International Alliance of Dermatology Patient Organizations - GlobalSkin

International Alliance of Dermatology Patient Organizations - GlobalSkin GlobalSkin is a unique global alliance serving patient organizations to improve the lives of dermatology patients worldwide.

On September 8 at 11:00 EDT | 17:00 CEST, join the public webinar “Skin Diseases Resolution: From Adoption to Action”, h...
08/18/2026

On September 8 at 11:00 EDT | 17:00 CEST, join the public webinar “Skin Diseases Resolution: From Adoption to Action”, hosted by World Skin Health Coalition.

Hear directly from the World Health Organization about the Global Action Plan and take part in a multi-stakeholder discussion exploring the role of civil society in supporting implementation at the country level. The webinar will also provide an opportunity to ask questions and learn how patient organisations can help translate global commitments into meaningful national action.

Register here: https://bit.ly/4gjOPP2

The burden of atopic eczema isn’t always visible - but that doesn’t make it any less real. ❤️‍🩹This World Atopic Eczema ...
08/17/2026

The burden of atopic eczema isn’t always visible - but that doesn’t make it any less real. ❤️‍🩹

This World Atopic Eczema Day [September 14, 2026], we’re shining a light on the challenges people with atopic eczema face every day and calling for greater understanding, empathy and support.

Because what you can’t see can still have a profound impact.

📣 Let your voice be heard. Share your story and use our free toolkit to : https://globalskin.org/worldatopiceczemaday

🌟 Spotlight 🌟This week, we’re highlighting Eczéma Québec - an organization dedicated to improving education, care expe...
08/14/2026

🌟 Spotlight 🌟

This week, we’re highlighting Eczéma Québec - an organization dedicated to improving education, care experiences, awareness, and health outcomes for people living with atopic dermatitis in Quebec, Canada.

✨ Why Follow This Organization?

➡️ They create patient-centered educational resources and support meaningful patient involvement.
➡️ They advocate for better care and improved outcomes for people living with eczema.
➡️ They developed EczemaQ, a bilingual digital tool designed to support education, treatment management, and communication between patients and healthcare providers.

🌐 Connect with them online: eczemaquebec.com
📸 Follow them on Instagram:
🆇 Follow them on X:
🎥Subscribe to their YouTube Channel: https://www.youtube.com/channel/UC9ayTIGmbGM3AysV9DEQF6Q

📣 Attention GlobalSkin Atopic Eczema Community Members!The latest Atopic Eczema Community Bulletin is here! Register for...
08/14/2026

📣 Attention GlobalSkin Atopic Eczema Community Members!

The latest Atopic Eczema Community Bulletin is here! Register for the upcoming "Accelerating Care" webinar, learn about important Member updates and events at ISAD 2026 in Beijing, and engage with resources for World Atopic Eczema Day on September 14.

📧Check your inbox for the full bulletin

🚀 New GlobalSkin Research Readiness Program Launch! Helping member patient organizations turn lived experience into evid...
08/13/2026

🚀 New GlobalSkin Research Readiness Program Launch! Helping member patient organizations turn lived experience into evidence for change.

Through a 4-part webinar series, participants will learn to:
🔹 Build patient-led research skills
🔹 Use patient experience data & PRIDD
🔹 Turn research into advocacy
🔹 Influence policy & improve care

📅 Join our first webinar, Research Without Reservation, on September 15, 2026.

🔗 Check your inbox for all details & registration link

A reminder for GlobalSkin Members that on September 29 (13:00–17:00) at Arcotel Kaiserwasser Hotel, Vienna, we'll be hos...
08/11/2026

A reminder for GlobalSkin Members that on September 29 (13:00–17:00) at Arcotel Kaiserwasser Hotel, Vienna, we'll be hosting a Member Event focused on how patient data can help shape better healthcare across Europe.

The interactive afternoon will feature Yann Heyer from the European Patients’ Forum (EPF), who will share insights on patient data governance. Other areas of focus include the European Health Data Space (EHDS), real-world evidence, the EPF Patient Barometer, and opportunities for future European collaboration.

Five travel bursaries are still available! Interested participants are encouraged to apply by September 1, 2026.

For details on applying for a travel bursary and confirming your attendance at the event, please check your email.

On August 19 at 8:00 AM EST, World Patients Alliance, in collaboration with Platform Worldwide, will be hosting the webi...
08/10/2026

On August 19 at 8:00 AM EST, World Patients Alliance, in collaboration with Platform Worldwide, will be hosting the webinar “Learning to Direct Intelligence: Co-Working with AI.”

This webinar is for patient organizations, patient advocates, nonprofit teams, communication professionals, researchers, programme staff, and others interested in using AI more effectively and responsibly in their work.

This session will help you move beyond occasional AI use and develop a more structured and productive approach. You will learn practical ways to improve research, communication, planning, and content development while maintaining accuracy, responsibility, and human oversight.

Register here: https://bit.ly/3Uq0mVm

🌟 Spotlight 🌟This week, we’re highlighting Sierra Leone Association of Persons with Albinism (SLAPWA) - an organizatio...
08/07/2026

🌟 Spotlight 🌟

This week, we’re highlighting Sierra Leone Association of Persons with Albinism (SLAPWA) - an organization dedicated to supporting and promoting the rights of persons with albinism in .

✨ Why Follow This Organization?

➡️ They advocate for the rights, inclusion, and well-being of people with albinism while challenging stigma and discrimination.
➡️ They provide vital services, including free sunscreen, peer support groups, and "Living Safely with Albinism" community forums.
➡️ They promote inclusive education through teacher training, awareness resources, and practical support for children with albinism in schools.

🌐 Connect with them online: https://albinismsierraleone.org/
👍 Like them on Facebook: https://www.facebook.com/slapwa17
📸 Follow them on Instagram: https://www.instagram.com/slapwasierra?igsh=M2d1cW56a204d3pv
📧 Contact them at: [email protected]

As part of the ongoing development of the Global Action Plan on Skin Diseases (GAP-SKIN) and its accompanying implementa...
08/06/2026

As part of the ongoing development of the Global Action Plan on Skin Diseases (GAP-SKIN) and its accompanying implementation documents, draft companion documents have been prepared for public consultation in the spirit of transparency, inclusiveness, and broad stakeholder engagement.

The WHO GAP-SKIN team invites you to review the drafts and provide structured feedback to help strengthen and refine these important resources.

Your insights and expertise are highly valued and will contribute to shaping a stronger, more effective global framework for skin health.

The deadline to submit your feedback is August 31, 2026. Access the consultation materials here: https://bit.ly/4fFuHrs

Throwback to a GlobalSkin co-authored article that was published in the Journal of the European Academy of Dermatology a...
08/04/2026

Throwback to a GlobalSkin co-authored article that was published in the Journal of the European Academy of Dermatology and Venereology (JEADV) earlier this year.

The publication, "Building the foundations for an international patient-centred outcomes set for psoriasis: A scoping study", highlights the collaborative work of an international panel of patient representatives and dermatologists from around the world to identify the outcomes that matter most to people living with psoriasis.

This work is helping build a more patient-centred approach to psoriasis research and care, ensuring future decisions are guided by what patients truly value.

Read the article here: https://bit.ly/4yQAdPt

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