MBNF, Manitoba Neurofibromatosis Support Group

05/27/2026

We are excited to share this scholarship opportunity for those with NF & their siblings! Thank you to the Warrhunter family for sharing 💚 💙

Please check out the link below for all the details:

We created this scholarship in honour of our son, who lives with NF1, and our daughter, who is just beginning her university journey. Students with Neurofibromatosis and Schwannomatosis deserve to be recognized for their strength, resilience and determination in the face of challenges both seen and....

05/17/2026

💙💚 Happy NF Awareness Day! 💚💙

We are so grateful for this incredible community and the reminder that no one ever has to face NF alone. Every child growing up with NF deserves to know another child who truly understands what they’re going through. We continue to be inspired by the strength, resilience, and support within this community every single day.

Today, the Winnipeg sign, Esplanade Riel Bridge, and the Selkirk water tower will all be lit up in blue and green as part of the “Shine a Light on NF” awareness campaign. 💙💚

If you’re out and about tonight, snap a photo and share it with us — we’d love to see them! 📸

05/17/2026

📅 May 16 — Sweet Sixteen of Awareness! The Manitoba Neurofibromatosis Support Group presents Day 16 of One Fact – One Lie – One Myth! We’re sixteen days strong — keep the curiosity alive and test your NF knowledge.
🧩 Fact? Lie? Myth? You decide. • MEK inhibitors can shrink plexiform neurofibromas. • MEK inhibitors cure NF. • MEK inhibitors work for all NF tumor types.
📞 204 232 5197 📧 [email protected] 🌐 mbnf.ca

05/17/2026

📅 May 15 — Halfway There! The Manitoba Neurofibromatosis Support Group presents Day 15 of One Fact – One Lie – One Myth! We’re halfway through the challenge — let’s keep the momentum going and test your NF knowledge!
🧩 Name each one below: • NF is lifelong and requires monitoring. • NF goes away on its own. • NF always gets worse with age

05/17/2026

📅 May 14 — Knowledge Level Rising! The Manitoba Neurofibromatosis Support Group presents Day 14 of One Fact – One Lie – One Myth! One truth is hiding — can you find it?
🧩 Name each one below: • NF1 patients have a higher risk of breast cancer under age 50. • NF1 guarantees breast cancer. • Only women with NF1 need early screening.

05/17/2026

📅 May 13 — Unlucky for Some… But Not You!
The Manitoba Neurofibromatosis Support Group presents Day 13 of One Fact – One Lie – One Myth!
Ready to challenge superstition and sharpen your NF knowledge? Let’s see if you can spot the truth!

🧩 Name each one below:
• NF tumors can appear anywhere along nerves.
• NF only affects the skin.
• NF tumors are always visible externally.

📞 204‑232‑5197 📧 [email protected] 🌐 mbnf.ca

05/12/2026

📅 May 12 — Truth Seekers Wanted! The Manitoba Neurofibromatosis Support Group presents Day 12 of One Fact – One Lie – One Myth! Think you can spot the truth? Let’s put your NF knowledge to the test!
🧩 Name each one below: • NF can be diagnosed through clinical criteria. • A single blood test can diagnose all NF cases. • Genetic testing always detects NF1 mutations.

05/10/2026

🌸 Happy Mother’s Day!
We’d like to extend our heartfelt wishes to all the incredible mothers — both within the NF community and beyond. You ladies are true rockstars every single day.

Enjoy your special day — you’ve earned it! 💐

05/10/2026

📅 May 10 — Double Digit Challenge & Mother’s Day Shout Out! Today, the Manitoba Neurofibromatosis Support Group celebrates all the amazing moms who inspire strength, compassion, and courage every day — while we dive into Day 10 of One Fact – One Lie – One Myth!

It’s a special day of love and learning. Let’s honor the mothers who stand tall for their families and the NF community — and keep the truth seeking spirit alive!

🧩 Name each one below:
• NF1 can cause bone abnormalities. • Bone deformities happen to everyone with NF. • All NF patients develop scoliosis.

💐 Happy Mother’s Day to all the superheroes in our NF community!

05/10/2026

📅 May 9 — The Plot Thickens! The Manitoba Neurofibromatosis Support Group returns for Day 9 of One Fact – One Lie – One Myth! The mystery deepens — can you spot the real fact hiding among the fiction? 🧩 Name each one below:
• NF is not caused by lifestyle or diet.
• You can cure NF with detoxes.
• Certain foods trigger NF tumors.