29/05/2026
"The core question should always be: who is included, who is excluded, who benefits, who pays, and who holds power?” — Ali Hisham, a person with lived experience of and an NCD Alliance Our Views, Our Voices Fellow.
Last week, Ali participated in a dynamic discussion organised by Transform Health Coalition on the sidelines of .
He shared his insights and perspectives on digital health, barriers to equity, data rights, privacy, and power imbalances between manufacturers and people using devices to manage their NCDs.
🗨️“People often have no real alternatives for managing their conditions, so they are forced to accept unfair conditions around pricing, availability, access, and data use. This gives manufacturers significant power over access, pricing, availability, data, and design.”
He urged decision-makers to share power and meaningfully involve people living with NCDs in decisions that affect their lives.
🗨️“Digital health can only be transformative when it is designed with, and for, the people who are usually excluded from power."
