International Alliance of Dermatology Patient Organizations - GlobalSkin

International Alliance of Dermatology Patient Organizations - GlobalSkin GlobalSkin is a unique global alliance serving patient organizations to improve the lives of dermatology patients worldwide.

🔔📢Attention Full Members of GlobalSkin⏰📌The Voting Deadline for the 2026 GlobalSkin Board of Directors Election has been...
06/17/2026

🔔📢Attention Full Members of GlobalSkin⏰📌

The Voting Deadline for the 2026 GlobalSkin Board of Directors Election has been extended until Sunday, June 21, 2026, at 11:59 p.m. EDT. Check your inbox for your voting link and election guidelines, and be sure to cast your vote before the deadline.

💛 Pachyonychia Congenita Awareness Month - June 2026 💛Pachyonychia Congenita (PC) is an ultra-rare disease that many peo...
06/17/2026

💛 Pachyonychia Congenita Awareness Month - June 2026 💛

Pachyonychia Congenita (PC) is an ultra-rare disease that many people, including healthcare professionals have never heard of. This lack of awareness can leave individuals and families feeling isolated and misunderstood.

This is why awareness matters! It helps people find answers faster, feel supported, improves understanding of , and drives research toward better treatments and a cure.

Help make PC visible! Share your story, raise awareness, and support the PC community.

👉 Learn more and get involved: https://www.pachyonychia.org/awareness-2026/

🌍 International Albinism Awareness Day 2026Theme: “Proudly in My Skin: Celebrating All Skin Tones”On June 13, we celebra...
06/13/2026

🌍 International Albinism Awareness Day 2026
Theme: “Proudly in My Skin: Celebrating All Skin Tones”

On June 13, we celebrate the dignity, rights, and lived experiences of people with albinism.

This year's campaign promotes dignity, pride, and belonging while challenging colour-based discrimination, harmful myths, bullying, exclusion, and dehumanising language.

Let's challenge prejudice, amplify voices, and create communities where everyone can live with safety, equality, and dignity.

🤍 Celebrate all skin tones. Champion human rights. Promote inclusion.
🔗Learn more: https://www.facebook.com/GlobalAlbinism

☕ Join the GlobalSkin-Europe Summer Coffee Chat!On June 19 at 13:00 CET, we'll come together for an informal conversatio...
06/12/2026

☕ Join the GlobalSkin-Europe Summer Coffee Chat!

On June 19 at 13:00 CET, we'll come together for an informal conversation to connect, exchange ideas, and strengthen our community across Europe.

🌍 Meet fellow participants
💬 Share your perspectives or join the discussion
🤝 Build new connections within the skin health community
💡 Hear the latest on Skin@School, which was recently selected as a European Collaborative Project for 2026.

GlobalSkin-Europe Community Members — check your email for the registration link.

We look forward to seeing you there!

🌟 Spotlight 🌟This week, we’re highlighting My Skin Global - an organization dedicated to promoting skin positivity, se...
06/12/2026

🌟 Spotlight 🌟

This week, we’re highlighting My Skin Global - an organization dedicated to promoting skin positivity, self-love, and ending harmful skin bleaching practices in the and .

✨ Why Follow This Organization?

➡️ They advocate for confidence and self-admiration in the skin you're in
➡️ Educate communities about the risks of skin bleaching and colorism
➡️ Build local, national, and global partnerships to drive positive change

🌐 Connect with them online: https://myskinglobal.com
👍 Like them on Facebook: https://www.facebook.com/myskindenver
📸 Follow them on Instagram: https://www.instagram.com/myskinglobal
🔗 Connect with them on LinkedIn: https://www.linkedin.com/company/my-skin-global

On June 18, GlobalSkin will host its next Atopic Eczema Community Coffee Chat featuring Špela Novak of the Slovenian Ato...
06/11/2026

On June 18, GlobalSkin will host its next Atopic Eczema Community Coffee Chat featuring Špela Novak of the Slovenian Atopic Dermatitis Association.

Titled "Navigating Spaces as a Patient Leader", this coffee chat is an opportunity to explore the following:

🔹 Building confidence in advocacy settings
🔹 Overcoming imposter syndrome
🔹 Speaking up about the issues that matter most
🔹 Creating meaningful connections with advocates and stakeholders
🔹 Strengthening your organization's voice in skin disease advocacy

GlobaSkin Atopic Eczema Community Members, check your email for the registration link.

🎓 Applications are now open for the 2027 GlobalSkin Patient Expert Scholarship!We're supporting 15 patient leaders to pa...
06/10/2026

🎓 Applications are now open for the 2027 GlobalSkin Patient Expert Scholarship!

We're supporting 15 patient leaders to participate in the EUPATI Patient Expert Training Program, helping strengthen patient voices in research and policy.

The scholarship covers course costs, graduation event fees, and travel support.

⏰ Apply by June 22, 2027, at 12 PM ET. 🔗Details and links are in your inbox!

☕ Upcoming GlobalSkin Young Patient Leader Coffee Chat!Join us for an engaging discussion on how skin patient organizati...
06/10/2026

☕ Upcoming GlobalSkin Young Patient Leader Coffee Chat!

Join us for an engaging discussion on how skin patient organizations and advocates can leverage awareness days to educate, engage, and empower their communities.

📅 24 June 2026
🕛 12:00 PM EDT

Featuring YPL Council Member Loise Bonyo, who will share practical insights from her work raising vitiligo awareness through the Royal Patches Foundation.

💬 Exchange ideas, discuss common challenges, and get inspired to strengthen advocacy in your own community.

Stay connected year-round by joining the YPL WhatsApp Community!
🔗 Check for all the details and links are in your inbox!

Voting is officially open for the 2026 GlobalSkin Board of Directors Election!Full Members: check your inbox for your vo...
06/08/2026

Voting is officially open for the 2026 GlobalSkin Board of Directors Election!

Full Members: check your inbox for your voting link and relevant guidelines. Cast your vote by June 19, 2026.

☕ Join us for our next GlobalSkin RareDERM Community Coffee Chat!This interactive session will explore ways to create me...
06/05/2026

☕ Join us for our next GlobalSkin RareDERM Community Coffee Chat!

This interactive session will explore ways to create meaningful support across the patient community, with a focus on stakeholder engagement, community-building, and sharing practical approaches that can strengthen patient organizations.

Come prepared with your questions and ideas, connect with peers from across the rare skin disease community, and take part in an open discussion designed to inspire collaboration and knowledge exchange.

📅 June 12, 2026
⏰ 3:00 PM CET
🔗 Details and links are in your inbox!

Address

Ottawa, ON

Website

Alerts

Be the first to know and let us send you an email when International Alliance of Dermatology Patient Organizations - GlobalSkin posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Shortcuts

Featured

Share

Category