Defeat Duchenne Canada

Defeat Duchenne Canada Defeat Duchenne Canada is the country’s only national charity dedicated to ending Duchenne muscular dystrophy. The disease is relentless.

Our goal is to provide leadership in research, advocacy, and support to ensure all Canadians affected by Duchenne live long and active lives. One in every 5,000 boys is born with Duchenne muscular dystrophy,
the most common fatal form of muscular dystrophy. It slowly weakens the body’s muscles,
deteriorating function of vital organs and ultimately - shortens their
life. Although there are medical

treatments that may help slow its
progression, there is currently no cure. Defeat Duchenne Canada is the country’s only national charity
dedicated to ending Duchenne muscular dystrophy. We have
provided leadership in research, advocacy, and support since
1995. We‘ll continue until a cure is found to ensure our boys
can live long and active lives.

The first-ever International Conference on will be hosted by Parent Project Italy in collaboration with Parent Proje...
06/15/2026

The first-ever International Conference on will be hosted by Parent Project Italy in collaboration with Parent Project Muscular Dystrophy (PPMD), on October 10–11, 2026, in Assago (Milan) at the NH Milano Congress Center.

Registration is open until September 20, 2026: https://bit.ly/3PV473y

Titled “Painting the Community Together,” the event highlights the growth and strength of the Becker global community, offering a dedicated space for learning, exchange, and professional development.

We want to hear from you: https://bit.ly/444cTiY Whether you walked, donated, cheered from the sidelines, or weren't abl...
06/14/2026

We want to hear from you: https://bit.ly/444cTiY

Whether you walked, donated, cheered from the sidelines, or weren't able to participate this year — your perspective on the Walk to Defeat Duchenne matters to us.

We've put together a short, anonymous survey to help us understand what's working, what could be better, and how we can keep making this experience stronger for every family who is part of this community.

It takes about three minutes. And it will directly shape how we plan future walks. Thank you for helping us be the best we can be for the families who need it most.

06/12/2026

The numbers are in. The memories are made. And the momentum we built together on Walk Day is going to carry us forward. The full Walk Day recap is live now: https://bit.ly/3PZXe0V

This year, Canadians from coast to coast to coast laced up, rolled out, and showed up for every family living with Duchenne muscular dystrophy. From the first good morning message of the day to the final total announced at our Closing Ceremony — every step, every dollar, every post was part of something bigger than any one of us.

Every walker, donor, team captain, and supporter who made the 2026 Walk to Defeat Duchenne what it was: thank you! 💙

Encouraging news for the Canadian Duchenne community: Health Canada has accepted Italfarmaco's New Drug Submission for D...
06/11/2026

Encouraging news for the Canadian Duchenne community: Health Canada has accepted Italfarmaco's New Drug Submission for Duvyzat (givinostat) for Priority Review, which is a faster review process for therapies that may significantly improve patients' lives. Read more in the full press release: https://bit.ly/4ops2F9

This milestone reflects the important contributions of Canadian patients, families, researchers, and clinicians to advancing new therapies. The Priority Review is expected to take approximately 180 days, after which Health Canada will decide whether Duvyzat can be approved for use in Canada.

Duvyzat works differently from other Duchenne treatments. It targets enzymes involved in inflammation and scarring in muscle tissue, processes that contribute to muscle damage over time. Because its approach is not dependent on a specific dystrophin gene mutation, it has the potential to benefit a broad range of people living with Duchenne, regardless of the genetic mutation causing their disease.

If approved, Defeat Duchenne Canada will work closely with the community, healthcare professionals, regulators, and policymakers to support timely and equitable access.

Join us TONIGHT for Defeat Duchenne Canada's 2026 Community Annual General Meeting!Together, we'll celebrate 30 years of...
06/11/2026

Join us TONIGHT for Defeat Duchenne Canada's 2026 Community Annual General Meeting!

Together, we'll celebrate 30 years of progress, reflect on key milestones from 2025, hear about the approval of the first Duchenne muscular dystrophy treatment in Canada, and look ahead to what's next for our community.

🗓 Tonight
🕡 6:30-7:30 p.m. ET
💻 Online open to all

➡️ Get the Zoom link: https://bit.ly/4tcIwkM

⌛ We hope to see you tomorrow for our virtual Annual General Meeting!Together, we’ll reflect, look ahead, and continue b...
06/10/2026

⌛ We hope to see you tomorrow for our virtual Annual General Meeting!

Together, we’ll reflect, look ahead, and continue building a stronger, more connected community for everyone living with Duchenne muscular dystrophy.

🔗 Last chance to register: https://bit.ly/4tcIwkM

Registration is now open 💡 Join us October 3-4, 2026 in Halifax, Nova Scotia (or online from anywhere in Canada) for the...
06/09/2026

Registration is now open 💡 Join us October 3-4, 2026 in Halifax, Nova Scotia (or online from anywhere in Canada) for the 10th Family Forum.
Register now: defeatduchenne.ca/familyforum

For the first time on the East Coast, this national gathering brings families, clinicians, and researchers together to learn, connect, and move forward together. With expanded programming for kids, teens, and adults, we invite you to be part of this in-person opportunity to come together as a community.

Registration is always free for families, people living with Duchenne, and their support persons.

🔬 We're excited to share that we've received an astounding 24 Letters of Intent from eight countries for our 2027 Resear...
06/08/2026

🔬 We're excited to share that we've received an astounding 24 Letters of Intent from eight countries for our 2027 Research Grant Program! This is a strong reflection of global commitment to advancing Duchenne research.

Each application represents a tireless effort to push the boundaries of Duchenne research and bring us closer to a cure. We're deeply grateful to all of the researchers who have applied - you're making a tremendous impact in the fight against Duchenne muscular dystrophy!

Learn about the research we fund: https://bit.ly/3wjGapT

In case you missed it 📹 The recording from the Industry Partner Update with Solid Biosciences is now available: https:/...
06/05/2026

In case you missed it 📹 The recording from the Industry Partner Update with Solid Biosciences is now available: https://bit.ly/3ZZIrFj

Hear the latest updates on SGT-003, an investigational gene therapy for Duchenne muscular dystrophy from Solid Biosciences, as well as ongoing clinical trial developments.

Address

611-200 Queens Avenue
London, ON

Opening Hours

Monday 8:30am - 4:30pm
Tuesday 8:30am - 4:30pm
Wednesday 8:30am - 4:30pm
Thursday 8:30am - 4:30pm
Friday 8:30am - 4:30pm

Telephone

+15196458855

Website

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