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International Federation for Spina Bifida and Hydrocephalus

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International Federation for Spina Bifida and Hydrocephalus

The International Federation for Spina Bifida and Hydrocephalus (IF) is the umbrella organisation for Spina Bifida and Hydrocephalus associations worldwide.

IF and its members advocate for the rights of people with Spina Bifida and Hydrocephalus, to enable them to reach their full potential and participate in society on an equal basis with others. IF and its members urge governments to develop and implement primary prevention policies that will ensure that women of childbearing age will have adequate folate levels before conception, to decrease the r

isk of neural tube defects such as Spina Bifida affecting their pregnancy. IF has member organisations in the following countries: Algeria, Argentina, Australia (2), Austria, Belgium (2), Bulgaria, China, Colombia, Croatia, Denmark, Estonia, Finland, France, Germany, Greece, Guatemala, Honduras, Hungary, India, Ireland, Italy, Japan (2), Kenya, Latvia, Lithuania, Luxembourg, Malaysia, Mexico, Mongolia, Morocco, the Netherlands, Nigeria, Norway, Peru, Poland, Portugal, Romania, Russia, Scotland, Serbia, Slovakia, South Africa, Spain (4), Sudan, Sweden (2), Switzerland, Tanzania,Turkey, Uganda, UK, USA (2), Zambia

18/08/2026

🎤 Bringing energy and new perspectives to the conference!
We’re excited to welcome Danny Lamb to the 31st International Conference on Spina Bifida and Hydrocephalus in Montréal this October.

Danny will bring his experience, perspective and energy to the conference, and will co-lead the Youth Forum with Ina Åkerberg, creating a space for young people with SBH to connect, exchange ideas and make their voices heard.

And that’s not all… Danny has a special surprise in store for us!
Follow A Song, A City for a little taste of what’s to come and make sure you’re in Montréal to experience it!

📅 15–17 October 2026
📍 Montréal, Canada
🔗 Register now: www.sbhconference2026.com

13/08/2026

📣 The 31st International Conference on Spina Bifida and Hydrocephalus Programme is here!

What can you expect? From specialist clinical topics to lived experiences, health equity and international perspectives, the conference programme brings together diverse voices and areas of expertise across the SBH community.

Explore the full programme online: https://www.sbhconference2026.com/en/preliminary-program

📍 Montréal, Canada
📅 15–17 October 2026
🔗 Learn more and register: www.sbhconference2026.com

12/08/2026

🌍 Happy International Youth Day 2026!

Today, we celebrate the voices, ideas and leadership of young people around the world. International Youth Day is an opportunity to recognise the important role young people play in creating more inclusive societies and to highlight the barriers that many continue to face, including young people living with disabilities.

This year, the IF International Youth Group SBH is marking the day with a dedicated webinar exploring how inclusive education, skills development and employment opportunities can help young people living with spina bifida and hydrocephalus (SBH) build successful and fulfilling futures.

Join us today for an inspiring conversation with youth advocates, adult advocates and experts as we discuss challenges, opportunities and pathways towards greater inclusion.

📅 12 August 2026
🕑 14:00–16:00 CEST
💻 Online via Zoom
🔗 Register here: https://bit.ly/IF-IYD26-webinar

10/08/2026

💬 We'd love to hear from you!
What do you think is the biggest challenge facing young people with disabilities today?

📚 Access to education?
💼 Finding meaningful employment?
🌱 Developing new skills?
🤝 Breaking down barriers to inclusion?

Share your thoughts in the comments and continue the conversation with us during our International Youth Day webinar on 12 August.

👉 Register: https://bit.ly/IF-IYD26-webinar
🕑 14:00–16:00 CEST
💻 Online via Zoom

06/08/2026

🎤 Meet our moderator!
We're delighted to have Jurn Anthonis, Chair of the IF International Youth Group SBH, leading this year's International Youth Day webinar.

Jurn will guide the discussion as youth advocates, adult advocates and guest speaker Rasmus Isaksson explore how inclusive education and employment can create opportunities for young people with disabilities.

