Albinism Fellowship of Australia

02/09/2026

The AFA president recently spoke to Sam from Vision Australia Radio

https://omny.fm/shows/studio1/elizabeth-and-martin-beales-albinism-fellowship-of-australia

3pm this afternoon on Vision Australia Radio: Lizzie Eastham and Sam Rickard present Studio 1 - Vision Australia Radio’s weekly look through a different lens.

This week:

Sam talks to Elizabeth and Martin Beales from the Albinism Fellowship Of Australia about Sun Lotion; Stereotypes and Support needs for the most visual condition in the Blind World.

Elizabeth shares her personal late-in-life diagnosis story, clears up common myths surrounding albinism, and details the upcoming AFA Fest in Adelaide—an event dedicated to education, functional vision support, self-defense, and community connection.

Registrations are still open for the conference; the link is available in the podcast notes.

Studio 1 welcomes any input from our listeners. If you have any experience or thoughts about issues covered in this episode or believe there is something we should be talking about.

EMAIL: [email protected] or leave comment below.

A special thank you to Elizabeth and Martin for joining us in-studio.

This program was made possible with support from the Community Broadcasting Foundation. Find out more at https://cbf.org.au/

Tune in 3pm Wednesdays for you weekly look at life through a different lens!

31/08/2026

A wonderful and generous donation for our conference raffle from Sun Bella, an Australian supplier of SPF hats wraps and umbrellas.
Visit their shop and look around at the beautifully elegant, quality products.
https://sunbella.com.au

18/08/2026

The AFA's conference is so close we can almost reach out and touch it.
4-6th September in Adelaide.

Find information about registration and program at our website
albinismaustralia.org

03/07/2026

Galina Gening of the Russian albinism support group, presented her findings on mental health in persons with albinism.
Not just the person affected needs care, siblings, parents, carers, everyone whose life is involved do too!
International Alliance of Dermatology Patient Organizations - GlobalSkin World Congress on Rare Skin Diseases

01/07/2026

The AFA president is currently in Versailles representing the albinism community at Congress on Rare Skin Diseases . Thank you to International Alliance of Dermatology Patient Organizations - GlobalSkin for this amazing opportunity to be surrounded by scientists, other patient group leaders and people passionate about rare skin. Global Albinism Alliance

27/06/2026

It's currently winter in Australia but other parts of the world are experiencing high temperatures and... Summer.
More videos to come in the series, this one focuses on sunscreen. Is the often mentioned "shot glass full" of sunscreen enough?

20/06/2026

Our president was interviewed post IAAD by Peter Greco from Vision Australia Radio in SA, (formerly 5RPH.) Peter, and VAR, are great supporters of all things low vision. They talked about IAAD, albinism, our upcoming conference, and albinism.
Interview is here:

On FOCAL POINT: Elizabeth Beales, President of the Albinism Fellowship of Australia, reflecting on International Albinism Awareness Day 13th June. The theme was "Proud In My Skin". Elizabeth also previewed their National Conference coming up in September in Adelaide. Rachel, from Marketing at Beyond...

13/06/2026

International Albinism Awareness Day recognises the condition many people around the world have. It's not racial, or restricted to certain areas, it's genetic, and around 1 in 70 people carry the recessive gene.
It's time the world knew more about it!

07/06/2026

Australians who have tested for HPS, we encourage you to fill in this survey, regardless of your results.
The AFA is looking at genetic testing in general, but for now, which clinics do people use for HPS? Link in comments

06/06/2026

Join in theGAA's IAAD campaign using their template! Global Albinism Alliance