Tumour Foundation of BC

05/30/2026

As NF Awareness Month comes to a close, the work continues.
Awareness doesn’t end here because the experiences of those living with NF continue every day.

Thank you for being part of this month.

💛 Keep learning�
💛 Keep sharing�
💛 Keep supporting

Together, we can build a more informed and compassionate community.

Tumour Foundation BC has been commited to supporting the children and families with neurofibromatosis and to empower individuals with NF for over 34 years. NF, NF1, NF2, Tumor, Neurofibromatosis.

05/29/2026

Living with NF can come with challenges that aren’t always visible.
But it also carries strength, resilience, and courage.

To everyone navigating NF:
We see you.
We support you.
You are not alone.

05/28/2026

Awareness isn’t just about recognition. It can lead to real change.

More awareness means:
- earlier diagnosis
- better access to care
- increased research and funding

You can help:
- Share this post
- Donate
- Get involved

Together, we can improve the future for those living with NF.

05/27/2026

What would you like to see for the future of NF care?
Better access? More awareness? Improved treatments?
Your voice helps shape what comes next.

05/26/2026

Supporting someone with NF doesn’t require having all the answers.

It can start with:
- Listening without judgment
- Learning about the condition
- Being present and consistent

Small actions can have a meaningful impact.

05/25/2026

NF2-related schwannomatosis is a rare genetic condition that causes tumours, called schwannomas, to grow on nerves.
These tumours often affect hearing and balance.

It impacts approximately 1 in 25,000 people. Early diagnosis and specialized care are essential.

05/24/2026

What helps you feel supported when living with NF?

It could be something small or something meaningful.
Your insight may help others feel seen and understood.

05/23/2026

Myth: NF is the same for everyone
Reality: No two experiences with NF are alike.

Symptoms, severity, and challenges vary widely.
Awareness means recognizing and respecting individual experiences.

05/22/2026

There is currently no cure for NF.
However, research is ongoing, and advancements in treatment continue to improve quality of life for many individuals. Awareness and funding help drive progress.

You can support our work at NFTruth.ca

05/22/2026

22nd May is World NF2 Awareness Day. NF2-Related Schwannomatosis (NF2) is a rare condition that affects 1 in every 33,000 people worldwide, leading to the development of tumours in the central & peripheral nervous systems, mainly in the brain and spinal cord. It can have profound impact on those with NF2 and their families, but remains largely unknown to the general public.

We are discussing mental health in NF2-SWN today. Kim Whitlock, trustee of Cure NF2 Foundation UK & Europe has written a blog about her recent surgery experience and the impact it has had on her emotional, physical and mental wellbeing.

Mental wellness in NF2 Surgery is the silent psychological burden of NF2 which often stems from the progressive nature of the condition (tumour growth, hearing loss, balance issues) and the uncertainty of outcomes from surgery, which may preserve function — or accelerate loss. Emotional strain is a major component of NF2.

Here Kim shares a very honest account of her recent surgery and its effects it has had on her mental wellbeing. Please do take a few minutes to have a read and understand why Cure NF2 Foundation is funding research into new treatments or a cure, giving hope to patients and their families.

I dont regret having the surgery despite me having complications. I have no recollection of around 6 weeks of my life.