Sjögren Europe

06/06/2026

EULAR Congress 2026 has come to an end! 🔹

The past few days brought encouraging news and important developments for the Sjögren’s Disease community, highlighting the growing momentum in research and innovation.

Sjögren Europe was proud to be represented at the congress by:
▪️ Katy Antonopoulou, President
▪️ Anna Vieira, Vice President
▪️ Coralie Bouillot, Secretary General

Thank you to everyone we met, collaborated with, and learned from during these inspiring days. We leave with new knowledge, new connections, and renewed hope for the future of people living with Sjögren’s Disease.

💙

06/06/2026

At , important new research continues to shed light on the complexity and long-term impact of Sjögren’s disease 💙

From systemic progression and organ damage to s*x differences, lung involvement, mortality risk and childhood-onset disease, these posters highlight the urgent need for earlier diagnosis, integrated care and sustained research efforts.
Behind every dataset are patients facing an invisible, systemic and often underestimated disease 🌟

Sjögren Europe is proud to see the scientific community advancing knowledge that can help improve recognition, management and ultimately quality of life for people living with Sjögren’s.

Because better understanding leads to better care 💙

04/06/2026

Let’s kick off the second day at EULAR 2026 in London 🇬🇧 !

Sjögren Europe is delighted to be taking part in EULAR 2026 💙

Come and visit us at our stand: Level 3, NPO Area O7 📣

27/05/2026

Spider The Spider Web What grade do you give yourself for each topic? Put that in the spider web, 0 (it's going very badly) to 10 (it's going very well). In the spider web you can now see how you are doing. What is going well and what is going less well? What would you like to change? 230 characters...

25/05/2026

Webinar this Wednesday, join us for the official launch of SpiderWeb!

📅 Wednesday, 27 May 2026
🕕 18:00–19:00 CET
💻 Online Webinar | Open to all

Discover how SpiderWeb, inspired by the Positive Health approach, can help patients prepare for appointments, reflect on what matters most in their daily lives, and strengthen communication with healthcare professionals.

Live captions will be available in multiple languages. Participants can select their preferred language from the captions menu once they join the webinar.
🎙️ Speaker: Joyce Koelewijn-Tukker
🔗 REGISTER HERE: https://us06web.zoom.us/webinar/register/WN_i_c-93y3TkWn7CKdOSBt8A
━━━━━━━━━━━━━━━
🧩 Explore the tools before the webinar:
🔹 Consultation Card
👉 https://www.sjogreneurope.org/consultation/
🔹 Positive Health Questions
👉 https://www.sjogreneurope.org/questions/
🔹 SpiderWeb Tool
👉 https://www.sjogreneurope.org/spider/?lang=en
🌍 Available in 13 languages!
We warmly encourage everyone to try the tools before joining the webinar so we can make the discussion and Q&A even more interactive and useful 💙

Spider The Spider Web What grade do you give yourself for each topic? Put that in the spider web, 0 (it's going very badly) to 10 (it's going very well). In the spider web you can now see how you are doing. What is going well and what is going less well? What would you like to change? 230 characters...

18/05/2026

International Sjögren's Disease Symposium 2026 — Paris

We are proud to announce that Sjögren Europe is an official partner of the 17th ISSjD!
Join researchers, clinicians, and patients from around the world at the Maison Internationale Cité Universitaire, Paris from 29 September to 2 October 2026 for the latest advances in Sjögren's disease.

Early Bird Registration closes 25 May 2026 : don't miss the preferential rates! 👉 Register here: https://issjd-paris2026.com

Call for Abstracts is still open : submit your research now! 👉 https://issjd-paris2026.com/call-for-abstracts

Share this with your network and spread the word!

16/05/2026

🇬🇧 We’re excited to be attending the congress 2026 in London from June 3–6!

Come and meet the Sjögren Europe team at booth NPO area/07 on level 3, close to the session rooms.

An important opportunity to connect with healthcare professionals, researchers, patient organisations, and the rheumatology community to continue raising awareness around Sjögren’s disease and patient advocacy across Europe.

See you in London 🇬🇧

EULAR LondonEvents

10/05/2026

Today is — when we all take a moment to show support for the millions affected by lupus. It’s easy to raise lupus awareness! Wear purple and share lupus facts from our toolkit at WorldLupusDay.org/tool-kit

Show your support for those affected by TODAY by sharing facts about lupus and proudly wearing your purple for WorldLupusDay.org/tool-kit

Did you know? Steroids are a common treatment for lupus but have side effects. It’s crucial to manage them effectively and support ongoing research for more treatments. This let’s raise awareness of the need for more treatments for .

Visit WorldLupusDay.org/tool-kit for more facts & resources!

10/05/2026

🔬 Your voice matters!

EULAR (the European Alliance of Associations for Rheumatology) has launched an important survey on the impact of Rheumatic and Musculoskeletal Diseases (RMDs) on everyday life — and we need YOUR help!

If you are living with an RMD, your experience is invaluable. By taking part, you will help to:
✅ Shape future research
✅ Improve healthcare for people living with RMDs
✅ Inform policy decisions and close healthcare gaps across Europe

The survey is now available in 8 languages:
🌍 English | Français | Deutsch | Nederlands | Español | Português | Italiano | Čeština

👉 Take part here: www.eular.org/impactsurvey
▶️ Watch the video (English only): https://youtu.be/zAd1KzcRwa4

Please share this post and help us reach as many people as possible! 💙

Join the EULAR Impact of RMDs Survey to share your experience with rheumatic and musculoskeletal diseases (RMDs). Your input through periodic questionnaires ...

09/05/2026

Have your say! Survey available in several languages.

Over 1,000 people living with rheumatic and musculoskeletal diseases have already shared their voice… will you be one of them?

🌟Take part in the EULAR Impact of RMDs Survey and help shape better care, stronger advocacy, and future research.

The survey is now available in Italian and Dutch — alongside English, German, Portuguese, Spanish, Czech and French, with more languages coming soon!

Take your time: you can pause anytime and finish later.

Have your say 👉 https://pulse.ly/rty9cfkmmf