IFCCA – International Federation of Crohn’s and Ulcerative Colitis Associations

26/06/2026

Predictive DNA testing for ? It’s becoming a reality. 🧬 Researchers have identified a key genetic marker to catch severe cases early.

In the largest genetic study of inflammatory bowel disease (IBD) traits to date, researchers have identified a genetic marker associated with more severe ulcerative colitis and Crohn's disease—the major forms of IBD.

25/06/2026

We are delighted to be attending the 𝗘𝗦𝗣𝗚𝗛𝗔𝗡 - European Society for Paediatric Gastroenterology, Hepatology and Nutrition Annual Meeting in Lille (𝟮𝟰-𝟮𝟳 𝗝𝘂𝗻 𝟮𝟬𝟮𝟲) and to be actively engaging with healthcare professionals, researchers, and partners from across the globe.

We invite you to stop by 𝗕𝗼𝗼𝘁𝗵 𝟲𝟴 to meet us and learn more about IFCCA’s work as a patient organisation, including our involvement in EU-funded projects aimed at improving research, care pathways, and outcomes for people living with Inflammatory Bowel Disease (IBD).

We look forward to connecting with you in Lille!

24/06/2026

KNOW THE SIGNS: When does 's or pain turn into a dangerous intestinal blockage? 🛑⚠️

And should I go to the hospital?

23/06/2026

True love doesn’t fade in the face of a chronic illness journey—it adapts. This is proof that hard times build unbreakable bonds. 🧵❤️

The daily realities of living with a urostomy can either drive couples apart or bring them closer together. The difference often comes down to how the partner responds in their spouse’s most vulnerable moments.

22/06/2026

💜 𝗪𝗼𝗿𝗹𝗱 𝗜𝗕𝗗 𝗗𝗮𝘆 𝟮𝟬𝟮𝟲 | 𝗜𝗕𝗗 𝗛𝗮𝘀 𝗡𝗼 𝗕𝗼𝗿𝗱𝗲𝗿𝘀: 𝗔𝗰𝗰𝗲𝘀𝘀 𝘁𝗼 𝗜𝗕𝗗 𝗖𝗮𝗿𝗲 🌍

🌍 𝗛𝗼𝘄 𝗰𝗮𝗻 𝗽𝗮𝘁𝗶𝗲𝗻𝘁𝘀 𝗵𝗲𝗹𝗽 𝘀𝗵𝗮𝗽𝗲 𝘁𝗵𝗲 𝗳𝘂𝘁𝘂𝗿𝗲 𝗼𝗳 𝗜𝗕𝗗 𝗿𝗲𝘀𝗲𝗮𝗿𝗰𝗵?

In our recent 𝗪𝗼𝗿𝗹𝗱 𝗜𝗕𝗗 𝗗𝗮𝘆 𝟮𝟬𝟮 discussion, developed by GENEGUT in collaboration with IFCCA and Crohn's & Colitis Ireland, we explored 𝘄𝗵𝘆 𝗮𝗰𝗰𝗲𝘀𝘀 𝘁𝗼 𝗜𝗕𝗗 𝗰𝗮𝗿𝗲 𝘀𝗵𝗼𝘂𝗹𝗱 𝗻𝗼𝘁 𝗱𝗲𝗽𝗲𝗻𝗱 𝗼𝗻 𝘄𝗵𝗲𝗿𝗲 𝘆𝗼𝘂 𝗹𝗶𝘃𝗲.

In this short clip, Maria Stella De Rocchis, IFCCA Project Officer, shares her perspective on the importance of ensuring that patient voices are represented throughout the research journey and how collaboration can help drive more meaningful outcomes for people living with IBD.

🎥 Watch the trailer below and catch the full conversation here: https://buff.ly/lPigvPp

💜 Because IBD has no borders — and 𝗿𝗲𝘀𝗲𝗮𝗿𝗰𝗵 𝗶𝘀 𝘀𝘁𝗿𝗼𝗻𝗴𝗲𝘀𝘁 𝘄𝗵𝗲𝗻 𝗽𝗮𝘁𝗶𝗲𝗻𝘁𝘀 𝗮𝗿𝗲 𝗽𝗮𝗿𝘁 𝗼𝗳 𝘁𝗵𝗲 𝗰𝗼𝗻𝘃𝗲𝗿𝘀𝗮𝘁𝗶𝗼𝗻.

21/06/2026

'"Why my doctor banned salads and prescribed Big Macs instead. A brutal look at surviving Crohn's disease". 🧵👇

The Long Run Mindset - For a Life Worth Living #20

20/06/2026

"Colorectal cancer is no longer just an 'older person’s disease.'

​Cases are spiking in millennials and Gen Z. If you experience any of these 4 warning signs, it’s time to talk to a doctor. 👇

Having one or more of these symptoms — diarrhea, stomach pain, bloody stools, and anemia — is associated with higher risks of developing colorectal cancer before age 50.

19/06/2026

🔄 Shifting trends in : Why ’s and are no longer just affecting the populations we once thought. Here is how the data is changing.👇

Inflammatory bowel disease (IBD), which includes Crohn’s disease and ulcerative colitis, affects millions of people around the world. The Cent

18/06/2026

Good news for the community: A new study highlights how B12 and folate supplements might help manage debilitating chronic fatigue. 💡✨

Deficiencies in vitamin B12 and folate, or vitamin B9, are linked to physical and mental fatigue, which suggests they may play an important role in chronic fatigue.

17/06/2026

💜 More than 10 million people worldwide live with Inflammatory Bowel Disease (IBD), yet many still face delays in diagnosis, unequal access to care, and barriers to innovation.

In the latest edition of , IFCCA's Innovation and Patient Engagement Coordinator, Roberto Saldaña shares his perspective on the challenges facing the IBD community, the promise of advanced therapies, and why patient voices must be at the heart of research, policy, and healthcare decisions.

As a proud partner of the TRANSFORM Alliance, IFCCA is pleased to contribute to this important conversation on the future of healthcare innovation.

📖 Read the full interview:

This week,  puts a spotlight on inflammatory bowel disease and the transformative therapies that could change everything for the millions living with it.  Roberto Saldaña,  from the  International Federation of Crohn's and Ulcerative Colitis Associations (IFCCA), tells us mor...