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European Myasthenia Gravis Association

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European Myasthenia Gravis Association

European Myasthenia Gravis Association (EuMGA), platform for the National MG Association in Europe.

02/06/2026

Today is Myasthenia Gravis Awareness Day.
Our voice will not stop: on this day, landmarks around the world will light up with the symbolic color of Myasthenia Gravis to tell the world that MG exists. That we exist.
This June, do your part:
🔍 Learn about MG
📢 Share this post

Together we are stronger.
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Myasthenia Gravis | Myasthenia Gravis awareness month | chronicles illness | invisible illness | Light the globe for Myasthenia Gravis | Myasthenia Gravis awarness day

01/06/2026

June is Myasthenia Gravis Awareness Month ❄️
Most people have never heard of it. But for those living with MG, it is part of every single day — every breath, every movement, every smile.
Myasthenia Gravis is a chronic neuromuscular disease. Invisible to many, but very real to those who live with it every day.
This June, let's change that together:
🔍 Learn about MG
📢 Share this post
Together, we can make Myasthenia Gravis visible 🤝
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Myasthenia Gravis | Myasthenia Gravis awareness month | chronicles illness | invisible illness

23/05/2026

At the -NMD Meeting in Paris on April 29th, our president, Lut Allard, delivered an important presentation on Gravis (MG) and the hidden burden patients face every day.

An important opportunity to bring the patient perspective forward and help improve awareness, understanding, and care.

06/05/2026

We are pleased to welcome our newly elected Board Member, Matthieu Lusignan, appointed during our AGM at the 2nd 2026 Summit in Paris. We look forward to working together to strengthen the voice of the European myasthenia community.

29/04/2026

The energy from the days we spent together at our second European Myasthenia Gravis Summit is still very much alive , along with all the connections, emotions, shared knowledge, empowerment, and the strong network we continue to build.

We invite you to also enjoy a slightly silly and joyful photo of us playing with umbrellas: a nod to EuMGA as an “umbrella association” of national patient organizations for myasthenia gravis.

You’ll also find images from the presentation of the Rethinking MG project, developed in collaboration with EBC, which Vinciane Q. kindly shared with our members. We also held a dedicated workshop with our partners, fostering exchange and collaboration.

Another photo captures all the members who generously dedicated their time to presenting their national initiatives, sparking inspiring conversations across countries.

And overall, these images reflect what matters most: the connections, the people, and our shared purpose.

Thank you all.

24/04/2026

During the first half of the opening day of our European Summit, we attended sessions at the Institute of Myology. We listened to a presentation by Annie Archer (AFM-Téléthon), along with insightful talks from Alexandre Méjat, Jean-Yves Hogrel, Rosen Le Panse, and Audrey El Kaim.

24/02/2026

As Rare Disease Day approaches, we were honored to join the European Brain Council event, exploring strategies to strengthen the Rare Brain Disease ecosystem.

Highlights:
• Launch of the Rethinking MG Advocacy Paper with our members and President on the Expert Advisory Board.
• Announcement of a new Neurofibromatosis Type 1 project.

A great example of EuMGA and EBC working together to advance rare brain disease care in Europe.

Scan the QR code to access the paper and latest Brain Talk podcast!

13/12/2025

Living with Myasthenia Gravis (MG) or Chronic Inflammatory Demyelinating
Polyradiculoneuropathy (CIDP) doesn’t only affect health: it reshapes
relationships.
Join the next Dare to Care webinar by :
“Navigating Relationships with Neuro-Autoimmune Diseases”, a live
conversation about sharing your diagnosis, balancing love & friendship, and
the invisible role of caregivers.
Hear from patients, caregivers, and experts on how to build understanding,
maintain connections and strengthen support systems.
16 December at 16:30 CET
Free, online – Subtitles available in 6 languages
Register here: https://preferences.argenx.com/2025-06-
26GlobalDaretoCareWebinar3_RegistrationPage.html
We’ll be participating. Are you joining too?
#

02/12/2025

Proud to have our president Lut Allard representing our association at the European Health Summit in Brussels!

04/11/2025

How to Evaluate Patients with Myasthenia Gravis

Want to learn more about Myasthenia Gravis and how doctors evaluate and treat it? Join Dr. Lorenzo Maggi from the Fondazione IRCCS Istituto Neurologico Carlo Besta in Milan, and Lutgarde Allard, President of the European Myasthenia Gravis Association (EuMGA), as they break it down in an easy-to-understand session.

👉 Participation is free but registration is required: https://ern-euro-nmd.eu/breaking-news/euro-nmd-webinar-series-neuromuscular-junction-disorders/

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