European Multiple Sclerosis Platform

European Multiple Sclerosis Platform Founded in 1989, EMSP is the umbrella organisation for 43 MS societies from 37 European countries.

EMSP is a European NGO engaged in advocacy and awareness-raising activities and offering knowledge and expertise in the field of multiple sclerosis and related neurological disorders. EMSP represents their interests at the European level and works to achieve its goals of high-quality equitable treatment and support for people with MS throughout Europe.

29/05/2026

World MS Day 2026

On World MS Day, our President Jan van Amstel shares a message on why this day matters, and why it must be a day of purpose as well as solidarity.

This year's theme puts the spotlight on diagnosis, and rightly so. Timely, accurate diagnosis shapes everything that follows. In MS, time lost too often means function lost.

But diagnosis is only a starting point. What must follow is timely access to treatment, specialist care and support, no matter which country you happen to live in.

For over three decades, this has been our work. Together with our 41 member organisations across 36 European countries, representing more than 1.2 million people living with MS, we advocate for access and quality care for people with MS, NMO and MOGAD.

▶️ Watch his full message below.
This World MS Day, raise your voice. Together, we can ensure that no one navigates MS alone. 🧡

MMultiple Sclerosis International Federation@Jongerenwerking MS-Liga Vlaanderen vzw AAnna Revilla EmspEElisabeth Kasilingam Emsp

🔬 Driving innovation in Multiple Sclerosis with patients at the table.The Immutol consortium gathered in Siena, Italy fo...
26/05/2026

🔬 Driving innovation in Multiple Sclerosis with patients at the table.

The Immutol consortium gathered in Siena, Italy for its Third Annual Meeting (20–21 May), hosted at the Santa Chiara Lab - Università di Siena.

An EU-funded project developing engineered vitamin D3-modulated dendritic cell therapies (VitD3DC) to retrain the immune system in multiple sclerosis rather than broadly suppress it.

EMSP was proud to bring the patient perspective into the heart of the science.

A dedicated session translated progress across the project's work packages from optimising monocyte collection and genetic engineering to pre-clinical safety studies, into accessible discussion with expert patients.

We were especially grateful to be joined by two expert patients, Rebecca Maguire and Anna Revilla Emsp, whose questions and lived experience helped keep the research grounded in the real life needs of the people living MS.

🤝 Co-creating research with patients isn't a box to tick, it shapes better, more relevant science.

Follow Immutol as the project moves toward defining its clinical trial target population and engaging with regulators. 👉

Learn more- https://immutol-horizon.eu/

19/05/2026

Two days. Over 120 participants. One shared conversation.

⁉️ How do we improve diagnosis and care for people living with MS, NMOSD, and MOGAD?

The Annual Conference in Berlin brought together patients, advocates, clinicians, researchers, nurses, policymakers, and member societies from across Europe — all at the same table, sharing the latest research, naming what is still missing, and shaping how evidence becomes care and policy.

We are grateful to our co-host, Deutsche Multiple Sklerose Gesellschaft, Bundesverband e.V. for bringing this conference to life with us.

A huge thank you to every speaker, panellist, moderator, and participant who showed up and shared their expertise and lived experience.

We are also grateful to our industry partners, Roche and Sanofi without whom this conference would not have been possible.

The work continues from here. See you in Portugal next year. ☀️

13/05/2026

MS nurses are not a support function. They are the infrastructure of MS care — monitoring treatments, managing complex symptoms, educating patients, and holding multidisciplinary teams together.

Yet our MS Nurse PRO workload survey of 108 MS nurses across 15 countries paints a sobering picture:

🗃️ An average caseload of 516 patients per nurse
🔬 Clinical trials, psychological support, and social benefits advice routinely left undone due to overload
⛓️‍💥 Over half of nurses working with limited administrative support

A systemic change is overdue.
🫂 Access to psychological support for patients
🤝 Integrated care teams.
🗒️ Referral authority for certain medications.
🔗 Streamlined admisinistrative support

Read the full findings of the MS Nurse PROfessional workload survey
https://msnursepro.org/blog/4691-caring-without-burning-out-how-smarter-workload-strategies-for-multiple-sclerosis-nurses-can-safeguard-qualitative-care-in-european-healthcare-systems

12/05/2026

MS nurses are not a support function. They are the infrastructure of MS care — monitoring treatments, managing complex symptoms, educating patients, and holding multidisciplinary teams together.

Yet our MS Nurse PRO workload survey of 108 MS nurses across 15 countries paints a sobering picture:

🗃️ An average caseload of 516 patients per nurse
🔬 Clinical trials, psychological support, and social benefits advice routinely left undone due to overload
⛓️‍💥 Over half of nurses working with limited administrative support

A systemic change is overdue.
🫂 Access to psychological support for patients
🤝 Integrated care teams.
🗒️ Referral authority for certain medications.
🔗 Streamlined admisinistrative support

Read the full findings of the MS Nurse PROfessional workload survey.
https://buff.ly/BlHHd5E

It's European Public Health Week. Today's theme: Disinformation.Unverified "cures," misleading claims about treatments, ...
07/05/2026

It's European Public Health Week.

Today's theme: Disinformation.
Unverified "cures," misleading claims about treatments, conflicting advice from unreliable sources. Sorting fact from fiction is exhausting, and at times, dangerous.
That's why we are proud to launch the EMSP Learning Corner — a credible, centralised hub for everyone in our community.

Curated by EMSP and our partners, the Learning Corner brings together evidence-based resources across three pillars:

🔹 Capacity Building for patient organisations — practical tools to advocate, communicate, deliver services, and grow sustainably.

