Action CIND

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Action CIND We are a registered charity dedicated to advancing awareness, research, education, support services for CIND (Chronic Immunological and Neurological Diseases).

This includes ME, FM, MCS/ES and CFS. We are a Canadian registered charity with a vision to advance the recognition, empathy, treatment and support services for Chronic Immunological and Neurological Diseases (CIND) by raising awareness, advancing research, developing education, providing information and support services and collaborating with other organizations in Canada and internationally. Our focus will be on Myalgic Encephalomyelitis (ME), Fibromyalgia (FM), Chronic Fatigue Syndrome (CFS) and Environmental Sensitivities/Multiple Chemical Sensitivity (ES/MCS). See our FB page for info on upcoming webinars, research and much more. See www.actioncind.org/donate to help us financially. Thank you for your support.

Today is the 31st anniversary of   May 12th International Awareness Day for Chronic Immunological and Neurological Disea...
05/13/2024

Today is the 31st anniversary of May 12th International Awareness Day for Chronic Immunological and Neurological Diseases (CIND).

Please refer to to our page at www.facebook.com/may12th.awareness or website www.may12th.org for more information.

The whole month of May is dedicated to raising awareness about ME, FM, and ES/MCS. Please help raise awareness by posting about awareness or sharing posts from the May12th page on your timelines.

12/05/2023

Remember this!
~Sweatpants & Coffee

12/05/2023

The Christmas and New Year's festivities are wonderful for some yet difficult for many for a vast number of reasons. We want to help as best we can and if there is interest will host extra support group sessions during this period of time. Can you let me know if you would benefit from a 1 hour support meeting and your preferred time and time zone on:
1. Christmas Day - Dec 25
2. On New Year's Eve - Dec 31st
3. On New Year's Day - Jan 1st
4. Any other time during the year end time frame.

These extra calls are for anyone wanting to connect with others over the holidays whether you find them uplifting or difficult. Share with others what this time means for you and let's all support each other. Please know that you are not alone.

If you need to talk to someone during this period, you can also reach out to your community crisis centre or connect with others in various Facebook groups or you can always contact our support group at [email protected]. If you have ideas for other things people can do, please email them to Alison Rae at this email and we will publish a more extensive list in a few weeks.

Our next regular monthly meeting is today (Tues Dec 5th at 1:30pm ET). Our first group in the new year will be on Tuesday Jan 2, 2024 at 1:30 pm ET.

All of us at Action CIND wish you all the best during this holiday season and in 2024!

Please see the webinar coming in Sept about MCS. https://www.facebook.com/100064873230647/posts/683602743812161/?mibexti...
08/14/2023

Please see the webinar coming in Sept about MCS.

https://www.facebook.com/100064873230647/posts/683602743812161/?mibextid=5eVWNK

📣 Dive into the science of Multiple Chemical Sensitivity (MCS) with top experts on Sept 27, 6:45 PM! 💡 Did you know 1 in 34 Canadians is diagnosed with MCS? 🍁

Dr. John Molot: Medical Advisor at Environmental Health Associations of Canada & Quebec.
Dr. Farah Tabassum: MD FCFP / Staff Physician, Environmental Health Clinic, Women's College Hospital.
Dr. Caroline Barakat: PhD / Associate Professor in Environmental/Occupational Health at Ontario Tech University.
Robert Lattanzio: LLB / Executive Director, ARCH Disability Law Centre.

Don't miss our interactive quiz with exciting prizes up for grabs! 🎁

Join the MCS conversation. Register now: 🔗
https://us02web.zoom.us/meeting/register/tZMtc-mhpzkqHdSy5KSOsAi299SeqlnOneFe?fbclid=IwAR0mJai9W4vOcnmZr8ZGaXI6Le6gltSuA-N9Ka5oUpvIUz5JMBWpEiijMzg #/registration

Just a reminder that the Online Zoomers support group meets on the 1st Tuesday  of every month at 1:30pm ET. The next me...
07/04/2023

Just a reminder that the Online Zoomers support group meets on the 1st Tuesday of every month at 1:30pm ET. The next meeting is July 4th.

All are welcome! Please register for the meeting at www.cind.link/onlinezoomers/register . This will add you to the distribution list so you get any minutes and reminders for future meetings.

Free WebinarWe’re excited to invite you to attend the Freedom From Fibromyalgia Summit (virtual - all online), happening...
05/09/2023

Free Webinar

We’re excited to invite you to attend the Freedom From Fibromyalgia Summit (virtual - all online), happening May 23rd to the 30th, 2023, hosted by Dr. Rodger Murphree.

This free virtual summit brings together 40+ experts in chronic disease, functional medicine, and science to help you reverse your fibromyalgia symptoms from the inside out.
Dr Stein is honored to be one of those speakers. The title of my presentation is Is Pain Just all in the Brain?


Link to bd posted Thurs.

freedom from fibromyalgia summit

According to the CDC, around 4,000,000 adults (just in the US) suffer from fibromyalgia, and the majority of those affected are women.

And yet, for patients, getting the diagnosis is half the battle.

Most of us are passed from doctor to doctor, meeting disbelief at every turn before our struggle is ever confirmed. We spend years looking for help and never find it.

