The Isaac Foundation

05/03/2026

Our very first Cross-Canada Run for a Cure is officially in the books, and our hearts are absolutely full.

The McFadyen, More, and Dyce families all came together for the Spring Fling in Georgina, Ontario, and it was truly a day to remember. More than just a walk or a run, it was a beautiful opportunity to reconnect with the people who are so special in our lives. We are so lucky to call this incredible group family- we love you all dearly.

While the first event has wrapped, the mission continues. If you’d like to support our efforts, the donation portal remains open.
https://www.gifttool.com/athon/AthonDetails?ID=2012&AID=4412

We've already raised over $8,000 and 100% of all donations go directly to vital research projects, ensuring that every dollar contributes to finding a cure.

Thank you to everyone who joined us, cheered us on, or donated from afar. Your support means the world to us and to the families who benefit from this life-changing research.

Love, Laughter, and Hope

05/02/2026

Sincere thanks to the Village Voices for their thoughtful donation to The Isaac Foundation. We attended the incredible concert they put on in Campbellford this evening. We're so appreciative of your support. Thanks Barb and to all of the Village Voices choir members! 💕

04/30/2026

On Sunday, May 3rd, these lifelong friends are lacing up their shoes to walk 5KM with a purpose far greater than the distance itself. Their journey is a testament to the power of advocacy and the unwavering search for a cure.

All of these remarkable humans have already given so much, having selflessly participated in a gene therapy trial - as patients or support siblings. Their bravery wasn't just for themselves - it was a gift to the future, paving the way for better treatments and a definitive cure for every child and family facing MPS VI.

But as they walk this Sunday, we are reminded that the road doesn't end here. While their selfless courage has moved us closer to the finish line, our work isn’t done. We walk to honor their journey, to advocate for those who cannot, and to ensure that one day, no family has to face the uncertainty of an MPS diagnosis alone.

Please consider donating a small amount if you’re able.

Isaac and Gabe’s page can be found here: https://www.gifttool.com/athon/MyFundraisingPage?ID=2012&AID=4412&PID=793209

Jasper’s page is here: https://www.gifttool.com/athon/MyFundraisingPage?ID=2012&AID=4412&PID=793134

Clayton's page is here: https://www.gifttool.com/athon/MyFundraisingPage?ID=2012&AID=4412&PID=792985

Daphnie's page is here: https://www.gifttool.com/athon/MyFundraisingPage?ID=2012&AID=4412&PID=792881

Thanks, as always, for your love and support along the way!
A.

03/25/2026

We’re back!! The Isaac Foundation is thrilled to announce that we will be participating in race weekends as we kick off our 2026 Cross-Canada RUN FOR A CURE!

We’ll be putting a walking/running team into the Georgina Spring Fling Marathon, 1/2 Marathon, 10km, 5km on May 3rd, and while we’d love for you to join us in person, you can also join our team from anywhere across the country by signing up for a run closer to home. Simply register for the race of your choice, sign up with The Isaac Foundation for a personal fundraising page, ask your friends and family to sponsor you, and start training!

https://www.gifttool.com/athon/AthonDetails?ID=2012&AID=4412 Help us raise funds for MPS research and RUN FOR A CURE!

12/29/2025

Happy Holidays from The Isaac Foundation! Sharing an update from 2025 and plans for the new year.

11/24/2025

So proud that it was our organization that got this project off the ground with Dr. Brian Bigger. Together, we saw the incredible potential with this therapy, and we worked to fund it throughout the years alongside our incredible MPSII Fund team. Thanks to all of you who have donated to help make research - and results - like this possible.

Oliver has an inherited condition called Hunter syndrome, which causes progressive damage to the body and brain.

09/23/2025

Hey everyone! It's always been our tradition to support the musician friends who have supported us throughout the years. Today is no different!

Our dear friend Royal Wood has a new record coming out. And it's being funded through a kick-starter campaign, with lots of cool perks from Royal.

Please drop over and check it out :)

Love you much, Royal. Thanks for all you've done, and continue to do, for our kids 💕

A musical letter to my childhood self. A deeply personal return to the creative freedom I felt in the beginning. This is for YOU kid!

07/22/2025

We applaud and are incredibly thankful for the decision by the BC government to restore funding of Brineura for 10-year-old Charleigh Po***ck.

The priorities outlined by Minister Osborne are a positive step forward for how we fund rare disease drugs across the country, and positions BC as a leader this regard.

To make positive change we need communication and collaboration. We need consultation with experts, including patients and families, many of whom are experts in their own right, living every day with the realities that these rare diseases bring.

To make change, we also need an openness and willingness to work together, a united front to do what's best for patients and their loved ones, to work together to protect our health system for today's children, and for tomorrows.

We can do this, if we do it positively. We can do this, if we do it together. We can do this, united - patients, advocates, experts, government, and policy makers.

Thank you, Jori Fales, for leading this effort on behalf of Charleigh. In the end, you've changed her world, but you've also changed the world of so many other children and families across the country, many of whom I know are truly thankful.

, always. ❤️

Sharing a clip below discussing this issue with CBC's Radio West.

07/22/2025

We applaud and are incredibly thankful for the decision by the BC government to restore funding of Brineura for 10-year-old Charleigh Po***ck.

The priorities outlined by Minister Osborne are a positive step forward for how we fund rare disease drugs across the country, and positions BC as a leader this regard.

To make positive change we need communication and collaboration. We need consultation with experts, including patients and families, many of whom are experts in their own right, living every day with the realities that these rare diseases bring.

To make change, we also need an openness and willingness to work together, a united front to do what's best for patients and their loved ones, to work together to protect our health system for today's children, and for tomorrows.

We can do this, if we do it positively. We can do this, if we do it together. We can do this, united - patients, advocates, experts, government, and policy makers.

Thank you, Jori Fales, for leading this effort on behalf of Charleigh. In the end, you've changed her world, but you've also changed the world of so many other children and families across the country, many of whom I know are truly thankful.

, always. ❤️

Sharing a clip below discussing this issue with CBC's Radio West.

https://www.cbc.ca/listen/live-radio/1-96-radio-west/clip/16158825-bioethicist-breaks-future-healthcare-decisions

07/22/2025

I applaud the BC government for their decision to continue funding Brineura for 10-year-old Charleigh Po***ck, and thank them for taking the time to consider and reconsider this case.

The priorities set out by Minister Osborne are a positive step, and show leadership by the Province on how we handle funding for Rare Disease Drugs across the country.

For real change to happen, we need positive communication and collaboration. We need access to experts, which includes patients and their families - often the best experts out there in the rare disease space.

We also need careful and thoughtful deliberation backed by scientific evidence but supported by patient reported outcomes and real world data.

We can do this, if we do it together and united.

Thank you, Jori Fales, for leading this effort for Charleigh. In the end, it will have an impact on so many patients and families across Canada.

To me, that's worth celebrating.