Macquarie University Motor Neurone Disease Research Centre

Macquarie University Motor Neurone Disease Research Centre ALS is MND. The Macquarie University MND Research Centre aims to make significant advances in the diagnosis and treatment of MND.

https://www.mq.edu.au/research/research-centres-groups-and-facilities/centres/motor-neuron-disease ALS is MND, also called Lou Gehrigs disease, is a rapidly progressive, terminal neurological disease, with no known cure. The MND field has now reached a level of knowledge/understanding of the disease that its time to establish a collaborative research Centre to pull this knowledge/expertise togeth

er at a national level and focus on making breakthrough discoveries in MND

This has led five teams of laboratory researchers to come together and establish Australia’s first dedicated MND at Macquarie University: Prof Gilles Guillemin, Prof Roger Chung, A/Prof Ian Blair, A/Prof Julie Atkin, Dr Nicholas Cole. This unique model brings together these leading researchers from across Australia to work together in a dedicated collaborative environment. This significantly enhances efforts to understand the causes of MND and develop therapeutic treatments. Our unique model provides a coordinated and systematic scientific approach towards understanding and treating a devastating and ultimately deadly neurodegenerative disease, and will provide the template for future endeavors targeting other diseases. In short, through strong collaboration we are tackling the problem of MND from a variety of different scientific perspectives, to develop new ways of understanding the disease and overcome the roadblocks that have been reached by current research. We want this research Centre to represent all Australian’s who have been touched by MND. MND is not well known in the community and is considered a “silent” disease, because sufferers are unable to tell their story. Our research Centre is an important part of their collective story, and we want to engage patients and their families to make an essential contribution to our research program, and help us achieve our goal of understanding MND and developing treatments for this disease. We would like to thank the MNDRIA, who have been long-time supporters of our individual research programs for a number of years. This support has been instrumental in us reaching this point today. We also wish to thank the Snow Foundation, and MND and Me, the Deb Bailey Foundation for their recent support of our research program. We are excited about leading the next chapter of Australia’s MND story – together with MND patients and their families, our supporters and funders, and our Australian and international collaborators, to make key discoveries in understanding MND and using this information to develop and test treatments. Donate now: http://bit.ly/1nOrNyo

Firies climb for MND. This August (28-29th), join our firefighters as they take on the challenge of the 951 Furber Step...
17/06/2026

Firies climb for MND. This August (28-29th), join our firefighters as they take on the challenge of the 951 Furber Steps at Scenic World, Katoomba — climbing every step in full firefighting gear to raise vital funds for the Motor Neurone Disease Research Centre at Macquarie University.

Registrations are now open, and everyone is welcome to take part. Whether you climb, donate, or cheer from the sidelines, your support will help drive critical MND research and make a real difference. Join us for an unforgettable day in the beautiful Blue Mountains and help support the fight against MND.
https://www.facebook.com/firiesclimbformnd

951 steps. One fight. 🔥

This August, firefighters are suiting up and tackling Furber Steps at Scenic World, Katoomba (in full kit!) to raise funds for Motor Neurone Disease research.

But you don't have to be a Firefighter to be part of it. Sign up as an individual or bring your crew and enter as a team. Do one lap or set yourself a bigger goal... some legends go for the full 24 hours! However you want to show up, there's a place for you here.

🗓️ 28–29 August 2026
📍 Scenic World, Blue Mountains
👣 951 steps down, 951 steps up

One fight. Let's take it on together. 💙

27/05/2026

Sydney Ice Dogs take to the ice for MND
The Sydney Ice Dogs have selected the Macquarie University MND Research Centre as the beneficiary of their two 2026 charity rounds on July 3rd and July 5th. They will donate the proceeds from the weekend’s games, along with proceeds from auctioning off their unique charity jerseys.
The Sydney Ice Dogs are a national ice hockey team competing in the Australian Ice Hockey League. Their home turf is the Macquarie Ice Rink at the Macquarie Centre.
Come along to the game, cheer on the team and help us find a cure.
Perth: https://embed.leapevents.com/event/sidvspt-0307
Mustangs: https://embed.leapevents.com/event/sidvsm-0507
Look Group Sydney Ice Dogs

06/05/2026

ABC Radio National Report: Deaths from Motor Neurone Disease have tripled over 40 years, an interview with Professor Dominic Rowe, who advocates for making motor neurone disease (MND) a notifiable condition in Australia to improve research and care.

