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Smiles4Kids Foundation

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Canada
Laval, QC
Smiles4Kids Foundation

Join us in making a difference, one smile at a time

05/25/2026

🐠🐬🐙 Here is some more footage of .fondation’s incredible project that was put together for children with visual impairments.

As you may have read in our last post, this beautiful “Sensory Exploration and Training Wing” at the MAB-Mackay Centre was carefully curated for kiddos with all types of visual impairments.

Extra thought was put into the type of lighting that was used and specially designed blinds were installed for those with light sensitivities like Eliana. There are textured walls and tools and toys to play with to help build fine motor skills. There is a beautiful braille wall and so much more! 🤩

Thank you to ALL of the donors, therapists, designers, workers, and organizations who made this project come to life. Eliana is so excited to come back! 💛

05/25/2026

☀️💛 Thank you to the amazing .fondation for the incredible project that was put together for children with visual impairments.

This beautiful “Sensory Exploration and Training Wing” at the MAB-Mackay Centre was carefully curated for kiddos with all types of visual impairments.

Extra thought was put into the type of lighting that was used and specially designed blinds were installed for those with light sensitivities like Eliana. There are textured walls and tools and toys to play with to help build fine motor skills. There is a beautiful braille wall and so much more! 🐬🐙🐠

With the help of our incredible donors at our last Indoor Carnival Fundraiser, we were able to donate $15,000.00 toward this wonderful project and we are so thankful to everyone who helped put this together. So many children will benefit from this important space and Eliana is certainly looking forward to her next therapy session at her low vision clinic, the MAB-Mackay Centre!

Thank you again, .fondation, for allowing us to share our story and for honouring our little foundation in such a big way — by having our logo up on the wall. 🥲 We are truly honoured! ☀️💛

04/07/2026

What is HPS?

Hermansky-Pudlak Syndrome (HPS) is a rare, multi-system disorder characterized by albinism, visual impairment, platelet dysfunction that results in easy bruising and prolonged bleeding, additional complications include inflammatory bowel disease, kidney disease, and the fatal lung disease: Pulmonary Fibrosis.
Currently there are no FDA approved treatments and HPS has no cure.

What is the “6-minute walk test”?

HPS 6-Minute Walk:

The 6-minute walk test assesses functional capacity in patients with diseases like HPS, which often involves pulmonary fibrosis.

The Test Method: Patients walk back and forth in a corridor (often 100 feet long) for 6 minutes, with rests allowed. It serves as a diagnostic tool, measuring how far someone can walk to evaluate their ability to oxygenate and to monitor for lung disease progression.

Significance: It helps determine if a patient with HPS is a candidate for or needs to remain listed for a lung transplant.

02/28/2026

Today is RARE DISEASE DAY and our daughter
☀️Eliana☀️ was diagnosed with a rare genetic disorder called Hermansky-Pudlak Syndrome (HPS).

HPS is characterized by albinism which has resulted in Eliana’s visual impairment, extreme light sensitivity, and very little pigmentation in her skin and eyes which puts her at a higher risk for skin cancer. It also causes Eliana to have a platelet dysfunction with a lot of bruising and prologned bleeding. Depending on the HPS gene, some people will also develop complications such as inflammatory bowel disease, kidney disease, and the dreaded pulmonary fibrosis. There is no cure.

Today we spread awareness so that one day, we can change this story. So that we can find the cure.

💛🫶🏼 Having a rare disease doesn’t stop Eliana from being a leader, going rock climbing, sliding down the slopes, enjoying the beach with UV protective clothing, grocery shopping with sunglasses on to cut the bright lights, running with the guidance of her white cane, or watching a hockey game with binoculars. She finds a way to do it her way. 🫶🏼💛

Nevertheless, we still have a sense of urgency to find a cure. Thank you to all who have supported us on this journey, and we thank you for spreading awareness. 🧡

11/26/2025

☀️💛 The success of our Smiles4Kids Foundation fundraiser is thanks to all of our donors, sponsors, and supporters and we are SO THANKFUL to each of you!

Together, we raised $30,000 for the and .fondation. Half of these funds will directly support the HPS Network as they work tirelessly, day after day, to try and get closer to HPS treatments and eventually a cure. 💛
The other half will be in support of Eliana’s low vision clinic, the MAB-Mackay Centre. Habilitas Foundation is the non-profit organization that raises funds to support this Centre and they will be allocating our donation toward an incredible new project for kiddos with visual impairments. Stay tuned for more details on this exciting project! We are honoured to contribute to something that will not only support Eliana, but will help countless visually impaired children for many years to come. 🥹🧡

We are so thankful we could give back to the two organizations that help us tremendously on our journey with Ellie’s Hermansky-Pudlak Syndrome (HPS). Thank you to everyone who has helped us and we are appreciative of every ounce of support! 🧡

THANK YOU to our incredibly generous sponsors:
Mongiat-Bernucci

uni-pièces
iasenza
AML International Transportsanctuaire.du.headspa

entertainment1

ca

p.international
ca sinks mtl

cafemtl
cathy a.k.barbershop
Janna Promotions

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450 Boulevard Du Cure Labelle
Laval, QC
H7P2P1

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