Cystic Fibrosis Canada - Edmonton & Northern Alberta Chapter

Cystic Fibrosis Canada - Edmonton & Northern Alberta Chapter Welcome to Cystic Fibrosis Canada-Edmonton & Northern Alberta Chapter page

We provide an online community where people impacted by cystic fibrosis in Edmonton, Northern Alberta and the Northwest Territories can share information, tell their story, and interact with one another.

Pearl lives with cystic fibrosis (CF) and has undergone two double lung transplants.Today, she is grateful every day for...
10/10/2026

Pearl lives with cystic fibrosis (CF) and has undergone two double lung transplants.

Today, she is grateful every day for her organ donors and the second chance they gave her.

Pearl shares what it's like to live with CF and cystic fibrosis-related diabetes (CFRD), while pursuing her dream career as an athletic therapist and enjoying life with her beloved pets.

Read Pearl's story: https://bit.ly/3TzZzBs

Looking to connect with others who truly understand the realities of cystic fibrosis? Our Peer Connect sessions offer a ...
10/05/2026

Looking to connect with others who truly understand the realities of cystic fibrosis? Our Peer Connect sessions offer a welcoming virtual space to share experiences, learn from one another, and build meaningful connections within the CF community.

Here are the sessions taking place in October:
🔹 October 6: CF Adults Open Connection
🔹 October 8: Connecting Young Adults Living with CF
🔹 October 13: Connecting CF Parents and Guardians
🔹 October 29: CF Dads and Father Figures

Whether you're living with CF, parenting a child with CF, or supporting a loved one, these conversations are an opportunity to connect with others who understand your journey.

Register today: https://cysticfibrosis.ca/events-hub

Teresa lives with an ultra-rare form of cystic fibrosis (CF).From hours of treatments to hoping for a breakthrough treat...
10/03/2026

Teresa lives with an ultra-rare form of cystic fibrosis (CF).

From hours of treatments to hoping for a breakthrough treatment, Teresa’s journey reflects both the challenges many people with CF continue to face and the importance of continued progress.

Teresa shares her experience of living with CF, the sacrifices she’s made, and why continued research matters.

Read Teresa’s story now. https://bit.ly/4z7ImOO

There's just two days left to get your tickets to win an amazing Pedego Cross Country Mountain Bike - value $5,995!Purch...
10/01/2026

There's just two days left to get your tickets to win an amazing Pedego Cross Country Mountain Bike - value $5,995!

Purchasing a ticket will allow us to raise funds for cystic fibrosis research.

A big thank you again to our Face Off with CF Gala for organizing this raffle and supporting our amazing CF community!

Tickets here: https://go.raffle-rocket.com/face-off-with-cf-vc

*Players must be 18 years or older and live within Alberta to participate. AGLC #789810

10/01/2026

These custom-designed Face Off with CF Gala jerseys (only Large and Extra Large sizes left!), signed by Ryan-Nugent Hopkins, were made exclusively for this year's gala, and once they're gone, they're gone for good.

Whether you were there or wish you were, this is your chance to own a piece of the night and support the fight against Cystic Fibrosis while you're at it. 💙

Don't wait. Only 68 remain, and they're moving fast.

🔗 Link in bio to grab yours before they sell out.

📸

VOLUNTEERS NEEDED!We are looking for some more volunteers for the upcoming Edmonton Casino November 7-8th at Century Cas...
09/29/2026

VOLUNTEERS NEEDED!

We are looking for some more volunteers for the upcoming Edmonton Casino November 7-8th at Century Casino in Edmonton.

Help make this event a success and raise critical funds to support CF research here in Alberta!

Sign up via SignUP: https://signup.com/go/qvQLEAd

Questions? Contact [email protected]

09/29/2026

Teresa spends three hours every single day to manage her cystic fibrosis. Modulator therapies are not currently funded for her rare CF mutation. Your support helps bring us closer to a future where everyone living with CF has access to effective treatments—regardless of their mutation—by funding research, improving care, and strengthening advocacy efforts for everyone living with CF.

Create an impact. Donate today: https://bit.ly/4xt4JwU

09/28/2026

Fall is in full swing, and our Change Makers are keeping the momentum going! 🍂

This October, dedicated people from coast to coast are bringing their communities together to raise funds and awareness for cystic fibrosis. Whether you’re attending an event or starting your own fundraiser, every effort helps move us closer to a future without limits.

- CF Fly Day, 10/3/26 - October 3 (ON)
- Tournoi de hockey (Les anciens de LaSalle/LaSalle Old-timers) - October 4 (QC)
- Tounoi de b***e avec Bell Média - October 11 (QC)
- Running for Hope - October 11 (ON)
- Laughs for Lungs - October 22 (ON)
- Capes & Crowns- Chatham - October 25 (ON)
- Tirelires d'Halloween - October 31 (QC)

Find upcoming events on our website: https://cysticfibrosis.ca/events-hub

For Carolane, hope has guided every step of her daughter Lyvia’s cystic fibrosis (CF) journey.Diagnosed through newborn ...
09/24/2026

For Carolane, hope has guided every step of her daughter Lyvia’s cystic fibrosis (CF) journey.

Diagnosed through newborn screening shortly after birth, Lyvia began treatment for CF at just over two weeks old. Carolane shares her story to show how progress has transformed the lives of people living with CF and why she continues to hope for a future where children like Lyvia can live without limits.

Read Carolane’s story now. https://bit.ly/4hxUHWu

Alberta, we did it: Alyftrek is being publicly funded!This is a huge win for Albertans with cystic fibrosis who could be...
09/22/2026

Alberta, we did it: Alyftrek is being publicly funded!

This is a huge win for Albertans with cystic fibrosis who could benefit from this treatment.

Thank you to everyone who sent a letter, shared their story, spoke up and called for access: your voice mattered.
Today, we celebrate this step forward and everyone who helped make it happen. 💙 We won’t stop until every Canadian who could benefit has access, no matter where they live.

Address

1305-20 Eglinton Avenue West
Toronto, ON
M4K1K8

Opening Hours

Monday 8:30am - 4:30pm
Tuesday 8:30am - 4:30pm
Wednesday 8:30am - 4:30pm
Thursday 8:30am - 4:30pm
Friday 8:30am - 4:30pm

Telephone

+17804662265

Website

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