Ontario Rett Syndrome Association

10/11/2026

Happy Thanksgiving from ORSA Canada 🍁

Today, we're especially thankful for our wonderful Rett syndrome community and the connections that bring us together.

Wishing you and your loved ones a beautiful Thanksgiving filled with love, laughter, and special moments. 🍂

10/11/2026

🌍 This October: World Congress 101

Have you ever wondered what happens at a Rett Syndrome World Congress? Who attends? Why do people travel from around the world to be there? And why is it such an important event for families, researchers, clinicians, and advocates?

Throughout Rett Syndrome Awareness Month, we'll answer these questions and more in our World Congress 101 series.

Each post will take you behind the scenes, introducing the people, the science, the connections, and the experiences that make the World Congress unlike any other event in the Rett community.

Whether you're new to Rett syndrome or have been part of the community for years, there's something to discover.

📍 Follow our page and join us throughout October as we begin the journey to the 10th Rett Syndrome World Congress in Toronto, Canada. One post at a time, we'll explore what makes this global gathering so meaningful—and why you won't want to miss it.

10/11/2026

💜

🎉 Exactly 2 years to go! 🎉
On 11 October 2028, the 10th Rett Syndrome World Congress will begin in Toronto, Canada, hosted by ORSA Canada.
If you have ever thought about attending a Rett Syndrome World Congress, this is the one to be at!
The World Congress brings together families, caregivers, clinicians, researchers, therapists and Rett organisations from around the world. From the latest breakthroughs in research, drug and gene therapies and clinical trials, through to complex care and practical strategies to improve the lives of those living with Rett, there is something for everyone.
It is also an incredible opportunity to meet families from around the world, build friendships, share experiences and be part of the global Rett community.

Toronto 2028 — mark the date!

Two years to go… we can't wait to see you there! 💜