Canadian Congenital Heart Alliance (CCHA)

06/12/2026

The 3rd online choir music video has been released by the Virtual Heart Connection. You are invited to participate in a research survey to evaluate the viewer impact ➡️ https://forms.gle/TwgUwoYWRt2J9Xsg8

06/11/2026

Transition should never feel like an Olympic event. 🏃‍♀️🏃‍♂️❤️
Moving from pediatric to adult congenital heart care is a big step for teens with CHD and for the parents and caregivers who have been by their side every step of the way.

It can bring questions about independence, self-advocacy, new healthcare teams, and what happens next. The good news? You don't have to navigate it alone.

Join us June 17th for our next CCHA Connect session featuring Jody Gingrich, RN and Transition Coordinator, for an open conversation about what families can expect during this important transition and how to prepare with confidence.

We'll also share practical transition resources available through the CCHA website to help make the handoff to adult congenital heart care feel less like a relay race and more like a supported next step. Also check out tools and resources available on our website at - Learn about CHD/CHD Resources/Transition to ACHD.

Bring your questions and join us for this free virtual event. We're here to help you pass the baton with confidence.

When: June 17, 7:30p MDT
Where: Virtually
Register: https://forms.gle/EzjSGvw3HY4tfzcM6

06/10/2026

The journey to adult CHD care starts before the first adult clinic appointment. ❤️

Join us for a free virtual parent chat focused on helping teens with congenital heart disease (CHD) transition from pediatric to adult care. Learn what to expect, ask questions, connect with other families, and gain practical tools to support your teen's growing independence and lifelong heart health.

📅 June 17
🕖 7:00 PM MDT (9:00 PM EST)
💻 Virtual & free to attend

Whether your teen is approaching transition or you're simply planning ahead, this conversation is for you.

05/10/2026

This Mother’s Day, we celebrate all mothers in the congenital heart disease community. ❤️

Mothers raising children with CHD.
Mothers living with CHD themselves.
Mothers balancing appointments, resilience, and hope.

Happy Mother’s Day from the Canadian Congenital Heart Alliance.

❤️❤️❤️❤️❤️

En cette fête des Mères, nous célébrons toutes les mères de la communauté des cardiopathies congénitales. ❤️

Les mères qui élèvent des enfants atteints d’une cardiopathie congénitale.
Les mères qui vivent elles-mêmes avec une cardiopathie congénitale.

Bonne Fête des Mères de la part de l'Alliance Candadienne des Cardiopathies Congénitales.

05/03/2026

Today, on Bereaved Mother’s Day, we stand in solidarity with all mothers who are living with the loss of a child. We honour the depth of your love, the strength you show each day, and the lasting bond you carry in your heart.
Congenital Heart Disease (CHD) remains the most common and deadliest birth defect, and continues to be the leading cause of childhood death from illness. We recognize the profound and unique grief of mothers who have lost a child to CHD. Your voices and your stories continue to guide and motivate our work to raise awareness, support families, and advocate for research and better outcomes.
As a community, we invite you to share the names and photos of your children on our website to join our memorial. We invite you to view our Memorial video on Youtube.
Together, we remember, we honour, and we ensure they are never forgotten.
❤️❤️❤️❤️❤️
Aujourd’hui, à l’occasion de la Fête des mères en deuil, nous sommes solidaires avec toutes les mères qui vivent avec la perte d’un enfant. Nous rendons hommage à la profondeur de votre amour, la force dont vous faites preuve chaque jour et le lien éternel que vous portez dans votre cœur.
Les cardiopathies congénitales (CC) demeurent la malformation congénitale la plus fréquente et la plus mortelle, et continuent d’être la principale cause de décès médicale chez les enfants. Nous reconnaissons le deuil profond et unique des mères ayant perdu un enfant à cause d’une CC. Vos voix et vos histoires continuent de guider et d’inspirer notre travail pour sensibiliser, soutenir les familles et faire avancer la recherche vers de meilleurs résultats.
En tant que communauté, nous vous invitons à partager les noms et les photos de vos enfants sur notre site web afin de vous joindre à notre hommage. Nous vous invitons également à visionner notre vidéo commémorative sur YouTube.
Ensemble, nous réfléchissons, nous rendons hommage et nous veillons à ce qu’ils ne soient jamais oubliés.

