MEFM Society of BC

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MEFM Society of BC

Myalgic Encephalomyelitis (ME) and Fibromyalgia (FM) affect over 100,000 British Columbia residents

We are a registered charity that was formed to help and support people, and their families, living with the health conditions Myalgic Encephalomyelitis (ME) and/or Fibromyalgia (FM).

10/05/2026

A useful resource. A conversation about a difficult day. A life hack or something that makes you laugh. There’s room for all of these in our community.

Our latest blog explores what informal online conversation can offer people living with ME, FM and Long COVID, including those who prefer to quietly follow along.

Read New Ways to Connect: https://f.mtr.cool/98gwum86ex

Coming mid-October, we’re adding more of these conversations to our Instagram, TikTok, Snapchat and YouTube. Our new social media support person, Rai, lives with Long COVID/ME, POTS and dysautonomia. She’ll be creating short posts and videos with easy ways to take part.

We’re not ready yet! In about a month, you will see our launch announcement here, with Rai’s introduction video and account links. We can't wait for you to join us!

09/23/2026

Mark your calendar — our 2026 Annual General Meeting is coming up on Saturday, September 26 at 2 pm PST.

Join us for updates on our strategic plan, projects, and day-to-day work supporting the ME|FM community — and share your own ideas and feedback.

Become a member (it's free) and register for the AGM → https://f.mtr.cool/mmvg24j25b

09/22/2026

Fibromyalgia genetics study

September is Pain Awareness Month — and there is important new fibromyalgia research to share.

2.5 million people
Six countries
26 genetic regions associated with fibromyalgia

The largest genetic study of fibromyalgia ever conducted has given researchers powerful new clues about the biology behind the illness.

That matters because people with fibromyalgia are still fighting to have their pain taken seriously.

One BC patient told us:

"We are not drug seeking. Trust me, I would not be there if my pain wasn't approaching critical levels."

The study doesn't mean scientists have found a single "fibromyalgia gene," and it doesn't give us a new treatment tomorrow.

But it gives researchers important new places to look for answers.

Patients shouldn't need genetic evidence to prove their pain is real. But after decades of disbelief, this research matters.

Read the full story → https://f.mtr.cool/qby4k1ufll

09/21/2026

Something new is coming to our Instagram, TikTok, Snapchat and YouTube this fall! 🌿

We're making more room for conversation about life with ME, FM and Long COVID — everyday experiences, different perspectives, practical ideas, and a little humour along the way.

Meet Rai, who's joining us to help bring these conversations to life. Rai lives with Long COVID/ME, POTS and dysautonomia, and will be creating short posts and videos with questions, relatable moments and easy things to join in with.

There's room for good days and hard ones, small wins and the things we wish others understood. Share as much or as little as you like — a few words, an emoji, or just following quietly is all welcome.

We're still getting things ready, so hold off on looking for the new content just yet. Our October newsletter will bring you Rai's video introduction and direct links to join in.

09/09/2026

Membership in the ME|FM Society of BC is free, and it makes a real difference. 💜

As a member, you can vote at our AGM, attend member socials, serve on the Board or committees, and be the first to know about new science-based research. Every member also strengthens our voice with government and provincial healthcare, so more members mean a stronger case for better care and support across BC.

If you haven't joined yet, now's a great time. And if you're already a member, thank you for being part of this community.

👉 Become a member; it's free.

https://www.mefm.bc.ca/become-a-member

09/08/2026

With so many treatments competing for our attention, how do you evaluate what's credible? Our Interdisciplinary Advisory Committee has put together guidance for weighing research studies, programs, and treatments, especially ones that blend scientific language with commercial offerings.

Read the full statement on our blog.

https://www.mefm.bc.ca/

09/04/2026

Stanford's Genome Technology Center is hosting a free virtual Community Symposium on the Molecular Basis of ME/CFS, featuring distinguished speakers sharing the latest research updates and insights. Presented on behalf of Dr. Ronald Davis.

- Friday, September 11, 2026
- 8:00 AM PST
- Virtual, register to attend

Register now: https://stanford.zoom.us/webinar/register/WN_SHMUXqjTSj6wNicQ6LSyPw #/registration

09/03/2026

Our 2026 Annual General Meeting is coming up!

Join us Saturday, September 26 at 2 pm PST for updates on our strategic plan, our projects, and what we're doing to support the ME/CFS, Fibromyalgia, and Long COVID community in BC, plus a chance to share your own ideas and feedback.

Society membership is free, and you'll need to be a member to attend. To vote, membership must be at least 30 days old, so join today if you'd like to have a say.

Become a member & Register for the AGM (link in bio)

https://www.mefm.bc.ca/become-a-member
https://us02web.zoom.us/j/82447583760

09/02/2026

In BC, there are over 200,000 people with either myalgic encephalomyelitis (ME) or Long COVID that has lasted over a year. If this is you or your loved one, your voice is deeply needed.

Reaching out to your MLA is easier than you think. Join other disabled volunteers & caregivers to speak up for your healthcare needs. Volunteering with us will not ask for more than your energy envelope can handle.

We can coach you to tell your story to your MLA in a way that is compelling, effective, and considerate of your symptoms.

Sign up via the linktree in our bio or email [email protected]

https://www.mefm.bc.ca/

08/26/2026

25% of people with myalgic encephalomyelitis (ME) are house- or bed-bound.

We can speak for ourselves, but we can't do it alone. We want to reach as many MLAs as
possible, and they don't often reply to those outside their ridings. The more volunteers
we have across BC, the stronger our advocacy.

We'll connect you with your MLA to share your story and express your healthcare
priorities for BC.

Sign up via the linktree in our bio or email [email protected]

https://www.mefm.bc.ca/

Address

Vancouver, BC
V6J5M4

Telephone

+16048787707

Website

http://www.mefm.bc.ca/

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