🔹 Individual patients and advocates capacity building — content designed to empower patients, carers, and advocates to participate meaningfully in shaping their care.

🔹 Policy and community impact — a deeper understanding of the policies, health systems, and external factors that shape the lives of people with MS, NMOSD, and MOGAD.

👉 Explore the Learning Corner: https://emsp.org/learning-corner/

Elisabeth Kasilingam Emsp Anna Revilla Emsp

EMSP 2025 Annual Report is hereIn a year of political shifts and rising expectations on patient organisations, EMSP doub...
04/05/2026

EMSP 2025 Annual Report is here
In a year of political shifts and rising expectations on patient organisations, EMSP doubled down on ensuring the voices of people with MS, NMOSD, and MOGAD shape decisions across Europe.

A few highlights from the year:
🩺 MS Nurse PRO reached 1,729 users across 56 countries, with 497 courses completed and 400+ new members in 2025.

🤝 Our Annual Conference in Prague brought together 143 participants onsite, 1,325+ livestream viewers, and generated 422K social media impressions — turning two days of dialogue into a Europe-wide conversation on prevention.

📊 The IMSS Survey secured its most representative dataset yet: 28 national societies across 26 countries, with tailored country sheets equipping every participating member for local advocacy.

We joined a 50+ NGO coalition, led by European Disability Forum, pushing for an updated EU Disability Rights Strategy, and delivered the patient perspective at the World Health Summit, Brain Innovation Days, ECTRIMS- Patient Community Days, and the European Parliament.

🌍 We welcomed a new member, the Albanian MS Society- Fondacioni Pema e Jetes and expanded our Young People's Network with 22 new members, including the first-ever representative from the NMO community.

Thank you to our members, our Scientific Advisory Committee- Eva Havrdova, Giampaolo Brichetto, Hanneke Hulst, Bernard M.J. Uitdehaag, Louise Parker Buch Philipp Zimmer, our partners and the entire MS, NMOSD, and MOGAD community for making this year a success.

📖 Read the full report: https://lnkd.in/eNsjuaNc

That's a wrap on in Berlin. A few moments we won't forget:Mirjam Kottmann's "Just Do It!" Germany's first national TV ...
25/04/2026

That's a wrap on in Berlin.

A few moments we won't forget:
Mirjam Kottmann's "Just Do It!" Germany's first national TV moderator using a wheelchair, named Journalist of the Year 2024, and a masterclass in turning visibility into advocacy.

🧬 The PIRA panel pushed past old categories -"stable" MS deserves a rethink, smouldering inflammation is real, and biomarkers like NfL are showing us the part of the iceberg that sits below the waterline.

🏥 Models of Care: specialised centres, MS nurses, and cross-border collaboration via European Reference Networks all on the table.

♀️ Ruth Dobson brought the long-overdue conversation on menopause and MS — fatigue, sleep, mood, and quality of life all in one room.

🙏 Huge thanks to all our speakers and attendees who made these two days feel like a turning point.

Thanks to our co-host DMSG - Deutsche Multiple Sklerose Gesellschaft, Bundesverband e.V. and our moderator Bettina Hausmann for making the conference truly memorable.

See you next year in Portugal.

Read the Day 2 highlights: https://emsp.org/news/day-2-in-berlin-stories-that-moved-us-science-that-moved-forward/

Day 2 of is here!Mirjam Kottmann opens the morning with "Just Do It!" and from there, we are going biology-deep.On the...
25/04/2026

Day 2 of is here!
Mirjam Kottmann opens the morning with "Just Do It!" and from there, we are going biology-deep.
On the agenda:
🧬 Panel on biology-driven care
🔬 Three of the most-talked-about topics in the MS community right now: CAR-T, stem cells, and menopause & MS
🚶 Another Move It! moment to keep the energy up
🗣️ Big conversations about the future of MS in Europe
✈️ And one last reminder — drop your quiz card at reception today for your chance to win a trip to in Portugal.

See you in there.
Watch the conference livestream- https://eu-admin.eventscloud.com/website/19094/live-stream

EMSP Council elected its new Executive Committee today.We are thrilled to welcome: 🔹Dr Jan van Amstel, MS Vereniging Ned...
23/04/2026

EMSP Council elected its new Executive Committee today.

We are thrilled to welcome:
🔹Dr Jan van Amstel, MS Vereniging Nederland as President
🔹Eduard Andrei Pletea, Asociatia Pacientilor cu Afectiuni Neurodegenerative din Romania as Vice President
🔹Alexandre José Lopes Guedes da Silva, SPEM - Sociedade Portuguesa de Esclerose Múltipla as Treasurer
🔹Executive Committee Members- Mary McCusker, Multiple Sclerosis Irelands Ireland; Dr Antonia Kaltsatou, Greek Multiple Sclerosis Society; Beatriz Martínez de la Cruz, Spanish MS Socities, and Tania Pilz Multiple Sklerose Gesellschaft Wien

A heartfelt thank you to our outgoing Committee members Herbert Temmes Federica Balzani Aoife Kirwan and Susanna van Tonder for their dedication and lasting contributions.

Learn more- https://emsp.org/news/a-new-chapter-for-emsp-welcoming-our-2026-2030-executive-committee/

Adres

Rue Auguste Lambiotte 144/8
Brussels
1030

Openingstijden

Maandag 09:00 - 17:00
Dinsdag 09:00 - 17:00
Woensdag 09:00 - 17:00
Donderdag 09:00 - 17:00
Vrijdag 09:00 - 17:00

Telefoon

+3223058012

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