https://url4195.isentia.com/ss/c/u001.TUIhJ2BHlt_ACfDFm4Xe_LMvwDz94WVrQJYc7nJuJ_n4Nm_85eSyQRl2SM7HVv2uO1qe7MXIcsR1BJ2678vYNxuP794w0Rlf-SqukkYKSKiu3CtUXrmzfHliaXcaoL6VMgeoAb7uwufL5-MIk4SKPL39xoXk2j9vFWwIjZGfu7Af4spHQ20s_cnjs2vRQq25Q7wiekXoN4wb4--nQYvksXK5mW9Ck9VBp9xcW1JTJwnrCEo-khyvkPOgHeFoBKLQWbh7I5...

Cause2Cure epic event update - Wanda around Australia. Follow their amazing journey:https://www.polarsteps.com/AntheaLem...
06/05/2026

Cause2Cure epic event update - Wanda around Australia.
Follow their amazing journey:
https://www.polarsteps.com/AntheaLema/24631595-wanda-around-australia
Join Anthea and Marc in their motorhome, Wanda, on an epic 2-year lap of Australia. https://www.cause2cure.com.au/
They’ll be collecting stories, meeting communities, and helping spread vital awareness about MND, all in support of Cause2Cure.
Send them off with a wave and a message of luck - we’ll be cheering them on and following every kilometre of the journey.
Safe travels, Anthea and Marc. Let’s go, Wanda!

Visiting country towns & regional centres, meeting people - share your MND story

2026 MND Gala Dinner - register nowhttps://event.mq.edu.au/cmspreview/2026-mnd-galaPlease mark your calendars for Friday...
06/05/2026

2026 MND Gala Dinner - register now
https://event.mq.edu.au/cmspreview/2026-mnd-gala
Please mark your calendars for Friday, 26 June 2026, for a dazzling gala hosted by Professor Dominic Rowe, Professor of Neurology at Macquarie University, in support of the fight against Motor Neuron Disease (MND) at the stunning The Fullerton Hotel Sydney.
For more information, contact: [email protected]

Hike for Carlos and MNDSam Pluis was inspired by her close friend Carlos, who is living with MND, to undertake solo hike...
22/04/2026

Hike for Carlos and MND
Sam Pluis was inspired by her close friend Carlos, who is living with MND, to undertake solo hikes in his honour while raising funds for the MNDRC. Her latest trek took her from Lithgow to Dallis Campground at Glen Davis, with a side hike to the stunning Genowlan Mountain. Carrying a 15kg pack across steep, rugged terrain and facing all weather conditions, Sam covered 110km over six days and five nights.
We look forward to hearing about Sam’s next inspirational adventure.
Support Carlos and MND Research as Sam continues her amazing adventures
https://personalchallenge.gofundraise.com.au/page/samantha-45215817

Concert for MNDTamworth Tennis Club has organised a free concert fundraiser at 5 pm on 10th April. If you are in the are...
25/03/2026

Concert for MND
Tamworth Tennis Club has organised a free concert fundraiser at 5 pm on 10th April. If you are in the area, come along, enjoy the entertainment, and support MND research.

Cause2Cure epic eventThis Saturday (28 March), Anthea and Marc are hitting the road in their motorhome, Wanda — setting ...
24/03/2026

Cause2Cure epic event
This Saturday (28 March), Anthea and Marc are hitting the road in their motorhome, Wanda — setting off on an epic 2-year lap of Australia. https://www.cause2cure.com.au/
They’ll be collecting stories, meeting communities, and helping spread vital awareness about MND, all in support of Cause2Cure.
Send them off with a wave and a message of luck - we’ll be cheering them on and following every kilometre of the journey.
Safe travels, Anthea and Marc. Let’s go, Wanda!

2026 MND Gala DinnerPlease mark your calendars for Friday, 26 June 2026, for a dazzling gala hosted by Professor Dominic...
18/03/2026

2026 MND Gala Dinner
Please mark your calendars for Friday, 26 June 2026, for a dazzling gala hosted by Professor Dominic Rowe, Professor of Neurology at Macquarie University, in support of the fight against Motor Neuron Disease (MND) at the stunning The Fullerton Hotel Sydney. Registrations open soon. For more information, contact: [email protected]

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