EFA

21/05/2025

COPD ist die dritthäufigste Todesursache. Im neuen EFA-Report werden höhere Maßstäbe für bessere Behandlungsstandards bei COPD gefordert.

09/04/2025

🗞️ proudly supports the upcoming WHO Resolution on Skin Diseases to make skin health a global public priority!

At the upcoming World Health Organization World Health Assembly, a draft could change the future for millions, including people living with and skin allergies. World Skin Health Coalition

What’s in it ❓
➡️ A Global Action Plan for skin disease prevention, care and policy
➡️ Concrete steps to recognise and tackle skin diseases worldwide

For our patient community, this could mean a fresh policy perspective in Europe from better to more accessible care.

If adopted, the resolution could:
🔹 Raise visibility of skin diseases
🔹 Integrate them into health systems
🔹 Improve access to
🔹 Combat skin and

We encourage all patient organisations to urge their Ministries of Health to vote positively the draft resolution!

🗳️ Each vote counts 👉 https://lnkd.in/dBK_vVUH
hashtag hashtag GlobalSkin - International Alliance of Dermatology Patient Organizations

06/02/2025

La nostra Associazione RESPIRIAMO INSIEME è lieta di annunciare la sua presenza nella newsletter di EFA del mese di gennaio 2025. Con il nostro articolo su DIAMOGLIVOCE : Una nuova campagna per conoscere e gestire meglio la BPCO, dove Respiriamo Insieme ha concesso il patrocinio ad un nuovo progett...

17/12/2024

EFA members from Respiriamo Insieme shared the daily challenges of COPD on Italian TV, highlighting the initiatives they, along with the entire community, are taking to improve patients' lives.

Watch more here 👇

📺 Sky TG24 ci accoglie a parlare di BPCO!

Il 15 dicembre, si è tenuta l'intervista dedicata al nostro impegno a favore dei pazienti con BPCO (Broncopneumopatia Cronica Ostruttiva). 💙

Un'occasione per parlare delle sfide quotidiane dei pazienti e delle iniziative che portiamo avanti per migliorare la qualità della loro vita, insieme a tutta la nostra community. 🌟

Qui il video, per rivivere l’evento: https://youtu.be/NhpXuyhKRuI?si=t56miLkMmTqwXE3L! 🙌

28/11/2024

committee bringing energy and inspiration on this cloudy Brussels day!

What a fantastic day connecting and discussing key ways to support ! 💬 We focused on strengthening connections, sharing resources and overcoming challenges together.

Big thanks to the committee for shaping an exciting agenda for our next steps. Looking forward to our 2025 Community Meeting in Ljubljana! 🙌

Špela Novak Gašper Kovač Društvo Atopijski dermatitis Österreichische Lungenunion Gundula Koblmiller Fenaer (Federación Nacional de Asociaciones de Enfermedades Respiratorias) Álvaro García Ffaair - Fédération des Insuffisants Respiratoires Liliya Belenko Gentet Marcia Podestà

20/11/2024

COPD does not just affect the , it disrupts every part of life.

But with a holistic approach - medical management, emotional support and active living, patients like Joan Alonso are proving it is possible to live a full life.

Joan (75) from Spain exercises daily and plays harmonica, “The word ‘I can’t’ must not exist when you live with COPD."

Strong including a treatment plan, rehabilitation, emotional support and community-based activities are essential to reducing exacerbations and hospitalisations.

On , let’s ensure all COPD patients have access to the care and support they need to .

📺 Watch more patient testimonials: https://copd.efanet.org/quality-of-life-with-copd/ -life
📘 Read the full report: https://copd.efanet.org/

20/11/2024

36 million Europeans live with chronic obstructive pulmonary disease ( ), a life-changing respiratory condition that often goes unnoticed.

Every day, people face the struggle to . They deserve better.

This , we are launching our new report, created with the incredible support of the . With data from 19 European countries, it reveals gaps in care and prevention, sharing powerful patient stories and real challenges behind the statistics.

🚨 The message is clear - it’s time to :

Access to care, early diagnosis, and timely tests must become the norm.

The EU needs a strong policy to ensure every receives the care they deserve.

🫁 Your lungs matter. Get tested. Know your lung function. It could save your life.

Read the new report, today: https://copd.efanet.org/
Read our press release: https://efanet.org/news/news/4402-press-release-efa-calls-for-urgent-european-action-on-lung-health-asnew-report-reveals-critical-gaps-in-copd-care

Big thank you to EFA members and the members of COPD Working Group for elevating the voices of across Europe. Österreichische Lungenunion Ffaair - Fédération des Insuffisants Respiratoires Lungnasamtökin Respiriamo Insieme Fenaer (Federación Nacional de Asociaciones de Enfermedades Respiratorias) Fenaer Pacientes Respira Riksförbundet HjärtLung Longfonds KOAH Hastaları Derneği

08/11/2024

Huge congratulations to our amazing European Patients' Academy on Therapeutic Innovation (EUPATI) Fellows Idoia Morán Fernández, Blanca Sánchez, Eibhilín Doherty, Ángel Sánchez Sanz, Karin Kobolt, and Snežana Šundić - Vardić on graduating in Madrid! 👏

EFA is proud to support and empower you as patient experts, ready to make a difference. 🌟 Well done on this incredible achievement!

Asociación española de personas con alergia a alimentos y látex Aepnaa Nacionalno udruženje Alergija i ja

05/11/2024

Reporting back from the Codex Committee on Food Labelling!

💬 Thank you to EFA President Marcia Podestà and Sabine Schnadt from our German member association Deutscher Allergie- und Asthmabund e.V. for representing food allergy patients in Canada this year and engaging in important discussions on precautionary allergen labeling !

📢 EFA's message was clear: we need solid guidance to empower consumers with to make safe choices 🥞 🥗

Progress was made, but achieving consensus on quantitative risk assessment and reference doses remains essential. Consumers deserve clear and comprehensive allergen information — no more guesswork ❗

🎯 The supports the use of ED05 as a reference dose for risk assessment, aligning with recommendations from the FAO/World Health Organization expert group.

Let's make sure is a reality for all! 🛡 Food Allergy Italia