Lewy Body International

08/14/2026

Join us for an inspiring afternoon of connection, education, and shared experiences at the Lewy Body Dementia Symposium. 💙

📅 September 19, 2026 | Windsor, Ontario
🎟️ Free admission and parking
👉 Register: https://Helm-LBD.eventbrite.ca

08/14/2026

If you have been left with more questions than answers after a diagnosis of Lewy body dementia, now is the time to order one of our FREE information packs.

They are available from our online shop www.lewybody.org/shop

08/14/2026

We have lots of people asking us how they can get involved with dementia research.

Here is an opportunity with EquaDem Network Plus in Manchester!

Please get involved if you can and are health and social care practitioners, people living with dementia and unpaid carers.

Book your place for the October 8 event: www.eventbrite.co.uk/e/what-is-research-and-how-to-get-involved-a-dementia-event-by-equadem-tickets-1994935997270

08/14/2026

"Imagine if we treated somebody diagnosed with cancer in that way." - Baroness Casey, Chair of the Independent Commission on Adult Social Care.

We think about that frequently.

As people who have cared for someone with Lewy body dementia, many of us sadly have a unique insight into the many ways in which adult social care is failing our loved ones.

The Prime Minister has asked Baroness Casey to consider how adult social care should change to meet the needs of current and future generations, and to make recommendations for reform.

In response, she has opened The Big Conversation on Care, an opportunity to share our lived expertise on what is needed.

Please get involved, without our evidence they cannot possibly understand what it is really like: https://caseycommission.co.uk/bigconversation/

08/14/2026

08/14/2026

Alison Killen, who worked with people with lived experience to improve the design and delivery of dementia research at the Biomedical Research Centre, at Newcastle University, has written a book: Lewy Body Dementia, A Practical Guide.

It is available from many outlets. There is a 20% discount code should you wish to purchase through Jessica Kingsley Publishing: %LEWY20

08/14/2026

The Lewy Body Dementia Association’s 2026 Community Conference Series brings together experts, trusted partners and the (LBD) community for a day of education, empowerment and support.

Through engaging presentations, interactive sessions, and heartfelt discussions, you will gain valuable insights into navigating the complex symptoms of LBD while fostering a sense of hope and connection.

For more information, please visit: https://ow.ly/EkRF50ZzC0Z

08/14/2026

08/14/2026

Sleep disturbances are extremely common in (LBD), affecting up to 90% of individuals over the course of the disease. These sleep-related changes can significantly impact cognition, mood, safety, and quality of life—not only for the person living with LBD, but also for care partners and family members.

Unpacking Sleep, a new course now available on the Lewy Learning Center, explores how sleep disturbances present, how they are identified or diagnosed, and provides strategies to improve sleep and overall quality of life.

Start learning: https://ow.ly/JcNY50ZxSVP