FSHD-Global Research Foundation

25/08/2026

Elevate your style with purpose this Father's Day! Montagio believes that luxury and philanthropy should go hand in hand, which is why they support FSHD Global. Purchase the Limited Edition FSHD Bow Tie: It's the perfect accessory for a formal evening or celebration and makes a memorable Father's Day gift!

This silk bow tie is handcrafted and adorned with a cleverly concealed FSHD logo as a reminder of the vital cause you are helping to support.

100% Silk | 100% of proceeds to FSHD Global Research Foundation
Order today for delivery in time!

https://fshdglobal.org/how-you-can-help/bow-tie/

24/08/2026

We only have a few spots left, so now is the time to sign up and grab your 𝗳𝗿𝗲𝗲 𝘁𝗶𝗰𝗸𝗲𝘁 to the Bulldog's game next week on 𝗧𝗵𝘂𝗿𝘀𝗱𝗮𝘆 𝟯 𝗦𝗲𝗽𝘁𝗲𝗺𝗯𝗲𝗿 (6:30PM) and show your support for FSHD Global by taking part in 𝗔𝘂𝘀𝘁𝗿𝗮𝗹𝗶𝗮'𝘀 𝗹𝗮𝗿𝗴𝗲𝘀𝘁 𝘀𝗾𝘂𝗮𝘁 𝗰𝗵𝗮𝗹𝗹𝗲𝗻𝗴𝗲!

Provide your t-shirt size when registering, and closer to the date we'll send information on where to meet near Accor stadium to collect your ticket and FSHD Global gear to wear during the half-time squat challenge. Sign up here: https://bit.ly/fshdsquat

19/08/2026

Happy ! We're excited to share another step towards better treatments for FSHD 💪!

FSHD Global Research Foundation has invested in ArmatusBio, a US-based biotech developing precision RNA therapies for neuromuscular disorders.
Their lead therapy, ARM-201, targets DUX4 — the primary driver of FSHD. Preclinical studies have shown promising results, including effective silencing of DUX4 and improvements in neuromotor function.

Armatus Bio is now scaling towards clinical studies — and we’re proud to support this next stage of development.

FSHD Global backs multiple scientific approaches because we know there is unlikely to be one solution for everyone living with FSHD. More research = More approaches = More hope for the FSHD community!

Read more: https://fshdglobal.org/fshd-global-research-foundation-is-investing-in-the-future-of-fshd-treatment-funding-for-armatus-bio-precision-mirna-therapy/

18/08/2026

Get in quick! Places are filling up! Sign up here: https://bit.ly/4hGnYyP

𝗛𝗲𝗹𝗽 𝘂𝘀 𝗶𝗻𝘀𝗽𝗶𝗿𝗲 𝗮 𝗽𝗮𝗰𝗸𝗲𝗱 𝗔𝗰𝗰𝗼𝗿 𝘀𝘁𝗮𝗱𝗶𝘂𝗺 𝘁𝗼 '𝗨𝘀𝗲 𝗬𝗼𝘂𝗿 𝗠𝘂𝘀𝗰𝗹𝗲𝘀 𝗳𝗼𝗿 𝗧𝗵𝗼𝘀𝗲 𝗪𝗵𝗼 𝗖𝗮𝗻'𝘁'!

FSHD Global Research Foundation is excited to announce we are the Official Match Day Partner for the Canterbury-Bankstown Bulldogs' home clash against the Brisbane Broncos at Accor Stadium in Sydney on Thursday, 3 September!

Join us as we launch the re-imagined Squat Challenge at half time. You will be part of something spectacular - joining 100 supporters on the field during half time to squat and use your muscles for those who can't.

This mass squat challenge, joined by Bulldogs mascots, cheerleaders, special guests, and a packed Accor stadium helps raise awareness of the 3,000 Australians living with facioscapulohumeral muscular dystrophy (FSHD).

We need NRL fans, schoolchildren, anyone who can do a squat to use their for those who can’t and help us raise awareness for muscular dystrophy!

S̲i̲g̲n̲ ̲U̲p̲ ̲t̲o̲ ̲b̲e̲ ̲a̲ ̲S̲q̲u̲a̲t̲t̲e̲r̲

1. Receive a free ticket to the Bulldogs v Broncos game at Accor Stadium on Thursday 3 September
2. Go onto the field at half time to participate in Australia’s largest squat challenge
3. You will need to do squats for 1 minute along with 100 other participants on the field and inspire a stadium full of spectators
4. Receive an FSHD Global t-shirt and hat!

