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Dystonia Medical Research Foundation Canada

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Toronto, ON
Dystonia Medical Research Foundation Canada

The Dystonia Medical Research Foundation was founded in 1976 by Samuel and Frances Belzberg of Vancouver, after their daughter was diagnosed with generalized dystonia. The mission of the Dystonia Medical Research Foundation (DMRF) Canada is to advance research for more treatments and ultimately a cure; to promote awareness and education; and to support the needs and well being of affected individu

als and families. DMRF Canada works in partnership with the Dystonia Medical Research Foundation in the United States and other like-minded research organizations to ensure funding of the best and most relevant dystonia medical research in Canada and worldwide.

06/12/2026

💙 Does your workplace use Benevity for employee giving?

If so, you can support Freedom to Move: Run, Walk and Wheel for Dystonia 2026 through your workplace giving program. It's a simple way to contribute, and many employers will even match your donation, doubling your impact at no additional cost.

Even better, share this information with your friends, family, and coworkers so they can support your fundraising efforts through Benevity too. Every donation helps you reach your fundraising goal faster while supporting critical dystonia research, education, advocacy, and support programs across Canada.

How to donate through Benevity:
1️⃣ Search for Dystonia Medical Research Foundation Canada (DMRF Canada)
2️⃣ Select Freedom to Move: Run, Walk and Wheel for Dystonia 2026
3️⃣ Click Donate Now and choose your donation amount
4️⃣ Supporting a participant? Enter their first and last name in the comments box
5️⃣ Review and submit your donation

📍 In-Person Events:

June 14, 2026 • Downsview Park, Toronto

June 14, 2026 • K&P Trail - Verona Trailhead, Kingston ON

June 27, 2026 • Prince’s Island Park, Calgary, AB

🌎 Virtual Event: June 1–30, 2026

• Anywhere in Canada

Together, we can move closer to better treatments, greater awareness, and ultimately a cure.

🔗 www.freedomtomove.org

06/11/2026

💙 The countdown is on! Freedom to Move Toronto 2026 is almost here.

Join us on Sunday, June 14, 2026, at Downsview Park as we walk, run, and wheel together in support of people living with dystonia.

Every step helps fund vital dystonia research, education, advocacy, and support programs across Canada, moving us closer to better treatments and, ultimately, a cure.

🎉 Bring your family and friends for a fun-filled day featuring:
✨ Live entertainment
🎭 Teaching Awareness through Puppetry
🎨 Face painting
🎈 Kids’ activities
👑 Princesses and superheroes, courtesy of Whimsy Works
🎵 Music and more!

There’s still time to register and make an impact.

👉 Register: www.freedomtomove.org
📍 Event details: www.dystoniacanada.org/eventdetails

Together, we can raise awareness, build community, and create meaningful change for everyone affected by dystonia.

We can’t wait to see you on June 14!

06/09/2026

👀 You may have seen us out and about in Toronto...

We're hitting the streets to spread the word about 💙

Freedom to Move: Run, Walk & Wheel for Dystonia brings people together to support Canadians living with while raising critical funds for research, advocacy, education, and support programs.

📍 Join us in person on June 14 at Downsview Park in Toronto
🌎 Or participate virtually from anywhere in Canada throughout June

Last year, our community made an incredible impact. This year, we're aiming even higher, and we need your help to get there.

✨ Ready to make a difference?
👉 Register today: www.freedomtomove.org
📲 Share this post to help us reach more people
👟 Walk, run, or wheel with purpose

With thanks to our sponsor, Ontario Brain Institute.

06/08/2026

We’re thrilled to partner once again with for Freedom to Move Toronto! 💙

As a special thank you, everyone who registers for Freedom to Move Toronto will receive an exclusive 15% discount on a Cooking Class for Singles in Toronto. 🍽️✨

Whether you're looking to learn new culinary skills, meet new people, or simply enjoy a fun night out, this is the perfect opportunity.

Haven’t registered yet?
👉 Sign up for Freedom to Move Toronto through the link www.freedomtomove.org and unlock your discount!

Every registration helps raise awareness and support for Canadians living with dystonia. Together, we can make a difference, one step (and one delicious meal) at a time. 💙

06/03/2026

Thank You to DMRF US for hosting this webinar about the Dystonia Coalition.

Join Dr. Hyder "Buz" Jinnah and Dr. Joel Perlmutter for an insightful discussion about the Dystonia Coalition and how collaborative research is advancing understanding and treatment of dystonia.

📅 Monday June 8, 2026
🕖 7:00 PM ET

Register today: https://us02web.zoom.us/webinar/register/WN_jiy1d1dlT2yO0kGlrUe4Iw #/registration

06/01/2026

Virtual Freedom to Move: Run, Walk and Wheel 2026 kicks off today! 💙💚

From June 1–30, walk, run, or wheel from anywhere in Canada in support of Canadians living with dystonia.

Every step and every dollar raised helps fund vital support programs, advocacy, education, and research for individuals and families affected by .

Join the movement, share your journey, and help raise critical awareness and funds across Canada.

📅 June 1–30
🌎 Participate from anywhere
🔗 Register today: freedomtomove.org

Special Thanks to Our Sponsor – Ontario Brain Institute

05/28/2026

DMRF Canada urgently needs volunteers for our Delta Bingo and Gaming bingo sessions. Right now, we only have a small number of volunteers signed up and without enough participation, we could lose this important source of funding.

Just 2 hours of your time once a month can make a real difference for Canadians living with dystonia. Funds raised through this program are currently providing much-needed support, resources, and guidance for patients and families. Travel stipends and honorariums are available for returning volunteers.

If you can help, please sign up today:
https://dystoniacanada.org/DeltaBingoEtobicoke

Thank you to Delta Bingo & Gaming Etobicoke and Charitable Gaming. Community Good. for supporting the dystonia community.

05/27/2026

Freedom to Move 2026 Press Release Out Now! 📢

Despite affecting an estimated 50,000 Canadians, public awareness for dystonia remains critically low — leaving nearly 60% of patients waiting over a year for a proper diagnosis.

This June, join us in raising much needed funds and awareness through our national event, Freedom to Move: Run, Walk and Wheel for Dystonia.

Read our official press release to learn more about our incredible 2026 Ambassador Laurence Guénette-Rochon, and how you can join us virtually or in person at Downsview Park on June 14.

👉 Read the full press release here: https://dystoniacanada.org/news/freedom-move-run-walk-and-wheel-for-dystonia-2026

Special thanks to our sponsor, the Ontario Brain Institute, for their support. 💙

05/26/2026

Meet our 2026 Ambassador, Laurence Guénette-Rochon 💙

After being diagnosed with cervical dystonia, Laurence found strength through community, connection, and hope. Now, she’s helping raise awareness and support for the 50,000 Canadians living with dystonia.

Join Laurence this June for and help fund research and support programs for the dystonia community.

To read more about her journey: www.freedomtomove.org/ambassador

PS: If you’d like to participate in this year’s event, please visit www.freedomtomove.org and register today!

05/12/2026

Time is running out!

Register for by May 14 to save 50% on your registration fee. Join us in person on June 14 at Downsview Park in Toronto for a fun, family-friendly event, at half the cost. Prefer to participate virtually? Take part from anywhere, anytime between June 1 and June 30, and complete your race your way.

All funds raised support important dystonia research and programs across Canada.

Register now: www.freedomtomove.org

With thanks to our event sponsor, Ontario Brain Institute.

Address

PO BOX 1009 STN TORONTO DOM
Toronto, ON
M5K1P2

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Website

http://www.dystoniacanada.org/

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