ALS Canada

10/07/2026

Living with ALS can bring many changes, including financial questions that may be difficult to navigate.

To help people affected by ALS learn more about the options and supports available to them, we’re proud to share a new Financial Planning and ALS resource, developed in collaboration with Paul Bishop, from the Canadian Foundation for Financial Planning (CFFP) and ALS Canada Community Ambassador Mark Freedman.

🔗 To learn more and access the tool, visit https://bit.ly/4ybdWKH.

10/07/2026

From potential biomarker discoveries to artificial intelligence and therapeutic pathways, ALS research continues to uncover important clues about the disease.

In our latest Fundamental Research Update, explore some of the most notable laboratory findings from ALS scientists published recently.

🔬 Read the complete update now: https://bit.ly/4dKW5TF.

10/06/2026

The Toronto Waterfront Marathon is Oct 17–18, 2026! Cheer on and help make every km count for the ALS community. Support the team here: https://bit.ly/3W6Xw8C.

10/05/2026

Military veterans face an increased risk of developing ALS, underscoring how much more we need to understand about the disease and the need to accelerate progress toward effective treatments.

In a recent CTV National News story, Robert Gibson, ALS Community Ambassador, shares his personal perspective to raise awareness and understanding of the critical need for increased research funding. ALS Canada, alongside the ALS community across Canada, continues to advocate for greater federal investment in ALS research, including $50 million for the Canadian Collaboration to Cure ALS.

Read the full news article and watch the CTA National News story today: https://bit.ly/4jDbiJV.

10/05/2026

Last week, ALS Canada and an ALS community member met with representatives from the pan-Canadian Pharmaceutical Alliance (pCPA) to encourage the timely completion of ongoing pricing negotiations for Qalsody. The meeting was an opportunity to share the realities of families affected by SOD1-ALS, and why equitable access to approved ALS treatments matters.

ALS Canada will continue to engage with the pCPA, the manufacturer, and other stakeholders to help ensure community perspectives continue to inform the negotiation process.

As negotiations continue, help maintain momentum toward timely and equitable access to Qalsody: https://bit.ly/3V9qEvq.

10/04/2026

Rise and shine! ☀️ This morning we’re gearing up to hit the beautiful roads of Jordan, Ontario, for the 2026 ALS Canada https://www.instagram.com/explore/tags/revolutionride/! 🚴

Participants are ready to take on the 90 km, 40 km, and 25 km routes in support of https://www.instagram.com/explore/tags/aworldfreeofals/ and go the extra mile to spark change for Canadians and their families impacted by https://www.instagram.com/explore/tags/als/.

There’s still time to show your support! 🔗To donate, visit https://bit.ly/4y0BC4p.

10/03/2026

Before we hit the roads and ride for change tomorrow morning, we would like to thank the 2026 ALS Canada event sponsors: Scotia Wealth Management and Shionogi Canada.

Your support helps us fuel – highlighting the power of a community united for change! At the Revolution Ride, recreational, intermediate, and avid cyclists challenge themselves to do more in support of the people we have loved and lost or who are facing ALS today.

10/01/2026

🚴🚴‍♀️ Thank you to the 2026 ALS Canada presenting sponsor, Scotia Wealth Management, for your generous support as we gear up for change! This weekend, we’re coming together to move toward , demonstrating the ALS community’s commitment to go the extra mile to change what it means to live with ALS.

10/01/2026

Many young people affected by ALS spend a lot of time supporting others. We recognize they also need the chance to simply be kids.

In partnership with AWC Grief Support, we're proud to support the inaugural ALS Youth Retreat—a free weekend bringing together youth from across Ontario for friendship, fun, recreation, and connection in a supportive camp environment.

Registration is still open for youth who have experienced the death of a parent to ALS as well as youth who have a parent living with ALS. Learn more: https://bit.ly/4AKzgJr.

*NEW! Now open to youth who have experienced the death of a parent to ALS as well as youth who have a parent living with ALS. *

Some things can be hard to say out loud.

My friends don’t understand.
I just want to be a kid.
I don’t feel like talking.
Everything has changed.
I don’t know what happens next.

You’re not alone. Find your people at the ALS Youth Retreat.

October 23–25, 2026 | Ages 8–17 | Ontario | Free

https://awcgrief.com/als-youth-retreat.html. Space is limited.

10/01/2026

Today, just 174 days after regulatory approval, Qalsody is officially listed on Australia’s Pharmaceutical Benefits Scheme, helping ensure eligible Australians living with SOD1-ALS have equitable and affordable access to this innovative treatment through the public system.

We celebrate this milestone and what it means for families affected by SOD1-ALS in Australia. At the same time, 577 days after Health Canada approval, Canadians affected by SOD1-ALS continue to wait for clarity on long-term access through provincial drug programs.

Australia’s progress demonstrates what can be achieved when timely and equitable access to innovative ALS treatments is prioritized. We hope this decision helps pave the way for public reimbursement here in Canada.

🔗 To learn how Qalsody has impacted the lives of Canadians with SOD1-ALS and join the call for timely and equitable reimbursement across Canada, visit https://bit.ly/3V9qEvq.