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European Myasthenia Gravis Association

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Bruxelles / Brussel
European Myasthenia Gravis Association

European Myasthenia Gravis Association (EuMGA), platform for the National MG Association in Europe.

16/10/2026

EuMGA is grateful for these wonderful days in Lisbon, connecting with familiar faces and meeting European and MG associations from all around the world. 🌍

A valuable opportunity to strengthen global connections, foster collaboration, and work together towards a better future for everyone living with MG. 💙

10/10/2026

This , we’re highlighting an often overlooked aspect of living with Myasthenia Gravis (MG): the emotional and psychological toll it can take on both people living with the condition and those who care for them.

The latest Rare Barometer survey, led by EURORDIS-Rare Diseases Europe , gathered responses from almost 10,000 people across Europe, including an exceptional contribution from 438 people living with MG. The findings are a powerful reminder of the challenge we face: 6 in 10 people living with MG and their families report poor mental health.

Yet, accessing appropriate psychological support remains a challenge for many.

Mental health must be an integral part of neurological care, not an afterthought. People living with MG and their families deserve to have their emotional well-being recognised and supported at every stage of their care journey.

This , we stand alongside EURORDIS in calling for mental health support to become a systematic and accessible part of care for people living with rare diseases and their families.

Because caring for people means caring for their mental health, too. 💜

26/09/2026

First day of the conference in Dublin!

It was a real privilege to be part of this special day and to celebrate EFNA’s 25th anniversary together.

EuMGA is proud to be among the attendees, and we were especially delighted to be represented by our board member , who was also a speaker in the session “Progress in Neurology: Where Are We Now and What’s Next?”, alongside Chris Lynch, Acting CEO of Alzheimer’s Disease International, and Elizabeth Cunningham, Migraine Patient Expert and member of the EFNA team.

What struck all of us throughout the day was how many overlapping and shared challenges neurological conditions have. Today was a powerful reminder of the importance of collaboration, of looking beyond the boundaries of our own disease areas, and of sharing experiences and solutions.

By recognising and addressing common challenges together, we can make our collective voice stronger.

Thank you, EFNA, for creating these synergies and for such a wonderful first day. We’re very much looking forward to what tomorrow brings on the final day of the conference! 💙

05/08/2026

EuMGA Summit: two days in Paris, from scientific presentations at the Institute of Myology to hands-on workshops, and the voices of young MG patients and national associations sharing their projects.

Read the full story:
🌐 https://eumga.eu/journal/european-myasthenia-gravis-summit-2026/
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Myasthenia Gravis | EuMGA | chronicles illness | invisible illness |

13/07/2026

Isabella, in the summer of 2024, stood on her balcony looking out at the Greek bay, wondering if she would ever be able to swim across it again. At the time, she could only manage 100 metres.

On October 5, 2025, Isabella Curtis crossed that bay, in a charity swim in support of H-MGA, the Greek association for myasthenia gravis patients.

A swim that becomes a shared story. A condition made visible.

To read the full article:
https://eumga.eu/journal/a-swim-for-mg/

Myasthenia Gravis | EuMGA | chronicles illness | invisible illness |

01/07/2026

At , EuMGA proudly represented the voice of people living with myasthenia gravis.
Throughout the congress, we attended scientific sessions, engaged with experts, and exchanged ideas with the neuromuscular community to stay up to date with the latest developments in research and patient care, bringing this knowledge back to our community.
A special highlight was our participation in the European Brain Council (EBC) side event, "Rare Neurology Meets Global Policy", held on 29 June 2026. Our president Lutgarde Allard was one of the speakers during the event. It was also a valuable opportunity to connect with stakeholders and meet our colleague Monika Kaempf, from the Swiss Neuromuscular Association (ASRIMM), strengthening collaboration within the myasthenia gravis community.
Another highlight was the participation of our Board Member, Maria Bonaria Uccheddu, in the EAN TV Studio Session,
"Women's Health and Neuromuscular
Diseases", where she brought the patient perspective to an important discussion.
We thank everyone who made these valuable exchanges possible and look forward to continuing our work together to improve the lives of people living with myasthenia gravis.

27/06/2026

EuMGA is looking forward to participating in the 12th Congress of the European Academy of Neurology (EAN 2026), taking place from 27–30 June in Geneva, Switzerland!

Our engagement at reflects several key priorities that continue to shape the future of care, advocacy, and policy. We are pleased to contribute through the following activities:

📺 TV Studio Special

We are proud to share that our Board Member, Maria Bonaria Uccheddu will participate in TV Studio Session 04: Women’s Health and Neuromuscular Diseases, taking place on:

🗓️ Saturday, 27 June 2026
🕔 17:45–18:45

We are also delighted that our President, Lutgarde Allard , together with Maria Bonaria Uccheddu , will represent EuMGA at the European Brain Council (EBC) side event. The discussion will focus on advancing neuromuscular care through the implementation of global policy frameworks, using Myasthenia Gravis as a case study.

We look forward to engaging with patients representatives, healthcare professionals, researchers, policymakers, and partners throughout the congress, fostering collaboration and driving progress to improve the lives of people living with myasthenia gravis.

02/06/2026

Today is Myasthenia Gravis Awareness Day.
Our voice will not stop: on this day, landmarks around the world will light up with the symbolic color of Myasthenia Gravis to tell the world that MG exists. That we exist.
This June, do your part:
🔍 Learn about MG
📢 Share this post

Together we are stronger.
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Myasthenia Gravis | Myasthenia Gravis awareness month | chronicles illness | invisible illness | Light the globe for Myasthenia Gravis | Myasthenia Gravis awarness day

01/06/2026

June is Myasthenia Gravis Awareness Month ❄️
Most people have never heard of it. But for those living with MG, it is part of every single day — every breath, every movement, every smile.
Myasthenia Gravis is a chronic neuromuscular disease. Invisible to many, but very real to those who live with it every day.
This June, let's change that together:
🔍 Learn about MG
📢 Share this post
Together, we can make Myasthenia Gravis visible 🤝
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Myasthenia Gravis | Myasthenia Gravis awareness month | chronicles illness | invisible illness

23/05/2026

At the -NMD Meeting in Paris on April 29th, our president, Lut Allard, delivered an important presentation on Gravis (MG) and the hidden burden patients face every day.

An important opportunity to bring the patient perspective forward and help improve awareness, understanding, and care.

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