Scleroderma Canada

06/23/2026

When it comes to scleroderma, an earlier diagnosis can mean more effective treatments, better long-term outcomes, improved quality of life, and less burden on individuals as well as the health care system. To see this change become a reality, more people need to know about scleroderma and the early signs and symptoms. If you’re looking for more scleroderma resources to help you on your journey, visit www.scleroderma.ca.

06/23/2026

06/19/2026

06/18/2026

We are pleased to introduce Dr. Claire Adams as a speaker at the 2026 national scleroderma conference in Ottawa.

Dr. Adams is a psychologist and Arthritis Society Canada Postdoctoral Fellow in the Department of Psychiatry, McGill University,and Lady Davis Institute for Medical Researchat the Jewish General Hospital in Montreal, Quebec. She works within the Scleroderma Patient-centered Intervention Network (SPIN), an international patient-researcher-clinician collaboration that aims to improve the lives of people with scleroderma through patient-oriented research. Her research focuses on exploring ways researchers and patients or others with lived experience can work together to carry out research that is relevant and useful, as well as ways to improve coping and quality of life among people with scleroderma.

06/17/2026

“One Moment at a Time”

Read the full poem by Claudia Quammie on Scleroderma Canada’s blog,

The Sclerosphere: https://www.scleroderma.ca/sclerosphere
-
I remember running—
the steady pulse of 5Ks, 10Ks,
feet flying forward
without question.
Now, two blocks
can feel like a mountain,
and breath
is something I must hold carefully.
There are visible changes—
fingers curled inward
like they are learning
a different language,
skin telling stories in colour,
a smaller mouth
that reshapes even the simplest acts,
muscles that speak in weakness
through every step.

But the hardest parts
are the ones unseen—
the fog that clouds thought,
the fatigue that lingers
like a shadow that won’t lift,
the quiet collapse after showers,
after dressing,
after life’s ordinary moments
that ask for more than I have.
-

06/15/2026

Scleroderma often starts small. Early symptoms can go unnoticed or ignored. This June, learn the signs.

06/14/2026

Every person who makes a move for scleroderma has a reason.

For some, it’s a loved one living with the disease. For others, it’s their own journey. It’s for the moments that have been lost, the challenges faced every day, and the hope for a better future.

Scleroderma affects everyone differently. It can impact the skin, lungs, heart, digestive system, and more. Some symptoms are visible, while many remain unseen. But behind every diagnosis is a unique story and every story deserves to be heard.

In this video, participants from our London Make a Move event share why they’re making a move for scleroderma.

Now we want to hear from you.

Who are you making a move for?

Join us, raise awareness, support research, and help create a future where no one faces scleroderma alone.

💙 Make a Move for Scleroderma today.