Albinism Fellowship of Australia

13/06/2026

International Albinism Awareness Day recognises the condition many people around the world have. It's not racial, or restricted to certain areas, it's genetic, and around 1 in 70 people carry the recessive gene.
It's time the world knew more about it!

07/06/2026

Australians who have tested for HPS, we encourage you to fill in this survey, regardless of your results.
The AFA is looking at genetic testing in general, but for now, which clinics do people use for HPS? Link in comments

06/06/2026

Join in theGAA's IAAD campaign using their template! Global Albinism Alliance

24/05/2026

Members of the AFA executive committee held an information stand at the The Australasian College of Dermatologists ACDASM26 conference last weekend. Interactions with other patient support groups and dermatologists from around the country proved beneficial and spread more awareness of albinism via the lived experience

16/05/2026

29 days to IAAD2026

Persons with albinism are more than society’s assumptions about appearance.
They are leaders, creators, workers, students, parents, and rights-holders.

09/05/2026

Thanks to UTSS for this reminder

25/04/2026

Have your say!

On 24 May 2025, the World Health Assembly adopted resolution WHA78.15, recognizing skin diseases as a global public health priority. The resolution requested the Director-General to develop a Global Action Plan for Skin Diseases for consideration by the 80th World Health Assembly in May 2027.

11/02/2026

Exciting News! Our full website is now open to everyone!

The AFA pride ourselves on being a reliable source for everything albinism in Australia and we recognise the important role easy access to information has in enhancing the support and experiences of Australians with albinism.

So spread the word to your family and friends, optometrists, dermatologists, teachers, and other professionals that this is the hub for albinism in Australia!

Explore our full website now!

Welcome to the AFA Welcome to our website – we hope you find what you are looking for. If not, please use our contact page to let us know what you are after and we will get back to you! These pages are designed to help people become aware of the condition, understand the challenges faced and how t...

06/02/2026

"No hat, no play" is a common mantra in Australian schools. But what about sunscreen? During the highest UV time of day, lunchtime.
Don't forget reflected UV; glass, cement, sand etc.

We encourage Aussie families to sign this petition calling for a mandatory reapplication of sunscreen during the school day.
While our KWA (kids with albinism) absolutely need to reapply, so does every child and adult.
Australia has one of the world's highest rates of skin cancer, and it doesn't start overnight.
Teach sun safety early.

Support sunscreening in schools - 5 minutes to save a life.

27/12/2025

Latest from the UN expert on albinism.

Our latest newsletter is out!

You can access it here in English, French, Portuguese, and Spanish.
https://us8.campaign-archive.com/?e=__test_email__&u=567a1fd59f9e4faefe25c4169&id=9fcb7be2ad

Happy Holidays!