Welcome to the official page for the Fragile X and Related Conditions (FXRC) Clinic. The FXRC was created out of a need identified from the Canadian Pediatric Surveillance Study on Fragile X performed by developmental pediatrician, Dr. Jonathan Down, and clinical geneticist, Dr. Gudrun Aubertin. http://www.cpsp.cps.ca/surveillance/study-etude/fragile-x-syndrome
Based on the results, bo
th doctors resolved to have an organized, multidisciplinary clinic that met the needs of individuals and families affected by FXS on Vancouver Island. FXRC start-up funding came from the Specialist Services Committee (SSC), a joint collaborative committee of the Ministry of Health and the Doctors of BC. The project is being delivered as a Vancouver Island Service within Island Health. Mandate:
It is our goal to start a conversation with Vancouver Islanders about the ongoing research efforts, resources and supports for healthcare professionals, support workers and families affected by FXRC. For more information, please visit:
http://www.viha.ca/cyf_rehab/clinics/fragilex/
Moderation Policy
We welcome your participation in our FXRC discussions and greatly look forward to an active exchange of ideas. We want to publish your comments, and ask that conversations follow the conventions of polite discourse. To that end, we won't post comments that:
• contain abusive, obscene, indecent or offensive language
• include defamatory, abusive, harassing or hateful remarks or make unproven or unsupported accusations against individuals or organizations
• constitute spam, promote services or products
• invade anyone’s privacy or impersonates anyone
• are far off-topic
• are posted without the necessary rights, licences and consents
• encourage conduct that may or would constitute a criminal offence or give rise to civil liability, or that otherwise violates any local, provincial, national or international law or regulation anywhere in the world
• contain long embedded URLs
• contain excessive links or contain code
• identify any publicly-elected representative or candidate regardless of their political affiliation, whether those comments are supportive or critical
• are contrary to the principles of the Canadian Charter of Rights and Freedoms
We reserve the right to edit or remove objectionable content, so please ensure that your comment contains none of the above. Comments submitted after hours or on weekends will be read and replied to as early as possible the next business day. To protect your own privacy and the privacy of others, please do not include phone numbers or email addresses in the body of your comment.