Join us for this engaging discussion.
📅 12 August 2026
🕑 14:00–16:00 CEST
💻 Online via Zoom
🔗 Register now: https://bit.ly/IF-IYD26-webinar

04/08/2026

🎉 Why does International Youth Day matter?
International Youth Day is more than a date on the calendar. It is a global opportunity to celebrate the contributions of young people, amplify their voices and recognise their role in building more inclusive communities.
At IF, we believe young people living with spina bifida and hydrocephalus are advocates, leaders and changemakers. Their experiences and perspectives help shape a more inclusive future for everyone.

Join us as we celebrate International Youth Day through our global webinar.

📅 12 August 2026
🕑 14:00–16:00 CEST
💻 Online via Zoom
🔗 Register now: https://bit.ly/IF-IYD26-webinar

30/07/2026

Join the IF International Youth Group SBH on 12 August to explore inclusive pathways from education to employment for youth with disabilities.

During the webinar, we'll discuss:
📚 Inclusive education: breaking down barriers and creating opportunities for every learner.
💼 Employment: supporting successful transitions into meaningful careers and inclusive workplaces.
💬 Lived experiences: hear from members of the IF International Youth Group SBH, the IF International Adult Working Group SBH and special guest Rasmus Isaksson, educator, disability rights advocate and public speaker.
❓ Audience Q&A: bring your questions and join the conversation.

Whether you're a young person, family member, healthcare professional, educator, policymaker or advocate, we'd love to have you with us.

📅 12 August 2026
🕑 14:00–16:00 CEST
💻 Online via Zoom
🔗 Register now: https://bit.ly/IF-IYD26-webinar

29/07/2026

📢 Your voice matters.

Twenty years after the adoption of the UNCRPD, the Disability Alliance is inviting persons with disabilities and their representative organisations to share their experiences. What progress have you seen? What barriers remain? What should the next 20 years of disability rights look like?

IF encourages its members, partners and the wider spina bifida and hydrocephalus community to take part in this important global survey and help ensure lived experiences continue to shape disability rights advocacy.

📝 Complete the survey here: https://internationaldisabilityalliance.cmail20.com/t/y-l-fendl-huktyhcw-y/

Together, we can help shape a more inclusive future.

28/07/2026

🎤 Meet the speakers | IF Youth Day webinar

We're excited to welcome a diverse panel of youth advocates, adult advocates and experts who will share their experiences and perspectives on creating more inclusive pathways to education and employment.

Together, they'll explore:
📚 Inclusive education
💼 Employment opportunities
🌱 Skills development
🤝 Lived experience and advocacy

Join us for this engaging discussion.

📅 12 August 2026
🕑 14:00–16:00 CEST
🔗 Register here: https://bit.ly/IF-IYD26-webinar

27/07/2026

🌟 Member in the Spotlight

After ten years of dedicated service on the IF Board of Directors, we extend our heartfelt thanks to Dr Aziza Mustafa elnaeema for her outstanding leadership and commitment to the global spina bifida and hydrocephalus community.

Throughout the past decade, Dr Elnaeema has been a strong advocate for the rights, inclusion and wellbeing of persons with disabilities, bringing valuable perspectives from Sudan and the wider African region while helping to strengthen IF's global advocacy efforts.

Most recently, she contributed to IF's submission to the United Nations consultation on inclusive humanitarian assistance and safeguards, ensuring the voices of persons with disabilities were reflected in discussions on humanitarian action. 📖 Read more about IF's contribution to the UN consultation: https://ifglobal.org/publications/if-contributes-to-un-consultation-on-inclusive-humanitarian-assistance/

Thank you, Dr Elnaeema, for your dedication, expertise and lasting contribution to advancing the rights of people living with spina bifida and hydrocephalus worldwide. We wish you every success in your future endeavours.

Adres

Rue Des Alexiens 16
Brussels
1000

Openingstijden

Maandag	09:00 - 17:30
Dinsdag	09:00 - 17:30
Woensdag	09:00 - 17:30
Donderdag	09:00 - 17:30
Vrijdag	09:00 - 17:30

Website

http://www.ifglobal.org/

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