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European Myasthenia Gravis Association

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European Myasthenia Gravis Association

European Myasthenia Gravis Association (EuMGA), platform for the National MG Association in Europe.

05/08/2026

EuMGA Summit: two days in Paris, from scientific presentations at the Institute of Myology to hands-on workshops, and the voices of young MG patients and national associations sharing their projects.

Read the full story:
🌐 https://eumga.eu/journal/european-myasthenia-gravis-summit-2026/
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Myasthenia Gravis | EuMGA | chronicles illness | invisible illness |

13/07/2026

Isabella, in the summer of 2024, stood on her balcony looking out at the Greek bay, wondering if she would ever be able to swim across it again. At the time, she could only manage 100 metres.

On October 5, 2025, Isabella Curtis crossed that bay, in a charity swim in support of H-MGA, the Greek association for myasthenia gravis patients.

A swim that becomes a shared story. A condition made visible.

To read the full article:
https://eumga.eu/journal/a-swim-for-mg/

Myasthenia Gravis | EuMGA | chronicles illness | invisible illness |

01/07/2026

At , EuMGA proudly represented the voice of people living with myasthenia gravis.
Throughout the congress, we attended scientific sessions, engaged with experts, and exchanged ideas with the neuromuscular community to stay up to date with the latest developments in research and patient care, bringing this knowledge back to our community.
A special highlight was our participation in the European Brain Council (EBC) side event, "Rare Neurology Meets Global Policy", held on 29 June 2026. Our president Lutgarde Allard was one of the speakers during the event. It was also a valuable opportunity to connect with stakeholders and meet our colleague Monika Kaempf, from the Swiss Neuromuscular Association (ASRIMM), strengthening collaboration within the myasthenia gravis community.
Another highlight was the participation of our Board Member, Maria Bonaria Uccheddu, in the EAN TV Studio Session,
"Women's Health and Neuromuscular
Diseases", where she brought the patient perspective to an important discussion.
We thank everyone who made these valuable exchanges possible and look forward to continuing our work together to improve the lives of people living with myasthenia gravis.

27/06/2026

EuMGA is looking forward to participating in the 12th Congress of the European Academy of Neurology (EAN 2026), taking place from 27–30 June in Geneva, Switzerland!

Our engagement at reflects several key priorities that continue to shape the future of care, advocacy, and policy. We are pleased to contribute through the following activities:

📺 TV Studio Special

We are proud to share that our Board Member, Maria Bonaria Uccheddu will participate in TV Studio Session 04: Women’s Health and Neuromuscular Diseases, taking place on:

🗓️ Saturday, 27 June 2026
🕔 17:45–18:45

We are also delighted that our President, Lutgarde Allard , together with Maria Bonaria Uccheddu , will represent EuMGA at the European Brain Council (EBC) side event. The discussion will focus on advancing neuromuscular care through the implementation of global policy frameworks, using Myasthenia Gravis as a case study.

We look forward to engaging with patients representatives, healthcare professionals, researchers, policymakers, and partners throughout the congress, fostering collaboration and driving progress to improve the lives of people living with myasthenia gravis.

02/06/2026

Today is Myasthenia Gravis Awareness Day.
Our voice will not stop: on this day, landmarks around the world will light up with the symbolic color of Myasthenia Gravis to tell the world that MG exists. That we exist.
This June, do your part:
🔍 Learn about MG
📢 Share this post

Together we are stronger.
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Myasthenia Gravis | Myasthenia Gravis awareness month | chronicles illness | invisible illness | Light the globe for Myasthenia Gravis | Myasthenia Gravis awarness day

01/06/2026

June is Myasthenia Gravis Awareness Month ❄️
Most people have never heard of it. But for those living with MG, it is part of every single day — every breath, every movement, every smile.
Myasthenia Gravis is a chronic neuromuscular disease. Invisible to many, but very real to those who live with it every day.
This June, let's change that together:
🔍 Learn about MG
📢 Share this post
Together, we can make Myasthenia Gravis visible 🤝
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Myasthenia Gravis | Myasthenia Gravis awareness month | chronicles illness | invisible illness

23/05/2026

At the -NMD Meeting in Paris on April 29th, our president, Lut Allard, delivered an important presentation on Gravis (MG) and the hidden burden patients face every day.

An important opportunity to bring the patient perspective forward and help improve awareness, understanding, and care.

06/05/2026

We are pleased to welcome our newly elected Board Member, Matthieu Lusignan, appointed during our AGM at the 2nd 2026 Summit in Paris. We look forward to working together to strengthen the voice of the European myasthenia community.

29/04/2026

The energy from the days we spent together at our second European Myasthenia Gravis Summit is still very much alive , along with all the connections, emotions, shared knowledge, empowerment, and the strong network we continue to build.

We invite you to also enjoy a slightly silly and joyful photo of us playing with umbrellas: a nod to EuMGA as an “umbrella association” of national patient organizations for myasthenia gravis.

You’ll also find images from the presentation of the Rethinking MG project, developed in collaboration with EBC, which Vinciane Q. kindly shared with our members. We also held a dedicated workshop with our partners, fostering exchange and collaboration.

Another photo captures all the members who generously dedicated their time to presenting their national initiatives, sparking inspiring conversations across countries.

And overall, these images reflect what matters most: the connections, the people, and our shared purpose.

Thank you all.

24/04/2026

During the first half of the opening day of our European Summit, we attended sessions at the Institute of Myology. We listened to a presentation by Annie Archer (AFM-Téléthon), along with insightful talks from Alexandre Méjat, Jean-Yves Hogrel, Rosen Le Panse, and Audrey El Kaim.

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