Immune Deficiency Foundation of Australia (IDFA)

Immune Deficiency Foundation of Australia (IDFA) IDFA offers information and support to those affected by primary and secondary immune deficiencies.

Primary Immune Deficiencies (PID) are a group of potentially serious disorders in which inherited or acquired defects in the Immune System lead to increased infections and/or secondary disease. There are currently more than 400 known Primary Immune Deficiency disorders, with new ones being uncovered regularly.

19/06/2026

Did you know IDFA has a dedicated “Useful Links” page designed to help you quickly access trusted information, support services, related organisations, and resources for people living with immunodeficiency?

This page brings together a range of helpful links in one place, making it easier to explore more about immunodeficiencies, connect with relevant support networks, and find reliable external resources.

We encourage you to visit the Useful Links page to discover more and stay informed.
https://www.idfa.org.au/publications/useful-links/

Real stories have the power to change lives. 💙For much of his life, Thomas lived with constant infections, hospital visi...
16/06/2026

Real stories have the power to change lives. 💙

For much of his life, Thomas lived with constant infections, hospital visits, and unanswered questions before finally receiving a diagnosis of Common Variable Immunodeficiency (CVID).

Today, with weekly SCIg treatment, careful planning, and the support of his family, Thomas continues to pursue his passions, volunteer with the Rural Fire Service, and make a difference in the immunodeficiency community.

“Do what you can, when you can. Even the small things matter.”

Thomas’ story is a powerful reminder of the importance of early diagnosis, access to treatment, and never giving up on finding answers.

👉 Read the full story: https://www.idfa.org.au/thomas-story/

IDFA EOFY Tax Appeal 💙We are currently encouraging businesses and corporate partners to make tax-deductible donations be...
11/06/2026

IDFA EOFY Tax Appeal 💙

We are currently encouraging businesses and corporate partners to make tax-deductible donations before 30 June to support IDFA.

If you know of an employer, business, or organisation that may be interested in supporting this appeal, we would greatly appreciate it if you shared it with your network.

All donations over $2 are tax-deductible.

For more information, contact IDFA directly on 1800 100 198.

Thank you for helping us extend our reach and connect with potential supporters during this critical campaign period.

https://www.givenow.com.au/idfa-eofy-appeal

Supporting the SupportersCarers play an incredibly important role in the lives of people living with immunodeficiency - ...
10/06/2026

Supporting the Supporters

Carers play an incredibly important role in the lives of people living with immunodeficiency - but carers also need support.

The IDFA Circle of Support program connects carers with other carers who understand the hospital visits, treatment routines, and emotional challenges that can come with supporting a loved one.

Having someone who understands the journey can make a real difference.

If you're caring for someone with immunodeficiency and would like to speak with another carer who has walked a similar path, Circle of Support is here for you.

Find out how to connect with a peer mentor today: https://www.idfa.org.au/community/circle-of-support/sign-up-for-circle-of-support/

💻 Webinar | Think PI: Living Well with Immunodeficiency: Winter Safety for ImmunodeficiencyAs winter approaches, many pe...
09/06/2026

💻 Webinar | Think PI: Living Well with Immunodeficiency: Winter Safety for Immunodeficiency

As winter approaches, many people living with immunodeficiencies are thinking about how to stay well while continuing to work, study, travel, socialise, and care for their families.

Join us for an engaging and practical webinar exploring real-world strategies to help reduce infection risk and support your wellbeing during the colder months. From navigating busy public spaces to managing illness within the home, this session will focus on the everyday decisions that can make a big difference.

What You’ll Learn:
✅ What actually works when it comes to winter infection prevention — including masks, vaccines, antivirals, hygiene, and layered protection strategies
✅ Navigating schools, workplaces, travel, and social settings more confidently
✅Knowing when to rest and recover versus when it’s okay to push through
✅Reducing household transmission between family members, children, carers, and loved ones
✅ Creating a personalised winter wellness plan that works for your lifestyle and health needs
✅Making practical, informed day-to-day decisions throughout winter

Attendees will leave with the knowledge and confidence to have informed conversations with their healthcare team and make decisions that best meet their needs.

📅 Date: Thursday, 11 June
⏰ Time: 7 pm AEST
📍 Location: Online

Can't attend? Register to get the recording!

📧 Send questions to info**@‌https://ow.ly/pZwR50YZehT** in advance to shape the webinar content.

