FSHD-Global Research Foundation

02/10/2026

We are thrilled to announce that Doltone House is a Platinum Sponsor for this year's Sydney Chocolate Ball! Thank you, Doltone House, for your generous support.

https://www.sydneychocolateball.com.au/2026-sponsors

02/10/2026

Ready to ditch boredom for the surfboard? The Club Wyndham Corporate Surf Challenge is coming 4 December! Sponsorship packages and further information available here: https://fshdglobal.org/club-wyndham-surf-challenge/

It's not only an epic event but also all for a good cause - funds raised go to FSHD Global Research Foundation, helping us give life to muscles!

01/10/2026

Huge news for all of us who love My Muscle Chef: $1 from every My Muscle Chef order will be donated to FSHD Global Research Foundation during the month of October (1-31 October 2026)! Because everyone needs healthy muscles!

Our thanks to My Muscle Chef for this, their second year of support and helping us give life to muscles!

Order here: https://www.mymusclechef.com/

01/10/2026

We welcome Morrison Securities as a Diamond Sponsor for this year's Sydney Chocolate Ball! Thank you for helping to make our Mission Possible.

30/09/2026

Boston Global Group is generously supporting the 15th Annual Sydney Chocolate Ball as a Diamond Sponsor this year - thank you!

30/09/2026

What an exciting milestone for the FSHD community! 💪🧡
A huge congratulations to Foundation and on the FDA clearance of the IND application for forazapadin — an important step towards clinical development of a potential treatment for people living with FSHD.

FSHD Global is proud to have supported this program, thrilled to see this progress, and especially excited to recognise the role of FSHD Canada Foundation in supporting Satellos through non-dilutive financing to help advance this work.
Progress like this doesn’t happen overnight. It takes years of research, collaboration, investment and determination to move a potential treatment from the laboratory towards clinical trials.

This is exactly why the global FSHD community needs organisations working together — supporting great science, helping promising therapies progress and making sure the momentum never stops.

From all of us at FSHD Global, we’re excited to watch this next stage unfold and to keep working alongside our global FSHD community towards a future with treatments — and ultimately a cure.

Read more: https://ir.satellos.com/news/news-details/2026/Satellos-Announces-FDA-Clearance-of-IND-Application-for-Forazapadin-in-Facioscapulohumeral-Muscular-Dystrophy-FSHD-and-a-Partnership-with-FSHD-Canada-Foundation-Providing-Non-Dilutive-Financing-to-Support-Clinical-Development/default.aspx

30/09/2026

Today is the last day of our September Squat Challenge! Thank you to everyone who participated or donated 🥰. You've helped raise awareness and funds for research that will one day make a cure for FSHD, and muscle regeneration for all, a reality. But there's still time to get those last donations in and smash your squat goals! Finish strong FSHD champions 💪!
https://www.givinglifetomuscles.org/event/squat-challenge/home

29/09/2026

Our thanks to Sydney Chocolate Ball Diamond Sponsors, David Mackay & Michelle Mackay, for their continued dedication to FSHD Global Research Foundation and for their help making this milestone event possible!

28/09/2026

Our thanks to Diamond Sponsor Babak Moini for helping to bring you our 15th Annual Sydney Chocolate Ball on 24th October!

28/09/2026

A new DNA test developed in Sydney at the Garvan Institute with research supported by FSHD Global can identify the genetic causes of inherited muscle disease in a single test, replacing a patchwork of older tests that leaves many patients undiagnosed. Special congratulations to Dr Kishore Raj Kumar of the Garvan Institute who is a corresponding author on the publication in Nature Communications and also a member of our Scientific Advisory Board. Read more here:

A world-first test developed by researchers at the Garvan Institute of Medical Research has identified the genetic cause of inherited muscle disease in people who remained without answers after years, sometimes decades, of standard testing.