thoughtful questions and contributed to an interactive exchange.

📸 These images capture just a few of the many participants from a call that brought together more than 𝟕𝟎 𝐩𝐞𝐨𝐩𝐥𝐞 across NNHF’s global community.

Curious how our programmes are strengthening care through local partnerships and data-driven advocacy? Find out more: www.nnhf.org

12/08/2026

What does progress look like?

𝗣𝗿𝗼𝗴𝗿𝗲𝘀𝘀 𝘁𝗮𝗸𝗲𝘀 𝗺𝗮𝗻𝘆 𝗳𝗼𝗿𝗺𝘀: 𝗶𝗺𝗽𝗿𝗼𝘃𝗲𝗱 𝗱𝗶𝗮𝗴𝗻𝗼𝘀𝗶𝘀, 𝘀𝘁𝗿𝗼𝗻𝗴𝗲𝗿 𝗰𝗮𝗿𝗲 𝘀𝘆𝘀𝘁𝗲𝗺𝘀, 𝗮𝗻𝗱 𝗸𝗻𝗼𝘄𝗹𝗲𝗱𝗴𝗲 𝗮𝗻𝗱 𝗲𝘅𝗽𝗲𝗿𝘁𝗶𝘀𝗲 𝘀𝗵𝗮𝗿𝗲𝗱 𝗮𝗰𝗿𝗼𝘀𝘀 𝗯𝗼𝗿𝗱𝗲𝗿𝘀.

A few snapshots from the first half of 2026:

🔎 Mozambique: More than 180 healthcare professionals, including laboratory technicians, received haemophilia training, helping strengthen diagnosis, referral pathways and access to multidisciplinary care closer to home for people living with haemophilia.

🤝 Nigeria: 74 stakeholders came together through the Inherited Blood Disorders Leadership Forum, leading to a new Technical Working Group.

🌍 Across regions: Partners in East Africa, West Francophone Africa, Central America and the Caribbean, Portuguese-speaking Africa and the Vanilla Islands are connecting within their regions to share expertise and strengthen approaches to care.

And these examples are only a snapshot. Explore the First-half 2026 Programme Report: https://nnhf.org/first-half-of-2026/

27/07/2026

🔎When progress in one country helps move a region forward👏

With support from , representatives from Mauritius, Madagascar, Comoros and Seychelles came together for a workshop to explore how regional collaboration can strengthen care for people living with and across the Vanilla Islands.

📊 Mauritius offers one example of progress, with an active patient organisation, a 76% diagnosis rate for haemophilia and strong country ownership reflected in the Ministry of Health’s commitment to treatment.

🤝 Mauritius and Madagascar committed to supporting Comoros and Seychelles through knowledge sharing, healthcare professional training and the development of patient organisations.

🩸 Participants also identified shared priorities, including strengthening referral systems, exploring appropriate screening approaches for haemoglobinopathies, building patient registries and ensuring sustainable access to treatment.

🚀 The next ambition is to establish an Indian Ocean Coalition and a regional technical committee to support continued collaboration.

🔗 Discover how NNHF supports locally led programmes:
https://nnhf.org/programmes/

Adresse

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Website

http://www.nnhf.org/

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