Sign up here: https://docs.google.com/forms/d/e/1FAIpQLScCPbSKB10ctwKkEkeys2KL5zsI4FChWOvwvynQBktdFrxt8w/viewform

11/08/2026

𝗛𝗲𝗹𝗽 𝘂𝘀 𝗶𝗻𝘀𝗽𝗶𝗿𝗲 𝗮 𝗽𝗮𝗰𝗸𝗲𝗱 𝗔𝗰𝗰𝗼𝗿 𝘀𝘁𝗮𝗱𝗶𝘂𝗺 𝘁𝗼 '𝗨𝘀𝗲 𝗬𝗼𝘂𝗿 𝗠𝘂𝘀𝗰𝗹𝗲𝘀 𝗳𝗼𝗿 𝗧𝗵𝗼𝘀𝗲 𝗪𝗵𝗼 𝗖𝗮𝗻'𝘁'!

FSHD Global Research Foundation is excited to announce we are the Official Match Day Partner for the Canterbury-Bankstown Bulldogs' home clash against the Brisbane Broncos at Accor Stadium in Sydney on Thursday, 3 September!

Join us as we launch the re-imagined Squat Challenge at half time. You will be part of something spectacular - joining 100 supporters on the field during half time to squat and use your muscles for those who can't.

This mass squat challenge, joined by Bulldogs mascots, cheerleaders, special guests, and a packed Accor stadium helps raise awareness of the 3,000 Australians living with facioscapulohumeral muscular dystrophy (FSHD).

We need NRL fans, schoolchildren, anyone who can do a squat to use their for those who can’t and help us raise awareness for muscular dystrophy!

S̲i̲g̲n̲ ̲U̲p̲ ̲t̲o̲ ̲b̲e̲ ̲a̲ ̲S̲q̲u̲a̲t̲t̲e̲r̲

1. Receive a free ticket to the Bulldogs v Broncos game at Accor Stadium on Thursday 3 September
2. Go onto the field at half time to participate in Australia’s largest squat challenge
3. You will need to do squats for 1 minute along with 100 other participants on the field and inspire a stadium full of spectators
4. Receive an FSHD Global t-shirt and hat!

Sign up here: https://docs.google.com/forms/d/e/1FAIpQLScCPbSKB10ctwKkEkeys2KL5zsI4FChWOvwvynQBktdFrxt8w/viewform

08/08/2026

Join us at the Sydney Chocolate Ball for an explosive night of entertainment and show of support to help make our mission possible! We can cure FSHD muscular dystrophy with your support. Learn more: https://www.sydneychocolateball.com.au

08/08/2026

𝗠𝗜𝗦𝗦𝗜𝗢𝗡 𝕀̶𝕄̶𝗣𝗢𝗦𝗦𝗜𝗕𝗟𝗘: Join us for the 15th Annual Sydney Chocolate Ball on Saturday 24th October 2026 to for an unmissable event!
It will be a night like no other, with fine food, exciting entertainment, and endless chocolate!

Guests will be greeted by MC Sonia Kruger and indulge in a chocolate-inspired three-course menu designed by Celebrity Chef Luke Mangan OAM, paired with fine French champagne provided by Moet Hennessy Australia, premium wines and unforgettable entertainment — all in support of the FSHD Global Research Foundation.

FSHD Global Research Foundation is giving life to muscles by funding the research, clinical trial infrastructure, and patient programs needed to bring new therapies to people living with FSHD muscular dystrophy as quickly as possible. With your support, we can make the impossible possible.

Get your tickets here: https://www.sydneychocolateball.com.au/ (link in bio)

06/08/2026

We are thrilled to announce that the Master of Ceremonies for our unmissable 15th Annual Sydney Chocolate Ball will be Sonia Kruger!

Sonia Kruger is one of Australia’s most recognised television personalities. An accomplished presenter, actress, dancer and interviewer, she has enjoyed an outstanding career spanning television, live events and feature film, becoming one of the country’s most familiar faces. A Gold Logie winner, Sonia is currently the host of The Voice Australia and Dancing With the Stars.

It is a pleasure to be working with Sonia on this year’s event and bringing her phenomenal star power and energy to what promises to be a high-octane evening!
Your Mission: Get your tickets for Saturday 24 October now! https://www.sydneychocolateball.com.au/

04/08/2026

Looking for more information on how the World FSHD Alliance member organisations and the wider FSHD community are working to speed up clinical trials globally? You can now watch the presentation from FSHD Global's Emma Weatherley on Project Mercury here: https://youtu.be/0W-ptcjKp_I

Our thanks to FSHD Society for the opportunity to be a part of their FSHD University webinar program.

31/07/2026

Cheering on FSHD Global Research Foundation for Outstanding Rare Disease Organisation, sponsored by Delta Advisory at the Patient's Choice Awards 2026. Vote now: https://judginghub.com/en/events/PAA20/participants?participant=5687

Australia Australia Advisory