🔗 Register here: https://ow.ly/eVOF50YZehX..

💻 Meet the Speakers | Think PI: Living Well with Immunodeficiency: Winter Safety for ImmunodeficiencyAssociate Professor...
04/06/2026

💻 Meet the Speakers | Think PI: Living Well with Immunodeficiency: Winter Safety for Immunodeficiency

Associate Professor Alberto Pinzon Charry
A/Prof Pinzon Charry is a Paediatric Clinical Immunologist and Allergist based at the Queensland Children’s Hospital and in private practice.

He combines clinical work, research, and trainee education. He is a regular examiner for the Royal Australasian College of Physicians and holds academic appointments with Griffith University and the University of Queensland.

Dr Pinzon Charry is the Queensland representative for the Australasian Society of Clinical Immunology and Allergy (ASCIA) and serves in the Clinical Immunology Committee for the International Union of Immunological Societies (IUIS).

IDFA Member - Jo
Jo is a patient member of IDFA, and both lives with a complex web of co-morbidities and is also a parent to children with rare diseases and complex health needs, one who also has an immunodeficiency and another who has inherited a different rare disease from Jo’s husband.

Jo spends a lot of time (too much!) advocating within the health and education systems, often also coaching other patients or parents on how to navigate these systems.

Clean air and respiratory infection control measures are a particular concern, both as a patient and a parent.

Webinar Details
📅 Date: Thursday, 11 June
⏰ Time: 7 pm AEST
📍 Location: Online

🔗 Register here: https://ow.ly/eVOF50YZehX..

📰 May Newsletter 📰Hello, IDFA community! Our next newsletter is hot off the press, and we can't wait to share all the fa...
02/06/2026

📰 May Newsletter 📰

Hello, IDFA community! Our next newsletter is hot off the press, and we can't wait to share all the fantastic updates, insights, and highlights with you!

Highlights in this month's edition:

✨National Volunteer Week
✨ Community News: Canberra Coffee Club
✨ Tips and Resources: IDFA Useful Links

And more...

👉 Dive into the full newsletter here: https://mailchi.mp/idfa.org.au/may-newsletter26

To subscribe and receive these emails to your inbox, head over to our website: https://ow.ly/zpq650YoozE

Support IDFA and be in the running to win an incredible prize pack worth $350,000! 💙When you purchase a ticket through P...
02/06/2026

Support IDFA and be in the running to win an incredible prize pack worth $350,000! 💙

When you purchase a ticket through Play For Purpose, you're helping support Australians living with immunodeficiency while also giving yourself the chance to win some amazing prizes.

First Prize Pack includes:
🚙 Land Rover Defender 110 valued at $191,986.24
⛽ $8,013.76 EG Ampol Fuel Gift Voucher
🥇 $150,000 Gold Bullion

Every ticket purchased through our link helps support the work of IDFA, connecting, educating, and advocating for Australians affected by immunodeficiency.

🎟️ Get your tickets here:
https://www.playforpurpose.com.au/immune-deficiencies-foundation

📅 Ticket sales close: 8pm (AEST), Thursday 23 July 2026
📅 Drawn: 10am (AEST), Monday 27 July 2026

Thank you for your support and good luck! 🍀

Play For Purpose is an online charity raffle conducted on our behalf by the 50-50 Foundation. The raffle is entirely not-for-profit and made possible by The Lott.

ASCIA Immunodeficiency Strategy UpdateThe aim of the ASCIA Immunodeficiency Strategy for Australia and New Zealand is to...
26/05/2026

ASCIA Immunodeficiency Strategy Update

The aim of the ASCIA Immunodeficiency Strategy for Australia and New Zealand is to improve the health and well-being of people living with inborn errors of immunity (IEI), including hereditary angioedema (HAE) and other primary immune deficiency (PID) disorders.

There has been significant progress of Strategy Goals 1-8 since the Strategy was launched in 2022 in collaboration with patient/carer organisations (AusPIPS, HAE Australasia, IDFA and IDFNZ) and other stakeholders.

Looking Ahead: The ASCIA 2026 Conference will be held from Tuesday, 1st to Friday, 4th September 2026 at the Te Pae Christchurch Convention Centre, New Zealand.

Australasian Society of Clinical Immunology and Allergy

Address

9/104 Crown Street
Wollongong, NSW
2500

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

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