02/19/2026
I owe you an explanation.
Sunday was a bad day after many bad days. It was more than I could bare or too tired to.
I do not like to fill this page or my personal page with the negative bits of pulmonary fibrosis. I guess, I hope that not giving it light somehow makes it not so real, and you don’t want to read about all the lows and complaints especially when you have so much to deal with.
The truth is, it’s a lot.
Pulmonary fibrosis has so many symptoms because the lungs support every body function. PF caused by an autoimmune disease compounds the symptoms. Without too much detail, I am coping with damaged vocal cords from coughing, shortness of breath, nausea, extreme fatigue. Connective tissue conditions are not uncommon in autoimmune PF, of course, I’m affected. This means I have a great deal of pain and swelling within all my joints. Joints that I didn’t know were joints, like in my jaw. My mobility and strength are affected. No more arm wrestling for me. LOL. The joke is that I am an excellent arm wrestler, I mean… was.
I could go on, and on.
The good news, the news I sometimes forget, is that Ofer is keeping my numbers stable, for the most part. I have a massive army of warriors that surround me and help me fight my battle. You give me the reason to fight, and it is a fight. When the time comes that the progression really takes over, I have a team that will do everything to keep me alive. That includes my doctor and his team, the pre transplant team, the transplant doctors and nurses, the soul sisters, the amigas, the prayer groups, and you who care so much.
Thank you to everyone that reached out in concern after my outburst. It really makes a difference.
Below is a photo of me in Grade six or seven.
