Keeley & Kambry's Tribe

Keeley & Kambry's Tribe Advocating for Periviable Babies • Educating the World That Viability Has Changed. Keeley & Kambry's Tribe became a 501 (c) (3) in December of 2021.

Keeley and Kambry are identical (Mono/Di) twins who were diagnosed with Twin To Twin Transfusion Syndrome in utero at 16 weeks gestation. I underwent surgery at 18 weeks gestation at the Cincinnati Fetal Center to correct the TTTS. The surgery was successful. This prolonged my pregnancy by 4 weeks and my girls were born 125 days premature at 22 weeks and 1 day. Keels + Kam twins were born Novembe

r 24, 2018. The girls had what the NICU calls a "text book" recovery. Kambry (Donor twin) spent 138 days in the NICU, Keeley (Recipient twin) spent 144 days in the NICU. Keeley lives with Intermittent extropia, Strabismic amblyopia; right eye, Hyperopia of both eyes and Anisometropia which are complications due to Bilateral ROP. Kambry lives with Hypotonic Cerebral Palsy, Autism, an oral aversion, and a Receptive Expressive Language Disorder. Keeley & Kambry are paving the way for Micro Preemie's and proving to the World that Viability has in fact changed. This isn't just our story but a way of life for our family. Together we give back + advocate for improving patient outcomes nation wide. I believe God called me us to help save more babies. Keeley & Kambry I am so so proud of you always, moving mountains and making waves.


- Jade Ewoldt


Nominate a NICU family here:
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06/19/2026

Dear ASK Families,

Earlier this week, the U.S. Department of Education formally announced an interagency agreement to transfer the Office of Special Education and Rehabilitative Services to the Department of Health and Human Services and the Office for Civil Rights to the Department of Justice.

We know this news may feel unsettling. When systems change, it is natural to have questions about what it means for your child, your family, and the supports you depend on.
As Iowa’s federally designated Parent Training and Information Center, ASK Resource Center is here to help families navigate moments like this with clear, reliable information.

At this time, the Individuals with Disabilities Education Act, commonly known as IDEA, remains in effect. The rights and protections available to children with disabilities and their families have not changed.

As families prepare for the upcoming school year, we encourage you to continue participating in IEP meetings, requesting evaluations, asking questions, documenting concerns, and using the special education processes available to you under the law.

Although we do not yet know what these federal changes will look like in practice, our role remains the same. ASK will continue sharing timely information, answering questions, and helping families across the state navigate special education, disability services, and available supports.

If you need help navigating special education or have questions about disability services, ASK remains a steady and trusted resource for you. We are here for Iowa families, and our work continues.

If you are interested in advocating for strong protections for students with disabilities, consider connecting with state and national policy advocacy groups and reaching out to your US Representatives and Senators to share your voice.

To learn more about ASK’s mission and services, visit www.askresource.org or call us at 1-800-450-8667.

For more details about the changes, see the fact sheets below:
bit.ly/4exLA5z
bit.ly/4eyaIJw

I don’t post here too often anymore because life happens so quickly these days and of course lots of great progress unfo...
06/18/2026

I don’t post here too often anymore because life happens so quickly these days and of course lots of great progress unfolding - but this one’s for the books! I love sharing what 22 weekers can do and they can grow to be big kids who can outgrow their car seats. Preemies gain weight at a much slower pace & the twins have been working on this for so long. Kambry has about 4 lbs to go but Keeley finally weighs enough for her final car seat. She is pretty excited & wanted to share this as encouragement for all our Preemie fam’s out there!

Keep going! 💜💜

Today, we honor NICU babies born in the month of June. Please share your warriors name/names in the comments below so th...
06/01/2026

Today, we honor NICU babies born in the month of June. Please share your warriors name/names in the comments below so that we may celebrate them and you.

We know this is hard. We are cheering you on. 💓💓



06/01/2026

Get ready.... tomorrow is June, which means it is ! We are wearing blue June 1 and 2 in honor of those impacted by PPROM in pregnancy.

This is a great opportunity!
05/27/2026

This is a great opportunity!

📢 Time is running out to apply for Youth Leadership Academy! Applications are due by May 29th.

YLA is a way to connect with peers with disabilities, ages 14-21, and learn leadership skills. Spend two hours per day for five days this summer and gain skills for a lifetime. All sessions are virtual and FREE!

The training will focus on:
- How to become a leader
- How to advocate for yourself and others
- What you are capable of!

Apply Here: https://www.iowaddcouncil.org/yla

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05/27/2026

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Our neonatal and pediatric transport teams provide rapid transfers for sick or injured babies and kids, both on the ground and in the air. These specially trained teams serve as a safe and efficient link between hospitals.

Thankful to have skilled volunteers in our community. Keeley’s recent suspected seizure episode was really traumatic to ...
05/20/2026

Thankful to have skilled volunteers in our community. Keeley’s recent suspected seizure episode was really traumatic to say the least, but the 2 incredible volunteers on the Jesup Ambulance Service gave us so much peace of mind. Really thoughtful, compassionate and thorough in providing report and collecting information for transfer. We are lucky to have people in our community who want to help and not lost on me how needed this service is in all small towns.

💜💜

05/20/2026
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05/19/2026

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This National EMS Week, we recognize the dedication, compassion, and professionalism of EMS providers everywhere. Thank you to the crews who answer the call 24/7, deliver critical care when seconds matter, and serve our communities with skill and heart every day. We are proud to stand alongside you. 🚑🚁

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05/15/2026

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Estevan, SK
IOWA

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