Immunodeficiency Canada

Immunodeficiency Canada Provides patient support, education and research for a cure into Primary Immunodeficiency Individuals die due to misdiagnoses and delayed treatment.

Early diagnosis and treatment are essential to prevent life threatening complications. The good news is that early diagnosis and treatment can help provide a cure and allow a normal life. Ethan, born in April 2005 with no T-cells, was successfully treated with a bone marrow transplant. Many other PI patients are treated with antibiotics, antifungals and antivirals to fight infections, or with repl

acement blood products (IVIG) containing antibodies to boost the immune system. Individuals with PI are not as unusual as you might think. In Canada, it is estimated that 29,000 individuals, children, teens and adults suffer from Primary Immunodeficiency. Each year over 1,000 children are referred to one of the five children’s hospitals in Canada to be tested for PI. We know from statistics that 70% of cases still go undiagnosed.

Awareness matters - most people with primary immunodeficiency remain undiagnosed or are diagnosed late. But, with improv...
04/29/2026

Awareness matters - most people with primary immunodeficiency remain undiagnosed or are diagnosed late. But, with improved awareness and early treatment, many live full, long lives.

04/28/2026

In this final installment, we are reminded that early diagnosis and timely care can shape better outcomes, encouraging us to keep moving forward together as a community.

Early, targeted treatment can positively shape the course of Primary Immunodeficiency over time.
04/28/2026

Early, targeted treatment can positively shape the course of Primary Immunodeficiency over time.

People with primary immunodeficiency need lifelong follow‑up, and a well‑supported transition from pediatric to adult ca...
04/27/2026

People with primary immunodeficiency need lifelong follow‑up, and a well‑supported transition from pediatric to adult care is essential for continuity.

There are more than 550 forms of primary immunodeficiency. Early recognition and timely referral to an immunology specia...
04/25/2026

There are more than 550 forms of primary immunodeficiency. Early recognition and timely referral to an immunology specialist is essential for optimal care. Download the healthcare provider "Red Flags for Primary Immunodeficiency" checklist here:
https://immunodeficiency.ca/primary-immunodeficiency/red-flags/

04/24/2026

There is an urgent need for earlier diagnosis and better support for people living with primary immunodeficiencies. Together, we can amplify the voices of our global community.

You can watch the full version at: https://youtu.be/usWZzNt1LXc?si=9sGmm8oPcmXLE6er

Newborn Screening for the most profound form of primary immunodeficiency, severe combined Immunodeficiency (SCID), is li...
04/24/2026

Newborn Screening for the most profound form of primary immunodeficiency, severe combined Immunodeficiency (SCID), is life saving.

The World PI Week 2026 Before and After stories reminds us what we can truly accomplish as a united community. See how t...
04/23/2026

The World PI Week 2026 Before and After stories reminds us what we can truly accomplish as a united community. See how the European Society for Immunodeficiencies (ESID) created a unified digital registry with data from over 30,000 patients—supporting faster diagnoses and more precise treatments.

As we kick into full-swing with World PI Week, we’re bringing you one of our inspiring Before & After Stories – a testament to the power of awareness, action, and collective support across the Primary Immunodeficiency community.

🌟In this story, you’ll find out how the European Society for Immunodeficiencies (ESID) built a unified, digital registry with data from over 30,000 patients, and how it’s helping clinicians to achieve faster diagnoses and deliver precision treatments.

Each story in this series shows what happens when barriers are removed, voices are heard, and people receive the diagnosis, treatment, or recognition they’ve long deserved. This transformation is at the heart of our 2026 theme, We Can’t Wait.

Head to our website to read all three stories 💙
worldpiweek.org/2026-before-after-stories

A diagnosis of Primary Immunodeficiency within 10 years of symptom onset leads to significantly better health outcomes. ...
04/23/2026

A diagnosis of Primary Immunodeficiency within 10 years of symptom onset leads to significantly better health outcomes.

04/22/2026

This mini film tells a big story, highlighting the experiences of people living with primary immunodeficiencies. Catch Part 1 here!

Address

439 University Avenue Suite 848
Toronto, ON
M5G1Y8

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

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+14169643434

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