Defeat Duchenne Canada

10/07/2026

Meet the three people leading the conversation on October 22:

🔹 Rosalind O'Connell: National Director of Advocacy, Defeat Duchenne Canada
🔹Joanne Koskie: CEO, EMPOWER Advocacy
🔹Lauren Poplak: Vice President, EMPOWER Advocacy

Together they'll walk through where access to Duchenne treatments stands in Canada, share practical advocacy tips, and then open the floor so families can learn from one another.

Register today: https://bit.ly/3SWQWk6

10/07/2026

bcreamdmd You are an inspiration to young men living with Duchenne across Canada and around the world 💙 Keep advocating, keep using your voice, and keep showing others what’s possible. Your courage and determination are making a difference 🙌

10/07/2026

“The conversations. The hugs. The laughter. Hearing stories and sharing memories. Watching the kids and young adults spending time together. And being surrounded by people who understand the Duchenne journey in a way that few others can.”

Thank you, John and Jennine for your continuous support 💙

What an incredibly special weekend.

John and I came home from Halifax with very full hearts.

There is something about being surrounded by the Duchenne community that is difficult to put into words. Seeing so many families together, reconnecting with people we have known over the years and meeting families for the first time brought back so many emotions and reminded us just how deeply this community will always be a part of our lives.

Duchenne has shaped our family in ways that will never leave us. And while there are parts of this journey that are incredibly difficult, there is also something so powerful about the connections created between families who simply understand.

This weekend brought so much of that back to us.

A heartfelt thank you to Defeat Duchenne Canada for inviting the I Have Resolve Foundation to be part of such a meaningful weekend. We loved spending time with the teens in the Teen Lounge, being there as an exhibitor, taking part in the wellness conversation and sharing a little more about the work we are doing through our I Have Resolve Foundation.

But what meant the most to us was simply being with the families.

The conversations. The hugs. The laughter. Hearing stories and sharing memories. Watching the kids and young adults spending time together. And being surrounded by people who understand the Duchenne journey in a way that few others can.

It reminded us again that while so much of the Duchenne journey focuses on treatments, appointments and what comes next, connection matters too. Friendship matters. Community matters. Creating opportunities to simply be together matters.

Jason will always be at the heart of why this community means so much to us and why our work is so deeply personal.

Thank you, Defeat Duchenne Canada, for welcoming us so warmly and for creating a weekend where families could learn, laugh, connect and simply be together.

We are incredibly grateful to have been part of it.

10/07/2026

A heartfelt thank you to Entrada Therapeutics, Inc. for sharing the latest updates on the ELEVATE trials and for your continued support of families living with Duchenne across Canada.

Last weekend, the Entrada team attended Defeat Duchenne Canada's 10th Annual Family Forum in Halifax, Nova Scotia.

Karla MacDonald, Chief Corporate Affairs Officer, and Owen Erickson, Associate Manager of Corporate Communications, represented Entrada at the Forum, where Karla shared an overview of our company and an update on our programs. The room was filled with families, advocates and researchers from across Canada, all united around a shared commitment to advancing Duchenne research and care.

As first-time attendees at this important Canadian gathering, we came away with new perspectives and learnings that we are excited to bring back into our work. We are grateful to the Defeat Duchenne community for welcoming us, and we look forward to continuing to show up for individuals and families living with Duchenne.

10/06/2026

🧬 Our LIVE Gene Therapy Education Night is coming this fall. One hour, virtual, expert-led, and shaped by the questions that matter most to our community. Sign up to be the first to know.

https://defeatduchenne.ca/gene-therapy

A special thank you to our Gene Therapy Education Program Sponsors: REGENXBIO, Roche Canada, and Solid Biosciences.

10/05/2026

Registration is now open for the Inaugural Canadian Gene & Cell Therapy Conference, taking place January 25–26, 2027, in Montréal.

As Canada's first national conference dedicated exclusively to gene and cell therapy, the event will bring together researchers, clinicians, manufacturers, industry leaders, regulators, trainees, and patient and family partners to strengthen collaboration and help shape the future of the field.

Register today at https://cangct.ca/

10/04/2026

We're back for Day 2 of the 10th Family Forum in beautiful Halifax, Nova Scotia 🦞

Yesterday was filled with conversation, connection, and so much learning. Today, we keep that momentum going with our partners at IWK Health Centre and the Stan Cassidy Centre for Rehabilitation.

New faces are always welcome. Pull up a chair, grab a coffee, and join families living with Duchenne muscular dystrophy from across Canada on Zoom: https://bit.ly/4zh0MwL

📋 Today's program: https://bit.ly/4hpPXSV

📲 Catch the highlights on our story as the day unfolds. Let's make Day 2 one to remember!

10/03/2026

The 10th Family Forum hosted in partnership with IWK Health Centre and the Stan Cassidy Centre for Rehabilitation starts today! 💙

Families from coast to coast, we're so glad to be together. Whether you're new to Duchenne or have been on this road for years, there's a place for you here.

Join us on Zoom for a day of learning, sharing, and connecting with other families and experts who understand: https://bit.ly/46UVGKv.

📋 See the full program: https://bit.ly/4hpPXSV
📲 Keep an eye on our story for live updates and highlights throughout the day

See you there!