RECLAIM YOUR LIFE

It’s time to take control of your health so you can begin to feel better. It’s time for you to feel like yourself again.

For details and to register, click here

Take advantage of this opportunity to hear from 40+ of the world’s leading experts in functional medicine, pain management, nutrition, and more to empower yourself in overcoming fibromyalgia rather than learning to live with it.

** MAY 12 2pm ET Webinar **May12th Awareness Day - Neuroplasticity and A Q&A Session with Dr. Eleanor Stein, MD, FRCP(C)...
04/05/2023

** MAY 12 2pm ET Webinar **

May12th Awareness Day - Neuroplasticity and A Q&A Session with Dr. Eleanor Stein, MD, FRCP(C)

Canadian charity Action CIND is pleased to bring you a webinar on Friday May 12th, 2023 at 2:00 pm ET with Dr Eleanor Stein MD, FRCP(C). She is a Canadian physician that has dedicated her practice to helping people diagnosed with ME, FM, CFS and ES/MCS.

May12th is our International Day of Awareness for Chronic Immunological and Neurological Diseases (CIND) which was founded in 1992. The whole month of May is dedicated to raising awareness. CIND illnesses include ME, FM, CFS, ES/MCS, GWI, Lyme. Our website www.may12th.org is being refreshed in time for May. Please check it out in May.

Dr Stein will spend time during this May12th Awareness event to provide some insight to neuroplasticity and to answer any questions you may have about it and these illnesses.

On www.eleanorsteinmd.ca she writes, “Neuroplasticity is the brain's innate tendency to make new connections between neurons each time a group of neurons fire together. This means that each thought, emotion or action you do becomes hardwired and those you do most often form the strongest neural connections. These connections can cause problems like chronic pain when they go awry. But understanding the biology of neuroplasticity allows us to consciously leverage neuroplasticity to reverse changes that are not serving us.”

Neuroplasticity can help patients suffering from a vast number of illnesses.

To help you understand what neuroplasticity can and cannot do for you, and how you might use it, Dr Stein will draw on cases where she has seen gains as well as 5 scenarios to illustrate this fascinating topic. The cases include:

1. A patient has MCS – Dr Stein has had great success with her MCS symptoms. How can this patient reduce the severity of her symptoms?
2. A patient has osteoarthritis in her feet. She needs orthotics but it puts too much pressure on the top of her foot. She wants her feet cut off she’s in so much pain. Can she get control of the pain and how?
3. A man underwent successful surgery to remove a benign brain tumour. He has gone from a fitness enthusiast (e.g. lifting weights, biking etc.) to having little motivation, brain fog and unable to work. Can neuroplasticity help him to recover and begin to feel better?
4. A man has just been diagnosed with Parkinson’s. How can neuroplasticity be used to slow the progression?
5. Years ago, a women had a nerve to her bladder nicked during surgery which has resulted in her having the feelings a frequent need to urinate. Can neuroplasticity dial down these feelings? How would she reduce the need to urinate?

You are welcome to submit any questions in advance by emailing [email protected].

Registration is required at: https://may12th.link/webinar/2023-05-12/register

If possible, we will try to record the session for those that register.

We ask that you please forward notice of this webinar to anyone that might be interested. A donation to help cover our costs and to aid with delivery of additional May awareness initiatives would be appreciated. Please use www.actioncind.org/donate .

Thank you

May12th Team and Action CIND

Action CIND is pleased to bring you a webinar on May 12th, 2023 at 2:00 pm ET with Dr Eleanor Stein MD, FRCP(C). She is a Canadian physician that has dedicated her practice to helping people diagnosed with ME, FM, CFS & ES/MCS. May12th is our International Day of Awareness for Chronic Immunological....

**   SAVE THE DATE  **WEBINAR MAY12th at 2pm ETMore info to follow.  You are welcome to submit any questions in advance ...
03/26/2023

** SAVE THE DATE **
WEBINAR MAY12th at 2pm ET

More info to follow.

You are welcome to submit any questions in advance by emailing [email protected].

Registration is required at: https://may12th.link/webinar/2023-05-12/register

If possible, we will try to record the session for those that register.

We ask that you please forward notice of this webinar to anyone that might be interested. A donation to help cover our costs and to aid with delivery of additional May awareness initiatives would be appreciated. Please use www.actioncind.org/donate .

Thank you
May12th Team and Action CIND

Action CIND is pleased to bring you a webinar on May 12th, 2023 at 2:00 pm ET with Dr Eleanor Stein MD, FRCP(C). She is a Canadian physician that has dedicated her practice to helping people diagnosed with ME, FM, CFS & ES/MCS. May12th is our International Day of Awareness for Chronic Immunological....

You may find this webinar entertaining. Dr Eleanor Stein is just back from a trip of a lifetime to the Antarctic. She is...
03/13/2023

You may find this webinar entertaining. Dr Eleanor Stein is just back from a trip of a lifetime to the Antarctic. She is a patient too so it could be interesting to learn how she managed. She will share her adventure with you on March 14th at 12pm Mountain time. For more details and to register for this free session, please see

Dr. Stein's presentation about her trip to the Antarctic in January 2023

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PO Box 99
Brechin, ON
L0K1B0

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