SPG4 Cure Fundraiser

SPG4 Cure Fundraiser Ottawa family fundraising to support research to treat and cure to Hereditary Spastic Paraplegia Type 4 (SPG4).

For more information on our story or to make a donation, please see our Canadian Charity: https://blugenes.org/spg4-cure/ Thank you!

✂️🎈Community fun day - August 29th! ✂️🎈We are so grateful to Mane West Salon | Clean Beauty Boutique, Humen Kind, and es...
08/22/2026

✂️🎈Community fun day - August 29th! ✂️🎈

We are so grateful to Mane West Salon | Clean Beauty Boutique, Humen Kind, and especially Courtney for including our family’s SPG4 fundraiser in their Farm to Chair Community Fun Day in Stittsville! 💙

This is especially meaningful to us because Courtney gave Jack his very first haircut and is still his hairdresser today! She has watched him grow up in her chair, and having her support Jack and our fight for a cure is incredibly special to our family.

🌿 Bring the whole family for a fun community day!

💇‍♀️ $10 back-to-school kids’ haircuts
📸 Back-to-school photos
🎨 Face painting
🏰 Bouncy castles
🌱 Local vendor market
👕 Clothing drive for children at nearby schools
🎶 And lots more family fun!

📅 August 29
📍 1563 Stittsville Main Street

Proceeds from the haircuts will support our SPG4 fundraiser and our fight to find a cure or treatment for Jack and other families affected by SPG4.

Thank you, Courtney and everyone at Mane West Salon! We appreciate being a part of this amazing event for the community! 💙

For more on our family’s story, please see our Canadian Charity:
https://blugenes.org/spg4-cure/

Councillor Glen Gower / Stittsville Councillor Allan Hubley Katelyn Wilson

⚾️💙 Thank you to the 13U Rep Kanata Cubs for welcoming our family to your tournament and giving Jack the special honour ...
08/17/2026

⚾️💙 Thank you to the 13U Rep Kanata Cubs for welcoming our family to your tournament and giving Jack the special honour of throwing out the first pitch. A big thank you as well to Jack’s very first teacher, his kindergarten teacher, for opening the tournament with such a heartfelt speech about Jack. It was a special moment and a memory we won’t forget!

The Cubs raised an incredible $2,540 through their bottle drive, all to help bring us closer to a cure for Jack and SPG4.

We also want to say a heartfelt thank you to Kendall, who made and sold bracelets and raised another amazing $547 for Jack. Knowing she put so much of her time and heart into helping our son means more to us than we can say. 💙

Thank you to the 13U Kanata Cubs and Kendall for standing beside our family and showing Jack just how many incredible people are behind him in this fight. We are so grateful! ⚾️💙

For more on our story:
https://blugenes.org/spg4-cure/

Anna Marie Richard Laidlaw Kanata Baseball Association Kanata Baseball Association Allan Hubley - Councillor for Kanata South

✂️🎈Community fun day - August 29th! ✂️🎈We are so grateful to Mane West Salon | Clean Beauty Boutique, Humen Kind, and es...
08/15/2026

✂️🎈Community fun day - August 29th! ✂️🎈

We are so grateful to Mane West Salon | Clean Beauty Boutique, Humen Kind, and especially Courtney for including our family’s SPG4 fundraiser in their Farm to Chair Community Fun Day in Stittsville! 💙

This is especially meaningful to us because Courtney gave Jack his very first haircut and is still his hairdresser today! She has watched him grow up in her chair, and having her support Jack and our fight for a cure is incredibly special to our family.

🌿 Bring the whole family for a fun community day!

💇‍♀️ $10 back-to-school kids’ haircuts
📸 Back-to-school photos
🎨 Face painting
🏰 Bouncy castles
🌱 Local vendor market
👕 Clothing drive for children at nearby schools
🎶 And lots more family fun!

📅 August 29
📍 1563 Stittsville Main Street

Proceeds from the haircuts will support our SPG4 fundraiser and our fight to find a cure or treatment for Jack and other families affected by SPG4.

Thank you, Courtney and everyone at Mane West Salon! We appreciate being a part of this amazing event for the community! 💙

For more on our family’s story, please see our Canadian Charity:
https://blugenes.org/spg4-cure/

Councillor Glen Gower / Stittsville Councillor Allan Hubley Katelyn Wilson

A lemonade stand all the way from Edmonton! 💙🍋A huge thank you to Nora, Sadie, and their friend Mikaya, who organized a ...
08/09/2026

A lemonade stand all the way from Edmonton! 💙🍋

A huge thank you to Nora, Sadie, and their friend Mikaya, who organized a lemonade and bracelet sale this summer to raise funds for Jack and the fight for a cure for SPG4!

