Albinism Fellowship of Australia

18/08/2026

The AFA's conference is so close we can almost reach out and touch it.
4-6th September in Adelaide.

Find information about registration and program at our website
albinismaustralia.org

03/07/2026

Galina Gening of the Russian albinism support group, presented her findings on mental health in persons with albinism.
Not just the person affected needs care, siblings, parents, carers, everyone whose life is involved do too!
International Alliance of Dermatology Patient Organizations - GlobalSkin World Congress on Rare Skin Diseases

01/07/2026

The AFA president is currently in Versailles representing the albinism community at Congress on Rare Skin Diseases . Thank you to International Alliance of Dermatology Patient Organizations - GlobalSkin for this amazing opportunity to be surrounded by scientists, other patient group leaders and people passionate about rare skin. Global Albinism Alliance

27/06/2026

It's currently winter in Australia but other parts of the world are experiencing high temperatures and... Summer.
More videos to come in the series, this one focuses on sunscreen. Is the often mentioned "shot glass full" of sunscreen enough?

20/06/2026

Our president was interviewed post IAAD by Peter Greco from Vision Australia Radio in SA, (formerly 5RPH.) Peter, and VAR, are great supporters of all things low vision. They talked about IAAD, albinism, our upcoming conference, and albinism.
Interview is here:

On FOCAL POINT: Elizabeth Beales, President of the Albinism Fellowship of Australia, reflecting on International Albinism Awareness Day 13th June. The theme was "Proud In My Skin". Elizabeth also previewed their National Conference coming up in September in Adelaide. Rachel, from Marketing at Beyond...

13/06/2026

International Albinism Awareness Day recognises the condition many people around the world have. It's not racial, or restricted to certain areas, it's genetic, and around 1 in 70 people carry the recessive gene.
It's time the world knew more about it!

07/06/2026

Australians who have tested for HPS, we encourage you to fill in this survey, regardless of your results.
The AFA is looking at genetic testing in general, but for now, which clinics do people use for HPS? Link in comments

06/06/2026

Join in theGAA's IAAD campaign using their template! Global Albinism Alliance

24/05/2026

Members of the AFA executive committee held an information stand at the The Australasian College of Dermatologists ACDASM26 conference last weekend. Interactions with other patient support groups and dermatologists from around the country proved beneficial and spread more awareness of albinism via the lived experience

16/05/2026

29 days to IAAD2026

Persons with albinism are more than society’s assumptions about appearance.
They are leaders, creators, workers, students, parents, and rights-holders.