Angelman Syndrome Foundation Canada

07/09/2026

Every smile has a story.

Complete this sentence:

"My loved one with Angelman syndrome is happiest when..."

Whether it's swimming, dancing, listening to music, going for a walk, getting a big hug, or simply spending time with family—we'd love to hear what brings them the most joy.

Let's celebrate the little moments that make our loved ones light up. 💙

Share your answer in the comments!


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Chaque sourire raconte une histoire.

Complétez cette phrase :

« Mon proche atteint du syndrome d’Angelman est le plus heureux lorsqu’il… »

Que ce soit en nageant, en dansant, en écoutant de la musique, en allant se promener, en recevant un gros câlin ou tout simplement en passant du temps en famille, nous aimerions savoir ce qui lui apporte le plus de joie.

Célébrons ensemble ces petits moments qui illuminent la vie de nos proches. 💙

Partagez votre réponse dans les commentaires!

07/03/2026

💙 There is something truly special about an Angelman smile.

It's contagious.
It's genuine.
And somehow, it has the power to brighten even the hardest days.

Today, let's fill the comments with joy!

📸 Share your favourite photo of your loved one smiling—or simply tell us what always makes them laugh.

We can't wait to see those beautiful smiles and read your stories. 💙
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💙 Il y a quelque chose de vraiment spécial dans le sourire d’une personne atteinte du syndrome d’Angelman.

Il est contagieux.
Il est sincère.
Et, d’une certaine façon, il a le pouvoir d’illuminer même les journées les plus difficiles.

Aujourd’hui, remplissons les commentaires de joie!

📸 Partagez votre photo préférée de votre proche souriant, ou dites-nous simplement ce qui le fait toujours rire.

Nous avons hâte de découvrir ces magnifiques sourires et de lire vos histoires. 💙

07/01/2026

07/01/2026

Ontario!

📣 Have your voice heard.

If you're a parent, caregiver or family member of a child with a disability who attended school in the last academic year (September 2025-June 2026), we're looking for your input.

Community Living Ontario, in partnership with Jess Whitley at the University of Ottawa, is conducting the Ontario School Inclusion Survey to better understand students' experiences in school—including inclusion, belonging, and, where applicable, exclusion, restraint, and seclusion. The insights shared will help inform research and advocate for meaningful improvements in Ontario's education system.

📝 The survey takes approximately 5–25 minutes to complete depending on your experiences and how much information you choose to share, and all the information you share will be anonymous & confidential.

Take the survey today: https://ow.ly/EbqQ50ZibN4


Image Description: Text that says “Make your voice heard – participate in the Ontario School Inclusion Survey” with the Community Living Ontario logo and a bull horn.

06/25/2026

Beautiful testimony!

“What I love most about being Jonathan’s dad is the deep bond we’ve built over his entire life. Jonathan has Angelman syndrome. I seem to be wired in just the right way to give him the love and the massive amount of patience required for his care, and seeing him thrive makes every bit of it worth it.

Knowing that complete strangers, especially other parents and grandparents who know what it’s like to love a child, are standing behind us is incredibly humbling. It’s a huge weight off my shoulders and a reminder that we aren't doing this alone.

My biggest hope is just that Jonathan is always happy, safe, and fully supported. I want him to keep growing in a world where he is secure, and to have every opportunity to live his life to the absolute fullest.”

Thank you to Paul for sharing what fatherhood means to him and the impact Variety donors have made for him and Jonathan. ❤

06/23/2026

💙 Our children teach us so much. 💙

Patience.
Resilience.
Joy.
Perspective.
Unconditional love.

If your child has Angelman syndrome, what's one lesson they have taught you that you'll carry forever?

Share in the comments—we'd love to hear your stories.


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💙 Nos enfants nous apprennent tellement de choses. 💙

La patience.
La résilience.
La joie.
La perspective.
L’amour inconditionnel.

Si votre enfant est atteint du syndrome d’Angelman, quelle est la leçon la plus importante qu’il vous a apprise et que vous garderez avec vous pour toujours?

Partagez-la dans les commentaires — nous aimerions beaucoup lire vos histoires.

06/21/2026

EN/FR

On Father’s Day, we honour the incredible dads who light the way for their Angelman syndrome warriors. 💙 We see your love, support, and daily acts of courage make every challenge feel possible, and every victory that much sweeter.

Share a photo or story of your “Super Dad” moment below and let’s celebrate the heroes behind our heroes! 🫶

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Pour la Fête des Pères, nous honorons les pères incroyables qui pavent la voie pour leur héros atteints du syndrome d’Angelman. 💙 Nous voyons votre amour, votre support et vos actes de courage quotidiens démontrent des épreuves qui semblent possibles à réaliser, et chaque victoire est plus douce.

Partagez une photo ou une histoire de votre « Super Papa » en commentaire et célébrons les héros derrière nos héros!🫶

06/16/2026

💙 Angelman families, how are you doing today? 💙

Sometimes we spend so much time caring for others that we forget to check in with each other.

So tell us:

✨ What's the best thing that happened this week?
💭 What's your biggest challenge right now?
🎉 What recent milestone or moment made you smile?
🌱 What season of life are you in at the moment—thriving, surviving, waiting, celebrating, struggling, or somewhere in between?

No judgment. No pressure. Just a community that understands.

Share as much or as little as you'd like in the comments. We want to hear from you. 💙

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💙 Familles Angelman, comment allez-vous aujourd’hui? 💙

Parfois, nous passons tellement de temps à prendre soin des autres que nous oublions de prendre des nouvelles les uns des autres.

Alors, dites-nous :

✨ Quelle est la meilleure chose qui vous soit arrivée cette semaine?
💭 Quel est votre plus grand défi en ce moment?
🎉 Quel accomplissement ou quel moment récent vous a fait sourire?
🌱 Où en êtes-vous dans votre parcours en ce moment : vous épanouissez-vous, survivez-vous au jour le jour, êtes-vous dans l’attente, en pleine célébration, en difficulté, ou quelque part entre les deux?

Aucun jugement. Aucune pression. Juste une communauté qui comprend.

Partagez autant ou aussi peu que vous le souhaitez dans les commentaires. Nous aimerions avoir de vos nouvelles. 💙

06/12/2026

💙 Hear it from the families who have experienced it.

HUG Camp is a place to connect, learn, recharge, and build lifelong friendships within the Angelman community.

Registration is now open:
https://docs.google.com/forms/d/e/1FAIpQLScq0-bXJ2mMtIFIK5W-eq_a9MMWU5P2-0QXVSCc4XG9ONsv5Q/viewform

💙 Écoutez les témoignages des familles qui l’ont vécu.

Le Hug Camp est un endroit pour créer des liens, apprendre, se ressourcer et tisser des amitiés durables au sein de la communauté Angelman.

Les inscriptions sont maintenant ouvertes :
https://docs.google.com/forms/d/e/1FAIpQLScq0-bXJ2mMtIFIK5W-eq_a9MMWU5P2-0QXVSCc4XG9ONsv5Q/viewform

06/11/2026

EN/FR

Are your kids, just like Camille, enjoy playing board games? Do you adapt your board games—whether simple or more complex—to include your child? We'd love to hear about it! Which games do you adapt, and how do you do it?

Seen on picture: Camille playing Hitster with her family

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Est-ce que comme Camille, vos proches aiment jouer à des jeux de société? Adaptez-vous vos jeux de société, du plus simple au plus compliqué, afin d’y inclure votre enfant? On veut savoir! Quels jeux, de quelle façon?

Sur la photo: Camille jouant à Hitster avec sa famille