We are so incredibly touched that these amazing girls chose to spend their time helping our son and supporting our family’s SPG4 cure fundraiser.

Nora, Sadie, and Mikaya, thank you for your incredible kindness and for showing us that even from across the country, there are amazing people standing beside Jack and fighting with us for a cure. We are so grateful! 💙

Anna Marie Richard Laidlaw

A huge thank you to Emery, Emma, and Alissa for choosing our family’s SPG4 cure fundraiser as the beneficiary of your le...
08/04/2026

A huge thank you to Emery, Emma, and Alissa for choosing our family’s SPG4 cure fundraiser as the beneficiary of your lemonade stand and Pay-It-Forward class project! This project provided students with a chance to contribute to their community and document this experience. Students could choose to help people, animals, or the environment by raising awareness, volunteering their time, finding a way to collect funds, or collecting items to donate. Emery, Emma, and Alissa chose to help Jack by raising funds for our Canadian Charity, Blu Genes Foundation. These funds will go directly to supporting a cure or treatment for SPG4. We are incredibly grateful to have such amazing young people in our community who want to help our son, Jack, and who continue to cheer him on through this journey.

Thank you!!
💛🍋
—-
For more on our story or to donate please see our registered Canadian Charity:
https://blugenes.org/spg4-cure/

Since Jack’s diagnosis, we’ve been fighting to help fund the research that could change his future and the future of eve...
07/30/2026

Since Jack’s diagnosis, we’ve been fighting to help fund the research that could change his future and the future of every family living with SPG4.

A heartfelt thank you to the Ottawa Citizen for sharing our story and helping raise awareness for this cause that means everything to our family.

To everyone who has stood beside us over the past 2.5 years of fundraising by donating, sharing, volunteering, or simply caring—thank you. Your support is helping us keep fighting for Jack!

This story can be found on the Ottawa Citizen website. For more on our story or to donate please see our registered Canadian Charity:
https://blugenes.org/spg4-cure/

The day we learned our son had a disease with no cure, our lives changed forever. We are deeply grateful to the Blu Gene...
07/30/2026

The day we learned our son had a disease with no cure, our lives changed forever. We are deeply grateful to the Blu Genes Foundation for standing beside our family through one of the most heartbreaking and overwhelming chapters of our lives. Thank you from the bottom of our hearts.

Thank you to Opal and Oud Photography for capturing our Jack’s Gala: Reaching for the Stars fundraising event! 🌟
07/24/2026

Thank you to Opal and Oud Photography for capturing our Jack’s Gala: Reaching for the Stars fundraising event! 🌟

🚨‼️Registration closes July 31! Register your team today!🏒🥅 The 2nd Annual Chelly Adult Hockey Tournament Fundraiser Sup...
07/23/2026

🚨‼️Registration closes July 31! Register your team today!

🏒🥅 The 2nd Annual Chelly Adult Hockey Tournament Fundraiser Supporting Jack Laidlaw & SPG4 Cure Research 🥅🏒

Join us at the Bell Sensplex in Ottawa on September 10–11, 2026 for two exciting days of hockey, community spirit, and fundraising in support of Jack Laidlaw and research to find a cure for SPG4.

LINK TO REGISTER:
https://sensplex.ca/tournaments/2nd-annual-the-chelly-hockey-tournament

Whether you’re a competitive team, recreational player, sponsor, or supporter, this tournament is an opportunity to make a meaningful impact while enjoying a fantastic hockey experience.

🏒 Tournament Highlights
✅ 3 guaranteed games per team
✅ Daytime tournament play on Thursday & Friday
✅ Divisions based on registration numbers
✅ Tournament swag and prizes
✅ Fundraising in support of a local family and an important cause

🎉 Special Event
Join us for the Friends of Jack Skate & Pizza Party for players and families at the end of Day 1!

💥 Early Registration Bonus
Register your team by July 31, 2026! The first 20 teams to register will receive a $500 discount.

Every team, sponsor, donation, and share helps bring hope to families affected by SPG4 while supporting critical research toward a cure.

📅 September 10–11, 2026
📍 Bell Sensplex, Ottawa

Let’s fill the rink, support Jack, and show the power of our hockey community. Together, we can make a difference!

Thank you to the organizers, Marc and Chelsea, for helping our family reach a cure for Jack!

For more on our family’s story or to donate to help us reach a cure for SPG4:
https://blugenes.org/spg4-cure/

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