Ontario Rett Syndrome Association

06/16/2026

📣 Merchandise is Here! 📣

✨We're excited to bring you the official ORSA Canada Merch collection designed for our incredible Rett syndrome community, supporters, families, and advocates.

📅 Pre-orders open July 1 and closes August 10. More details and ordering link to follow.

📦 Pick up your order at the Run 4 Rett or have it shipped.

🍁Every purchase helps spread awareness, spark conversations, and show the strength of our Rett syndrome community.

🎁These items make thoughtful gifts for family members, friends, caregivers, and the supporters who make a difference every day.

✨ Available in Adult sizes S-3XL & Youth Sizes S-XL✨

🖤Premium Black Zip Hoodie
• Soft cotton blend
• Full zipper
• Premium quality and comfort

💜🩵Basic Pullover Hoodies
• Sky Blue & Purple
• Soft cotton
• Front pocket
• Everyday comfort

🩵💜🖤T-Shirts
• Black, Sky Blue & Purple
• Softstyle Lightweight
• Soft cotton

06/15/2026

Congratulations to FLASH Camp on another successful year! ORSA Canada is proud to sponsor this incredible event each year alongside other supporters.

It was reported that this year’s camp met goals of providing family members with the support and skills to become excellent communication partners for their children who use AAC, facilitating opportunities to practice communicating together using AAC, learning more about literacy development and determining next steps for learning, and connecting with other families in a fun camp environment. The feedback from families indicated that the eventmet their expectations or went beyond their expectations. All families and volunteers said they would recommend this event to a friend.

The energy, growth, and community spirit are unmatched (testimonials and pictures truly say it all).

Well done to the entire FLASH Camp team! 👏📸

06/13/2026

Thank you to our Putting Contest Sponsor, Acadia Pharmaceuticals, for assisting us with our 21st Rett Classic. We appreciate your continued support.

06/11/2026

Thank you to our Putting Contest Sponsor, White Cactus Branding and Designs. We appreciate your contined support of the Rett Classic Golf Tournament and helping us make a real difference.

06/10/2026

In Loving Memory of Sweet Keira and Amelia 💜

We are touched and honoured to share that a loving family sponsored the Putting Contest in memory of their precious angels, Keira and Amelia.

Thank you to the lovely family for reminding us that love never fades, and memories live on in the most beautiful ways.

06/09/2026

📣Invitation to participate in a survey-Communication Support for People with Rett Syndrome in the US, Canada 🍁 and South Africa

· Are you a Speech and Language Therapist/Speech Pathologist/Speech-Language Pathologist or other professional who supports communication?
· Do you work with children or adults with Rett syndrome?
· What shapes your practice?
· Where do you find support and guidance?
· Have the Rett Syndrome Communication Guidelines helped you or have you not heard of them?
· Have you participated in any of Rett association’s activities, or not felt they were for you?
· What works and what would you change?

If you live and work in the US, Canada or South Africa you could answer these questions and more in our survey.

This project is led by Dr Gill Townend, lecturer at the University of Reading, research lead at Rett UK and lead author of the Rett Syndrome Communication Guidelines.

By listening to your experiences, we hope to further develop support for communication professionals working with people with Rett syndrome in the UK. We can’t do it without you!

Full details can be accessed via the link below or by scanning the QR code. The survey can be completed on your computer or mobile device. https://redcap.link/ctw5ao2m

Closing date: 15th July 2026

If you have any queries, please contact: [email protected]

06/08/2026

06/08/2026

📣Invitation to pariticpate in a survey-Communication Support for People with Rett Syndrome in the US, Canada 🍁and South Africa

· Are you a parent/carer of a child or adult with Rett syndrome?

WE NEED YOUR HELP!!!

· Where do you find advice and support for communication?
· What AAC systems and strategies have been recommended?
· What are your aspiration and expectations?
· Have the Rett Syndrome Communication Guidelines helped you or have you not heard of them?
· Have you participated in any Rett association’s communication activities, or not felt they were for you?
· What works and what would you change?

If you are a parent/carer of someone in the US, Canada or South Africa, you could answer these questions and more in our survey.

This project is led by Dr Gill Townend, lecturer at the University of Reading, research lead at Rett UK and lead author of the Rett Syndrome Communication Guidelines.

By listening to your experiences, we hope to further develop communication support for people with Rett syndrome. We can’t do it without you!

Full details can be accessed via the link below or by scanning the QR code. The survey can be completed on your computer or mobile device. https://redcap.link/3mguqkwq

Closing date: 15th July 2026

If you have any queries, please contact: [email protected]

06/07/2026

🎉 Today’s the day! 🎉

We’re so excited to kick off the 21st Annual Rett Classic — a milestone year filled with community, connection, and a shared passion for making a difference. Whether you’ve been with us from the start or are joining us for the first time, we can’t wait to celebrate this special day with you 💜

Let’s make it unforgettable. See you there!

06/06/2026

A big thank you to our silver sponsor, GEMS Contracting & Estimating INC, for assisting us, once again, with our 21st Rett Classic! We are so grateful for your continued support!