PSP Society of Canada

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PSP Society of Canada

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Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from PSP Society of Canada, Charitable organisation, P. O. Box 40, Station Main, Kingston, ON.

The PSP Society of Canada serves patients and families dealing with Progressive Supranuclear Palsy (PSP) and related diseases such as Multiple System Atrophy (MSA) and Corticobasal Degeneration (C*D).

10/19/2026

Speaker Announcement: Christa Haanstra, Canadian Centre for Caregiving Excellence

Christa Haanstra is the Chief, Granting and Impact Officer at the Canadian Centre for Caregiving Excellence, where she advances change by collaborating with caregivers and the organizations that support them. As a senior leader and strategic advisor with experience spanning the public, private, and non-profit sectors, she brings a rigorous, relationship-driven approach to CCCE.
Christa is a trailblazer in caregiver and patient engagement and thrives when bringing people together for a common purpose to achieve a common goal. She’s deeply committed to ensuring lived experience is integral to everything she does at CCCE, in keeping with CCCE’s own commitment to valuing caregiver voices.
Christa has been a caregiver for many years, most recently caring for her father, who has dementia, alongside the rest of her family. That experience shapes her work as a public voice for family caregivers. She is known as a passionate spokesperson for better identifying, recognizing, supporting, and ultimately integrating caregivers as true partners with health and social care teams. She brings this passion to CCCE’s mission, advancing its granting and impact strategy at a national scale.

Register for the Conference at the link in our bio now!

REGISTRATION CLOSES: October 22nd at midnight.

📅 October 23rd & 24th
📍 Hyatt Place Toronto Airport
👉 Register in bio

Please share this with those in the Canadian PSP, C*D & MSA community who should be there.

*D Canadian Caregiving

10/15/2026

Presentation Announcement: Addressing changes in speech, communication, feeding and swallowing

Saturday October 24th
1:30pm to 2:15pm
📍Main Stage

Presenting the neurological changes that can affect speech, communication, feeding, and swallowing in PSP, C*D, and MSA. Learn about common challenges, when to seek support from specialists such as speech-language pathologists, ENT specialists, or gastroenterologists, and how
to navigate treatment options. The session will provide practical strategies, tools, and interventions to improve safety, communication, and quality of life at home. It will also address important topics
such as aspiration, saliva management, voice support, nutrition, and feeding options.

Speakers:
Dr. Regina Jokel, SLP
Tamara Attanasio, M.Sc., S-LP(C)

Register for the Conference at the link in our bio now!

📅 October 23rd & 24th
📍 Hyatt Place Toronto Airport
👉 Register in bio

Please share this with those in the Canadian PSP, C*D & MSA community who should be there.

*D

10/07/2026

At this year’s Family Conference - Join Toronto musicians Kunlé & Vincent Jamal for an uplifting evening of familiar covers and beautiful original music. With powerful voices, soulful rhythms, and a deep connection to storytelling, their performance promises to be a moving celebration of music, connection, and healing.

Kunlé, a Dora Award-winning singer, composer, multi-instrumentalist, and producer, brings the rich musical traditions of West Africa together with contemporary guitar, piano, vocals, and talking drums.

Vincent Jamal, a Barbados-born singer-songwriter, blends classic soul and funk with contemporary R&B to create a sound that is both timeless and fresh.
Come listen, connect, and let the music move you.

Details:

🎵 Live Music Performance
📅 Date: October 23, 2026
📍 Location: Hyatt Place Toronto Airport
🕐 Time: [7:00pm]

Conference Details:

October 23rd and October 24th, 2026
Hyatt Place Toronto Airport
29 Carlson Ct, Etobicoke, ON
M9W 6A5, Canada

Get your tickets at the link in our bio now to join. Spaces are limited.

*DMSA

10/01/2026

A huge thank you to Parkinson Canada for supporting the PSP Society of Canada as our Conference’s Presenting Sponsor.

