PSP Society of Canada

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PSP Society of Canada

Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from PSP Society of Canada, Nonprofit Organization, P. O. Box 40, Station Main, Kingston, ON.

The PSP Society of Canada serves patients and families dealing with Progressive Supranuclear Palsy (PSP) and related diseases such as Multiple System Atrophy (MSA) and Corticobasal Degeneration (CBD).

01/05/2023

My dad had a fantastic sense of humour and loved to laugh. He was the best. For the last 1.5 years he was bedridden. He loved his family and he was loved right back.

He suffered without complaining. I would visit him every day and ask, ‘How’s it going?’ He would always say, ‘I can’t complain.’ He never complained. I still can’t believe he’s gone. I miss him terribly.

The epitaph for his obituary was ‘Life’s not fair, but I can’t complain.’ My dad was the best there ever was.

06/30/2022

GEORGE RAMNAUTH

George was born in Guyana, South America, one of ten children, and came to Canada in 1968. He was a dedicated family man who would do whatever he could to help others, and he also helped to secure the first temple in Toronto for our faith.

George was passionate about religion and education. Some of the principles he lived by were to take care of your family, dream big and work hard to achieve those dreams without giving up and he always used to say “when you have love and unity in a home, you will be successful.”

We will forever miss his presence and love, but we are so grateful he is no longer suffering from PSP. .nad

03/26/2022

George Demetriades was as good as they come. Strong, selfless, brilliant, with an inimitable sense of humour everyone was drawn to. He was the kind of dad that woke up before anyone in the house to clean the snow off your car. He gave generously to charity, even if money was tight, and put the needs and well-being of others ahead of his own.

My dad loved nature, birds, photography, curling, and poetry, evident by a notebook he left behind filled with poems he had written in his younger days. One of them talks about when he dies, how he wants his grave left bare, and that his flowers be placed on the graves of others who may need them more than him. This was how my dad led his life; unfailingly selfless, always worrying about others, and giving without asking for anything in return.

He was devoted to taking care of his family, and one of the hardest working people I knew. When he retired, he did not take a lavish trip or buy that little something he always wanted. Instead, he stayed at home to take care of what needed fixing around the house, tended to the garden, spent time with his loved ones, and immersed himself in reading and learning something new.

George Demetriades was born and raised in Thessaloniki, Greece. After completing his studies in Economics and Political Science, he started working with the National Statistical Services of Greece. He later moved to Toronto, Canada, where he took computer programming courses and worked as a Project Manager at CIBC, and a Senior Software Developer at the Toronto Stock Exchange.

Having battled PSP for six hard-fought years, not once did he complain, show any sign of despair, or give any indication that he was ready to give up.

He leaves behind his beloved wife of 36 years, Virginia, daughters Christine and Natasha (that’s me), and his pride and joy, his grandson, Adam. His wisdom, devotion to family and work, and intelligence is the legacy he leaves behind. He will forever be alive in our thoughts, and in our hearts.

I leave you with one of George’s favourite quotes: “The grand essentials of happiness are; something to do, something to love, and something to hope for.

03/22/2022

Paul loved golf, curling, photography and his mornings at the YMCA. You could always find Paul behind the lens at most family functions, photographing the grandchildren as they grew. Paul was an avid supporter of our veterans and troops.

He spent many years volunteering with the Royal Canadian Legion. Paul worked in the automotive industry for most of his career before retiring in 2014.

03/15/2022

PSP Society Exercise Program:

Exercise: Finger Exercises with 1 Elastic Band

Helps With: Finger strength and function, and fine motor skills

Best For: Middle-Late Stage

Thank you as usual!

02/13/2022

LEARN MORE AND APPLY THROUGH THE LINK IN OUR BIO

Volunteer Opportunity: Peer to Peer Support

Living with a rare disease like PSP, MSA or CBD can feel lonely and isolating. At the PSP Society of Canada, our goal is to ensure that no family is alone on this journey. Providing connection and support is a critical part of our mandate as a patient organization.

We recognize that often the most helpful resource for families is connecting with others who’ve been there and can understand the unique challenges that come with these illnesses. That is why we are actively seeking to grow our network of peer supporters.

Peer supporters are volunteers who have personal experience with PSP, MSA or CBD, who are willing to speak on the phone with others going through the same experience.

LEARN MORE AND APPLY THROUGH THE LINK IN OUR BIO

02/08/2022

Hello All,

A reminder to submit your questions by Friday February 11th, 2022 for our ASK THE NEUROLOGIST session coming up next week. See the details for the session by following the link in our bio.

In place of our next remote support group session, we are hosting a virtual QnA with our scientific advisor, neurologist Dr. Carmela Tartaglia (Wednesday February 16th, 2022 at 7:30pm EST)

We are asking that attendees please submit their questions in advance through a survey which can be found through the link in our bio

Thank you and hope to see you on Wednesday the 16th.

01/05/2022

My dad loved people. He was first a music teacher (he loved music), he was next a farmer (he loved the land) and his last profession was a politician (he loved helping people).

My dad had a fantastic sense of humour and loved to laugh. He was the best. For the last 1.5 years he was bedridden. He loved his family and he was loved right back.

He suffered without complaining. I would visit him every day and ask, ‘How’s it going?’ He would always say, ‘I can’t complain.’ He never complained. I still can’t believe he’s gone. I miss him terribly.

The epitaph for his obituary was ‘Life’s not fair, but I can’t complain.’ My dad was the best there ever was.

12/19/2021

PSP Recipe Program

Here shares a soft, easy to swallow hummus recipe. Be weary of crumbly crackers or other dry items you might scoop this with!

Be cognizant of what types of mood may have cause swallowing difficulties in the past!

You’re going to want to save this recipe for the CREAMIEST hummus ever! 🤍

So easy to make, and so little to clean up when you’re done 🍃 did I also mention that it’s packed with nutrients, including fibre, plant-based protein, and antioxidants?

Perfect to be used as:
— A dip with some veggies or crackers
— Spread on a sandwich
— Added as a mix-in to a Buddha bowl.and more!

Swipe left for the recipe, and make sure you like and save this to have it handy for later 🤗

12/08/2021

PSP Exercise Program:
Horizontal Rows

Helps with: Posture, preventing shoulder pain and back/arm strength

Best for: Those whose symptoms have progressed moderately

Thank you for you guidance and support!

10/23/2021

PSP Exercise Program

Thank you for this great exercise!

Wheelchair press ups/triceps dip

Helps with:
Repositioning, pressure relief, maintaining arm strength

Best for:
Those with moderate symptoms

See the link in our bio to our YouTube channel for more exercises.

Address

P. O. Box 40, Station Main
Kingston, ON
K7L4W6

Telephone

+18886750230

Website

https://linktr.ee/pspsocietycanada

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