Epilepsy Action Australia

Home
Australia
Sydney, NSW
Epilepsy Action Australia

Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from Epilepsy Action Australia, Charitable organisation, Suite 5. 04, Level 5, 15 Orion Road Lane Cove West, Sydney.

Serving the community for over 70 years, Epilepsy Action Australia provides nationwide support, information and innovative services to those living with and affected by epilepsy.

09/06/2026

We were honoured to welcome Professor Richard Scolyer AO and his wife, Katie, to our Purple for Purpose Gala Dinner in 2025.

Attending one of his first public events following brain tumour surgery, Richard generously shared his experience and support for the epilepsy community.

His courage, warmth and commitment to improving the lives of others left a lasting impression on everyone who met him. We are grateful to have shared that special evening with him and will remember his kindness, advocacy and extraordinary contribution to Australian medicine.

Our thoughts are with Katie, their children, family, friends and colleagues during this difficult time.

08/06/2026

💜 Would you know what to do if someone had a seizure?

Seizures can be confronting to witness, but your calm response can make a real difference. Whether it’s a convulsive (tonic-clonic) seizure or a non-convulsive (focal) seizure, knowing how to respond safely matters.

✔️ Stay with the person
✔️ Protect them from injury
✔️ Reassure until they recover
✖️ Do not put anything in their mouth
✖️ Do not restrain them

In some situations, calling an ambulance is the best thing you can do. If in doubt, make the call.

Click here for more information: https://www.epilepsy.org.au/about-epilepsy/first-aid/

💡 This guide is a quick reference for seizure first aid. Save it. Share it. You could help save a life.

05/06/2026

Scientists have made a breakthrough toward a genetic test that could help thousands of mothers with epilepsy safely take life-saving medication without fear of it causing birth defects in their children.

Click here to read the full article: https://www.monash.edu/medicine/news/latest/2026-articles/helping-mothers-with-epilepsy-take-life-saving-medication-without-fear-of-birth-defects

For more information about navigating pregnancy and parenthood in epilepsy, click here: https://www.epilepsy.org.au/mind-body-baby-navigating-pregnancy-and-parenthood-with-epilepsy/

04/06/2026

Join the Australian Pregnancy Register (APR) and help shape the future of epilepsy treatment during pregnancy!

For over 25 years, APR has been collecting vital information on antiepileptic drugs (AEDs) to ensure the safety of both mother and baby.

Find out more information at: https://www.epilepsy.org.au/apr-registration/ or call 1800 069 722.

03/06/2026

The University of Queensland are inviting women with epilepsy aged 40 years and above to take part in the Improving Outcomes for Women with Epilepsy in Later Life (WELL Study).

We are interested in understanding more about the effect of hormones on seizures, Bone Health, Memory and Cognition plus Quality of Life. The study involves the collection of your data over different time points in your life (once a year).

For further information, please contact the Research Team at [email protected] or on 07 3346 5027 to see if you are eligible.

02/06/2026

Are you aged 18 years or older, currently residing in Australia, living with a chronic physical health condition, have sought care from a healthcare professional for your chronic physical health condition, and can spare 15 minutes to answer a survey?

People living with chronic physical health conditions often report challenges in healthcare interactions, including feeling dismissed or misunderstood.

These experiences appear to be particularly common in conditions that are difficult to diagnose or poorly understood, where symptoms rely heavily on subjective reporting.

We want to hear about your experiences to better understand and measure these broader experiences and help improve these interactions.

Find out more and start the survey here: https://redcap.link/3ih

01/06/2026

Could you claim your professional development this tax time? 💡

If you're a disability support worker, teacher, or healthcare professional, our online epilepsy training may be tax deductible and until June 30, all courses are 25% off with code 25TAX. That includes Epilepsy Essentials and our full course library.

From seizure first aid to supporting people with intellectual disability, we have short courses designed for the people who show up every day 💜

👉 https://learn.epilepsy.org.au/w/

Eligibility depends on individual circumstances. Check with the ATO or your tax adviser.

29/05/2026

Researchers from the University of Sydney want to hear from parents, siblings and other family members about their experiences of supporting young people (aged 16-25 years) living with epilepsy as they navigate toward adulthood.

This study involves an interview with you for about an hour, where you can chat to us about what it is like to support your family member as they live their condition.

To learn more or get in touch with us, scan the QR code or email Alana Munro at [email protected]

28/05/2026

Quadlytics Inc. is developing a wearable device to warn of epileptic seizures minutes before they occur.

To help shape the future of this technology, we’re looking for people to share their experiences with wearable health devices and apps.

Scan the QR code and register your interest today!

27/05/2026

Treatment of rare childhood epilepsy could begin before birth.

RNA therapy may calm abnormal brain activity of epilepsy in utero, before seizures emerge. The study reveals for the first time how a novel RNA‑based treatment affects brain cell signalling when applied at early stages of development in a rare, severe and treatment‑resistant form of epilepsy caused by changes in a gene called KCNT1.

Click here to read more: https://news.northwestern.edu/stories/2026/4/treatment-of-rare-childhood-epilepsy-could-begin-before-birth

Address

Suite 5. 04, Level 5, 15 Orion Road Lane Cove West
Sydney, NSW
2066

Telephone

+611300374537

Website

http://www.epilepsy.org.au/

Alerts

Be the first to know and let us send you an email when Epilepsy Action Australia posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Shortcuts

Want your organization to be the top-listed Non Profit Organization in Sydney?