Fragile X Association of Australia

25/06/2026

Adelaide Disability Expo! We have a booth on Friday 26 & Saturday 27th. Looking forward to meeting families with a FX connection and service providers who support children or adults with Fragile X syndrome.
If you get to the Expo drop by our table and say Hi to Liz, our Family Counsellor. Find us at Booth SB09.

-2803

24/06/2026

Adelaide Disability Expo this weekend. We'll be there! If you get to the Expo drop by our table and say Hi to our Family Counsellor Liz. You'll find us on Booth SB09 🧡

It's a great showcase of products, services and information for people with disability and their families, carers and supporters.

📍ADELAIDE SHOWGROUNDS
📅 FRIDAY 26 & SAT 27 JUNE
🕑 9AM-3PM BOTH DAYS

Adelaide Disability & WorkAbility Expo

22/06/2026

Planning for the future for a family member with disability - what do you need to know about Guardianship & Administration in Victoria? Join us on zoom for a LIVE (only) presentation and Q&A with Margaret Duncan, Principal Lawyer at Duncan Legal.
Registration link in comments.

20/06/2026

GP Education Day in Perth, profiling women's health and the Fragile X premutation, as well as reproductive genetic carrier screening for FX, CF and SMA.

Grateful for genetic counsellor Sarah and Master of Genetic Counselling student Grace volunteering with us today 🧡 Wonderful to have them share knowledge of local supports and services which are helpful to GPs having conversations with patients about carrier screening and Fragile X.

Around 1,000 health professionals here today. Busy!!

Healthed

19/06/2026

📅Coming up in July
👀 OUR ANNUAL RESEARCH ROUNDUP, featuring
🔆KATIE CLAPP co-founder of FRAXA Research Foundation - sharing a perspective on early stage research and clinical trials in Fragile X syndrome
🔆 DR DAVID HESSL from UC Davis MIND Institute in the US - sharing an update on the International Fragile X Premutation Registry - a resource to advance knowledge and support research

👀 SENSORY PROCESSING & FRAGILE X SYNDROME
🔆Occupational Therapist BEV KADISH - talking about the sensory sensitivities commonly experienced by people with Fragile X syndrome. And how a "sensory diet" - a personalised plan of sensory activities - can help individuals better regulate their sensory systems and improve focus & attention. Bev will share practical strategies which can support sensory processing difficulties.

📍LIVE on Zoom. LATER on youtube
🔗In Bio

FRAXA Research Foundation
Write Start Occupational Therapy

18/06/2026

What you need to know about Guardianship and Administration for a person with disability in VICTORIA.

Join us LIVE for the final session in our 3-part series on Planning for the Future for a Person with Disability, presented by lawyer Margaret Duncan.
Covering:
* Decision Making - Fundamental Human Right
* Substituted v. Supported Decision Making
* Definitions of Guardianship & Administration
* Capacity
* Reasons to seek a Guardianship and/or Administration Order
* Medical Decisions
* Detailed discussion on VCAT (Victorian Civil and Administrative Tribunal) - Applications, Hearings, Deliberations, Orders & Powers, VCAT Roles, Duties, Breaches, Reporting & Duration.

👀 LIVE ONLY (on Zoom)
📋 Tuesday 23 June 7pm AEST
🔗 In Comments

17/06/2026

Perth this weekend! Looking forward to conversations with GPs about health considerations for women who are carriers for Fragile X and about the carrier screening test for FX, cystic fibrosis and spinal muscular atrophy.

17/06/2026

Adelaide Disability Expo on in 2 weeks. We'll be there! If you get to the Expo drop by our table and say Hi to our Family Counsellor Liz. You'll find us on Booth SB09 🧡
It's a great showcase of products, services and information for people with disability and their families, carers and supporters.

📍ADELAIDE SHOWGROUNDS
📅 FRIDAY 26 & SAT 27 JUNE
🕑 9AM-3PM BOTH DAYS

13/06/2026

Join us LIVE for the final session in our 3-part series on Planning for the Future for a Person with Disability, presented by lawyer Margaret Duncan. In this webinar Marg covers what you need to know about Guardianship and Administration in VICTORIA (only).
Topics will include:
* Decision Making - Fundamental Human Right
* Substituted v. Supported Decision Making
* Definitions of Guardianship & Administration
* Capacity
* Reasons to seek a Guardianship and/or Administration Order
* Medical Decisions
* Detailed discussion on VCAT (Victorian Civil and Administrative Tribunal) - Applications, Hearings, Deliberations, Orders & Powers, VCAT Roles, Duties, Breaches, Reporting & Duration.

👀 LIVE ONLY
📋 Tuesday 23 June 7pm AEST
📍Live on Zoom
🔗In Comments

06/06/2026

Brilliant morning! With a sneak peek at Melissa's new book about Oli who has Fragile X syndrome 🧡