07/30/2026
Many of you have been following the journey of little Clyde, a funny, loving 4-year-old who is courageously battling Metachromatic Leukodystrophy (MLD), a rare genetic disease that slowly damages the brain and nervous system.
Clyde and his family travelled to Milan, Italy, with hope that he would qualify for gene therapy. Sadly, they received heartbreaking news that his disease had progressed too far for treatment.
While that chapter has closed, Clyde's story is far from over.
Today, the family's focus is on keeping Clyde as comfortable as possible, giving him the best quality of life they can, and filling his days with love, laughter, and unforgettable memories.
As a community, we have an opportunity to rally around them.
If you are able, please consider making a donation to help support Clyde and his family as they navigate this incredibly difficult journey. Every contribution helps provide the care, equipment, therapies, travel, and special experiences that will make a difference for Clyde.
Donate here:
https://gofund.me/1d48fe0d8
You can also follow and share Clyde's journey to help spread awareness of MLD:
https://www.facebook.com/share/1PUQoh3wWs/
UBAKA is also honoured to be organizing a Ride-By for Clyde. We're currently planning the event and will share all the details as soon as they're finalized. We hope our members and the community will come together to show this incredible little boy and his family just how much they are loved and supported.
Please share this post. Together, we can help ease some of the burden on Clyde's family and remind them they are not walking this road alone.