Lewy Body International

05/31/2026

05/31/2026

Which medications are commonly used in (LBD), and which ones may cause serious sensitivities or side effects?

Join Dr. Matt Barrett of Virginia Commonwealth University on Wednesday, May 20 at 1:00pm ET for “Making Sense of Medications in Lewy Body Dementia.” You will learn about commonly used medications in LBD, potential side effects and which medications may need to be avoided.

Register today at https://ow.ly/2opJ50Z1kxc

05/31/2026

Learn more about (LBD) at the Community Education and Support Event hosted by the UC San Diego Shiley-Marcos Alzheimer’s Disease Research Center.

Designed for individuals experiencing symptoms or diagnosed with LBD and their families, care partners and healthcare professionals, this free event will feature presentations from leading neurologists and experts on symptoms, diagnosis and care strategies.

You will also have opportunities to learn more about research participation and connect with local resources and support networks.

Join in person or virtually: https://ow.ly/KyKX50Z3uNT

05/31/2026

Idag har vårt nyhetsbrev gått ut till alla våra medlemmar.
Läs om hur olika Lewy body påverkar hjärnan hos män och kvinnor.

https://lewybodysverige.se/

05/31/2026

Our last simple way to take action in Dementia Action Week 👇

Sign the Lewy List!

We are call on the government to recognise:
🔵 The right for all people living with dementia to be treated with dignity and respect
🔵 The right to early and accurate diagnosis
🔵 The right for Lewy body dementia to be recognised as a distinct form of dementia with unique symptoms and challenges different from Alzheimer’s
🔵 The right not to be rejected from, or denied, care home admittance on account of Lewy body dementia diagnosis

Sign here and if you already have, please do share this link with your friends and family: www.change.org/p/sign-the-lewy-list

05/31/2026

The needs of caring for a family member or friend with often unfold in layers. Roles evolve as needs change over time. Recognizing and discussing the shifts can help those who are there to support move from assumptions to shared understanding.

One of the most supportive things to do is have proactive conversations before a crisis forces decisions. These can begin with questions such as, “What feels manageable (or unmanageable) for you right now?” or “Where do you feel unsure and need more information?”

Roles within a network do not have to be equal to be meaningful. One person may handle medical appointments, another may manage finances, while someone else becomes the emotional anchor. For those wanting to support, rather than saying, “Let me know how I can help,” it is often more supportive to offer options: preparing meals once a week, providing transportation, organizing medications, or providing company and respite through visits.

Stepping in does not mean taking over all responsibilities. It means noticing the weight someone is carrying and offering to hold a piece of it.

To brainstorm about what this may look like in your situation, please reach out to the LBDA Support Team by email at [email protected] or by leaving a message on the Lewy Line at 800-539-9767.

05/31/2026

05/31/2026

Exercise plays a crucial role in supporting individuals living with (LBD), by promoting muscle strength and improving balance. Exercise is also linked to improved mood and emotional well-being by boosting serotonin levels, helping to lessen common LBD symptoms such as anxiety, depression and apathy.

This , explore LBDA’s Exercise & Empowerment course on the Lewy Learning Center. Led by Joellyn Fox, DPT, this series of guided video sessions with downloadable resources for at-home exercise practice is available on-demand.

Start learning: https://ow.ly/aIGY50Z4YpQ

05/31/2026

For 20 years we have made it our mission to shine an spotlight on Lewy body dementia.

Some people still think that dementia and Alzheimer's are synonymous despite there being more than 100 types of the disease with varying symptoms.

We work to make sure more people recognise Lewy body dementia whether it is at home or in a clinical setting.