06/24/2026
It’s been a while since I’ve written something this personal. This past January marked 10 years since we lost Jordana to DIPG. How ?? I don't know.
For those that have been following, I'm sure you've noticed my lack of posts. Over the years, I’ve found it harder to be as vulnerable as I once was. Life moves forward, and somehow you don't know how to share that life is moving on without her. Guilt ? Rage that I can still enjoy life. For sure...but I assure you, the grief is definitely there, only quieter.
Then a message arrives. A bomb-more than a message, that brings me right back to 2016.
Through a mutual friend, I learned about Andrew and Meagan Fisher's son William. With their permission, I’m sharing their son’s story.
Learning about William journey so far-his symptoms, MRI results, daily radiation, the panic to search of meaningful clinical trials. Becoming a doctor with no medical degree and in desperation daily pleads to God too. Memories I never wanted another family to experience came flooding back.
Their little boy is currently receiving radiation at SickKids. My hope is to help them however I can, whether that’s navigating treatment options, connecting them with clinical trials, or helping ease the financial burden if travel to the U.S. becomes part of his journey.
Over the past 10 years, our family has learned so much. If sharing our experience can help another child or another family, then that’s exactly what I’ll do.
If you’re able, please consider supporting the Fisher family. The donation link is in my bio. Every donation, every share, and every prayer means more than you know.
We LOVE YOU WILLIAM FISHER. If I could take this diagnosis away from you, William, I would.
I would do anything for another child to never have to hear the words “It’s DIPG.” PLEASE SHARE. LINK IN BIO