Parkinson Canada plays an important role in supporting Canadians affected by Parkinson’s and related movement disorders through trusted information, education, resources and connections to community support.

For Canadians living with atypical parkinsonisms such as PSP, C*D and MSA—and for their families and caregivers—access to information, connection and support is incredibly important.

We’re grateful to Parkinson Canada for helping us bring our communities together and for supporting greater awareness and understanding of atypical parkinsonisms across Canada.

Conference Details:

October 23rd and October 24th, 2026
Hyatt Place Toronto Airport
29 Carlson Ct, Etobicoke, ON
M9W 6A5, Canada

Get your tickets at the link in our bio now. Spaces are limited.

*DMSA Parkinson Canada

09/23/2026

Our Conference is 1 month away.‬

On October 23rd and 24th, 2026, the PSP Society of Canada will bring together people living with PSP, C*D and MSA, their families and care partners, healthcare professionals and researchers for our 2026 Family Conference in Toronto.

Over two days, we’ll share knowledge, hear from leading experts, connect with others who understand the journey, and explore practical ways to live a full life with Progressive Supranuclear Palsy (PSP), Corticobasal Degeneration (C*D), or Multiple System Atrophy (MSA). Whether you’re personally affected by one of these conditions, supporting someone who is, or working to improve care and understanding, we’d love to have you with us.

Over the coming days we’ll be sharing details about our incredible agenda featuring world class speakers discussing the key issues impacting families daily. Every presentation includes dedicated time for questions from the audience.

Conference Details:

October 23rd and October 24th, 2026
Hyatt Place Toronto Airport
29 Carlson Ct, Etobicoke, ON
M9W 6A5, Canada

Get your tickets at the link in our bio now. Spaces are limited.

*DMSA Parkinson Canada

09/16/2026

Join us tonight!

We’re a virtual group of patients living with PSP, C*D or MSA in various stages of their journey. Patients are joined by family members and other care-partners online.

All are welcome on the 3rd Wednesday of each month at 7:30pm EST.

Register for this group OR our care-partners only group which takes place virtually on the 2nd Tuesday of each month at 6:30pm EST.

Links to register are in our bio.

09/15/2026

Event Announcement: In-Person Support Group (Patients & Caregivers together)

Friday October 23rd
5:00pm to 7:00pm EST
📍Breakout Room

Join us for a special evening of connection as members of our community from across Canada come together in person. Share experiences, build new relationships, and connect with people who truly understand your journey in a welcoming and supportive environment.

Facilitator:
Stéphane Hetherington, PSP Society of Canada

Register for the Conference at the link in our bio now!

📅 October 23rd & 24th
📍 Hyatt Place Toronto Airport
👉 Register in bio

Please share this with those in the Canadian PSP, C*D & MSA community who should be there.

09/13/2026

Presentation Announcement: What to Expect and Advance Care Planning

Saturday October 24th
10:00am to 10:45am EST
📍Main Stage

Providing practical guidance on planning for the future after a diagnosis of PSP, C*D, or MSA. Participants will learn about important legal, financial, and healthcare decisions, including care
planning, long-term and palliative care. The session will help demystify available supports and services while addressing common fears and misconceptions about receiving care. Most importantly, it will offer tools to help individuals and families plan with confidence and maintain

Speakers:
Dr. Adriana Shnall, PhD, MSW, RSW
Geoffrey Zaldin, Co-Founder, Special Needs Financial

Register for the Conference at the link in our bio now!

📅 October 23rd & 24th
📍 Hyatt Place Toronto Airport
👉 Register in bio

Please share this with those in the Canadian PSP, C*D & MSA community who should be there.

Address

P. O. Box 40, Station Main
Kingston, ON
K7L4W6

Telephone

+18886750230

Website

https://www.pspsocietycanada.ca/, https://us06web.zoom.us/meeting/register/KRPltuUqS5iiTPGCq6BcRg#/registration, https:/

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