Defeat Duchenne Canada

Defeat Duchenne Canada Defeat Duchenne Canada is the country’s only national charity dedicated to ending Duchenne muscular dystrophy. The disease is relentless.

Our goal is to provide leadership in research, advocacy, and support to ensure all Canadians affected by Duchenne live long and active lives. One in every 5,000 boys is born with Duchenne muscular dystrophy,
the most common fatal form of muscular dystrophy. It slowly weakens the body’s muscles,
deteriorating function of vital organs and ultimately - shortens their
life. Although there are medical

treatments that may help slow its
progression, there is currently no cure. Defeat Duchenne Canada is the country’s only national charity
dedicated to ending Duchenne muscular dystrophy. We have
provided leadership in research, advocacy, and support since
1995. We‘ll continue until a cure is found to ensure our boys
can live long and active lives.

08/20/2026

After a full day of learning and connection at the 10th Family Forum, we’ll come together for something special: our Saturday Evening Awards Ceremony 🌟

It will be the heart of the weekend, and you won’t want to miss it!
Add a ticket for the Awards Ceremony when you register for the Family Forum at 🔗defeatduchenne.ca/familyforum

This weekend, it all comes together. Swimmers. Walkers. Cyclists. Supporters.“All the participants… encouraging each oth...
08/18/2026

This weekend, it all comes together. Swimmers. Walkers. Cyclists. Supporters.

“All the participants… encouraging each other. Helping each other is what it’s all about.” – George Bennett

Let’s show what this community can do: defeatduchenne.ca/ricelake

📍 Gore’s Landing, Rice Lake
📅 Saturday, August 22

08/17/2026

Booking your stay for Halifax? 🏨 Lock in our group rate at the Delta Hotels Halifax Downtown before the September 2 deadline.
Need an accessible room? Contact us and we’ll help arrange it.
🔗 Get the details and book your stay: defeatduchenne.ca/familyforum

The first-ever International Conference on     will be hosted by Parent Project Italy in collaboration with Parent Proje...
08/15/2026

The first-ever International Conference on will be hosted by Parent Project Italy in collaboration with Parent Project Muscular Dystrophy (PPMD), on October 10–11, 2026, in Assago (Milan) at the NH Milano Congress Center.

Registration is open until September 20, 2026: https://bit.ly/3PV473y

Titled “Painting the Community Together,” the event highlights the growth and strength of the Becker global community, offering a dedicated space for learning, exchange, and professional development.

We’re pleased to share the publication of “Expanding Vamorolone Treatment Access for Canadians with Duchenne” in the Can...
08/10/2026

We’re pleased to share the publication of “Expanding Vamorolone Treatment Access for Canadians with Duchenne” in the Canadian Journal of Neurological Sciences. 📄 Read the full paper: https://bit.ly/458WpXx

Supported by Defeat Duchenne Canada, the paper brings together Canadian neuromuscular specialists, pediatric endocrinologists, and patient advocates to examine the evolving treatment landscape for Duchenne muscular dystrophy and why timely, equitable access to treatment matters for families.

We’re grateful to the authors and everyone working to advance treatment options and improve the lives of people living with Duchenne.

The road to a future without Duchenne starts here. Because of family fundraisers like Caden and Cullen's Ride, research ...
08/09/2026

The road to a future without Duchenne starts here. Because of family fundraisers like Caden and Cullen's Ride, research is funded, access to medication can be advocated for, and education and support can be provided.

Join the Prendergasts on September 19: Whether you're riding 120 km with them in Pembroke, cheering them on with a donation, or putting together your own team across Canada, there's a place for you in this ride.

Register today and help us push closer to a future without Duchenne: https://bit.ly/4f7Tym5

Planning your trip to Halifax? 🧳 Now is the time to secure your stay.Join us October 3 & 4, 2026 for the 10th Family For...
08/08/2026

Planning your trip to Halifax? 🧳 Now is the time to secure your stay.

Join us October 3 & 4, 2026 for the 10th Family Forum and connect with families, clinicians, and researchers from coast to coast. Book your hotel before the September 2 deadline to secure the Defeat Duchenne Canada group rate and be part of a truly special weekend.

Register & book your stay: defeatduchenne.ca/familyforum

Recent updates on Entrada Therapeutic’s exon-skipping trials happening outside of Canada and what this means for individ...
08/06/2026

Recent updates on Entrada Therapeutic’s exon-skipping trials happening outside of Canada and what this means for individuals living with Duchenne muscular dystrophy: https://bit.ly/45Py6Op

And they’re off! 🏊‍♂️🏊‍♂️ Brian and George have kicked off their 5 km swim this year at the Damian Warner Fitness Centre...
08/05/2026

And they’re off! 🏊‍♂️🏊‍♂️ Brian and George have kicked off their 5 km swim this year at the Damian Warner Fitness Centre in London marking the start of the 18th annual Rice Lake Challenge.

🔗 https://defeatduchenne.ca/ricelake

For safety reasons, the swim moved indoors this year, but nothing has slowed these two down. Their dedication to building a better future for individuals living with Duchenne muscular dystrophy is nothing short of remarkable. 💪

Celebrate this incredible milestone with us! Consider making a donation to help Brian and George reach the $500,000 milestone after 18 years of fundraising. And join us at Rice Lake on August 22 for the community walk, ride, and celebration at Gore’s Landing.

New research has shed light on a fascinating link between our digestive system and muscle health, offering fresh insight...
08/04/2026

New research has shed light on a fascinating link between our digestive system and muscle health, offering fresh insights into Duchenne muscular dystrophy: https://bit.ly/4wFssuk

Address

611-200 Queens Avenue
London, ON

Opening Hours

Monday 8:30am - 4:30pm
Tuesday 8:30am - 4:30pm
Wednesday 8:30am - 4:30pm
Thursday 8:30am - 4:30pm
Friday 8:30am - 4:30pm

Telephone

+15196458855

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