04/07/2026

Last call CHD parents. 💙

This Saturday is our first CCHA Connect Session, and we really don't want you to miss this.

Here's what makes it different:

🎓 Education: A focused, practical topic to help you navigate your child's CHD journey.

💬 Connection: You'll get to connect with other parents navigating CHD and we will have adults with CHD as special guests to share their wisdom of what it's like navigating life with CHD.

This isn't just a support group. It's a learning space + a community + a rare chance to ask adults who've walked the walk.

📅 Saturday April 11th, 2026
⏰ 11:30AM EST, 8:30AM PT, 9:30 GMT, 12:30 AST
💻 Virtual – join from your couch

Register here: https://cchaforlife.org/news/ccha-connect/

Tag a CHD parent who needs to hear from an adult survivor this week. 💙

03/24/2026

We’re so excited to officially introduce CCHA Connect 💛

A virtual space for parents of children with congenital heart disease to come together through open conversations, shared stories, and educational discussions.

🗓 April 11
⏰ 11:30 AM EST
💻 Online / Virtual

Together, we’ll explore:
• Supporting teens as they transition to adulthood
• Strategies for managing caregiver burnout
• Open conversations with adults with lived CHD experience
• Connecting with parents in similar situations

This is a space to feel supported, heard, and understood — because no one should navigate this journey alone.

03/23/2026

If you know, you know 💛

When small talk feels impossible
When your mind is always “on”
When you just want someone who truly understands

You’re not alone.

CCHA Connect is a space for parents navigating congenital heart disease to connect, share, and feel understood.

03/20/2026

Something meaningful is coming 💛

A space for connection.
For honest conversations.
For parents who just get it.

Introducing CCHA Connect — a new virtual community for parents navigating congenital heart disease.

More details coming soon.

03/01/2026

This is for the ones who should still be here.

Read their names. Say them out loud. They mattered. They still matter.

As Heart Month comes to a close, we pause for the lives taken too soon by Congenital Heart Disease. Behind every photo is a laugh that filled a room, a future imagined, a love that has never faded.

Our annual memorial video holds their stories — not as statistics, but as sons, daughters, spouses, siblings, parents, friends. Loved. Missed. Forever woven into this community.

This is more than remembrance — it’s a promise.
A promise to speak their names.
To honor their stories.
To keep fighting in their memory.

CHD may have taken them from our arms, but it will never take them from our hearts. 💙

If you are carrying a name in your heart today, share it below. Tell us who they are. Repost this tribute so their light reaches further than CHD ever could.

***
Ceci est pour ceux et celles qui devraient encore être parmi nous.

Lisez leurs noms. Dites-les à voix haute. Ils ont compté. Ils comptent encore.

Alors que le Mois du cœur tire à sa fin, nous faisons une pause pour honorer les vies perdues trop tôt à cause de la cardiopathie congénitale. Derrière chaque photo se cache un rire qui remplissait une pièce, un avenir imaginé, un amour qui ne s’est jamais éteint.

Notre vidéo commémorative annuelle porte leurs histoires — non pas comme des statistiques, mais comme des fils, des filles, des conjoints, des frères, des sœurs, des parents, des amis. Aimés. Regrettés. À jamais tissés dans le cœur de cette communauté.

Ce n’est pas seulement un hommage — c’est une promesse.
La promesse de dire leurs noms.
D’honorer leurs histoires.
De continuer à nous battre en leur mémoire.

La cardiopathie congénitale les a peut-être arrachés à nos bras, mais elle ne les arrachera jamais à nos cœurs. 💙

Si vous portez un nom dans votre cœur aujourd’hui, écrivez-le en commentaire. Parlez-nous de cette personne. Partagez cette vidéo pour que leur lumière rayonne plus loin que la maladie ne l’a jamais pu.

This is for the ones who should still be here.Read their names. Say them out loud. They mattered. They still matter.As Heart Month comes to a close, we pause...