Canadian Fabry Association

10/16/2026

Welcome to the PEI Women's Summit! Rare, Connected, Understood.

09/29/2026

09/28/2026

FABRY SCHOOL PEI 2026

Four classrooms. Four conversations. A whole lot of learning.

Thank you to our teachers/presenters for sharing your knowledge so generously, and helping our patients and caregivers leave Fabry School knowing more than when they walked in.

Fabry School 1
Fabry Disease: Learning About It, Understanding It & Finding Reassurance
Teacher: Dr. Christiane Auray-Blais

Fabry School 2
Reset & Reclaim: Your Emergency Toolkit for Anxiety
Teacher: Heidi Boivin

Fabry School 3
Fabry Clinic 101: Your Tests & Your Team, Your Care
Teachers: Caroline Selvage, Kelly Meades & Krista Courtney

Fabry School 4
Girl, You Know It’s True: Defining Fabry Disease in Women
Teacher: Dawn Laney

09/28/2026

Community is Medicine.

09/04/2026

🎉 OUR BOOK IS FINALLY HERE! 📘✨

We are beyond thrilled to share a very special project with you! "Andy's ABC Adventure: Learning About Fabry" is officially available now!

This isn't just any book—it’s created by the Fabry community, for the Fabry community. Follow Andy the Tiger from A to Z as he learns to navigate life with Fabry disease! Bringing real patient, family, and caregiver experiences to life, this story breaks down medical concepts into accessible ideas while focusing on emotional strength, resilience, and reminding readers of all ages that no one faces this journey alone. 🐅💙

💙 Why your copy matters:

• 100% of proceeds go directly to the Canadian Fabry Association to support families and individuals living with Fabry.

• It’s a wonderful tool to explore, empower, and learn together while spreading awareness!

🛒 How to get yours:

1 Click the link: https://www.amazon.ca/dp/B0HH95MZGW

2 Or simply search "Fabry" on Amazon—it’ll pop right up! ($17.99 CAD)

Grab your copy today, share with family and friends, and help us make a difference! 🌟📚

09/01/2026

FabryCast Episode 12 guest Linda Quaranta sent us this photo rocking her BE RARE. BE YOU. sweater!

Linda joined us for an incredible conversation about intentional living, resilience, and navigating life with Fabry.

🎧 Haven’t heard her episode yet? Go give Episode 12 a listen!

09/01/2026

We’re excited to introduce the newest member of the Canadian Fabry Association Board of Directors, Matt Pascuzzo.

Matt brings an incredible combination of experience in law, communications, leadership, governance and community service, and just as importantly, he brings empathy, a strong and thoughtful voice, and a genuine drive to create positive change.

A natural advocate, Matt believes in making a meaningful difference, and we know his perspective, leadership and passion will be a wonderful addition to our Board as CFA continues to grow, strengthen our community, and advocate for those impacted by Fabry disease across Canada.

We feel incredibly fortunate to have Matt around our board table.

08/19/2026

Fabry disease can come with out-of-pocket costs that many people never see.

Travel. Parking. Hotels. Lost income. Caregiving responsibilities. Medical supplies. Copays and deductibles.

If you are living with Fabry disease or caring for someone who is, we invite you to participate in a confidential Canadian survey documenting these financial realities.

✅ Anonymous & confidential
✅ 10–15 minutes
✅ Open to Canadians affected by Fabry disease

https://survey.alchemer-ca.com/s3/50616616/78ec0db3d7c9



La maladie de Fabry peut entraîner des dépenses à votre charge que beaucoup de gens ne voient pas.

Déplacements. Stationnement. Hébergement. Perte de revenu. Responsabilité d’un proche aidant. Fournitures médicales. Quotes-parts et franchises.

Si vous vivez avec la maladie de Fabry ou prenez soin d’une personne qui en est atteinte, nous vous invitons à participer à un sondage canadien confidentiel visant à documenter ces réalités financières.

✅ Anonyme et confidentiel
✅ Cela vous prendra de 10 à 15 minutes
✅ Ouvert aux Canadiens touchés par la maladie de Fabry

Participez au sondage : https://survey.alchemer-ca.com/s3/50616616/78ec0db3d7c9

CommunautéMaladiesRares

07/28/2026

Our Summer Issue of Fabry Aware is here.

Every edition is a reflection of what our community can accomplish when we come together.

Inside this issue, you’ll find highlights from our Quebec Patient Empowerment and Youth Meetings, key takeaways from the Fabry International Network (FIN) Expert Meeting, new resources for young adults living with Fabry disease, updates on our sold-out Women’s Retreat, our CFA Resilience Program, advocacy initiatives, community news, and much more.

06/30/2026

Registration is now full, and we are grateful for the strong interest in this event.

You are welcome to join the waitlist. Should a spot become available, we will contact individuals on the waitlist directly.