Goldie's Voice

25/08/2026

April 2022 🥰

24/08/2026

First infusion to treat her osteoporosis.
Entering the ward, Goldie’s eyes so questioning me. No way, not here. Why are we here?!
It’s ok Goldie, we aren’t staying. Just some medicine to help strengthen your bones.
Not long after, asleep. Bored and probably thinking she’ll sleep til it’s time to leave.
Afterwards, of course she threw a little trickster. High blood pressure. 4-5 times taken and kept going up n up n up.
Hoisted onto a bed, stretched out (I was suggesting she has been in her chair much longer than any day/time since surgeries).
Down, down, down, discharged 🙌🏼

23/08/2026

The little sweetheart on the left, Charlotte, gained her Angel wings, 5 years ago today.

Reflecting on her teachings to us.
Grateful to have met her and spent a little time with. So much character!

To the young lady, back row, right.
Happy 18th birthday for today. Best wishes for you!

Tomorrow isn’t guaranteed.
Live for the now and stay super kind and loving, to all 🤍

Late yesterday i learnt of one of our inspirations flying into the heavens above. When i first met her, she stole my heart & made me want to try harder in life. She was no ordinary girl, she was extraordinary. Now her families guardian Angel and i believe she will protect them fiercely as they did her.
Charlotte, pictured bottom left, we love you and will think of you forever 🙏😇

21/08/2026

Guess What Goldie?
We are leaving the house again (3rd time in three and a half months).
Let’s go! 👏🏻

Featherdale Wildlife Park ~ Australian animals for you folk overseas

19/08/2026

Teenager hanging out at Timezone for an hour.
No pain episode (July 25 took her out for the first time since the surgeries and it was cut short due to severe pain/discomfort episode -had to rush her home to stretch out snd flap about on her bed).
She does handle getting out regularly to the local park but it’s like the ‘safe’ option, being so close to home.
Lollies loot to give her brothers!
Very happy with today Goldie, even if it was just for an hour. Bit of normality.
👏🏻 🕹️💳🧸

12/08/2026

Still unable to sit in her chair for lengthy periods.
Around 3pm today I asked Goldie if she would like to get up, out of bed and sit in her chair again (she’d been out earlier).
She looked at her device, said “no, hurt.”
Turned her head away, put her arms over her face, closed her eyes and took a nap.
Teenager!
Great communication too!
(Slow, slow - but, she is learning the fifty billion symbols and what word they are).

09/08/2026

Thank the lord for Magic Kathy.
Her parents must be incredibly proud.
Definitely watching over her and all of her ‘people.’ 🥰

Praying with all of my soul this girl weight bares again one day and walks -assisted.

My heart has shattered into a million pieces for those of you with non mobile children/person in your care.
Huge, long, sending energy, hug.

I don’t break, but so close recently.
It’s almost unbearable.
Bed, chair, bed, bed, bed, chair.

How she smiles through it. I do not know.
I smile to reassure her. Lift her and push her forward but inside aches.
Her smile, genuine and so bloody contagious. Guess she carries me through.
Angel 😇
Messenger from above, 💯

02/08/2026

10 shots of playtime when there is little life. Meaning, spontaneous, fun, adventurous times. (Although every support we have is valued and the best of… difficult to go too far with only limited time in the wheelchair still and worrying about where to change, hoisting, change table etc).
Ground hog day for months now.
The review on Thursday was, “see you in another six weeks, due to her condition, we cannot treat her like a typical person. The osteoporosis severity ads high risks.”
Gah! Grrr… Big cry actually.
But, these moments…. Thank whoever for nursery rhymes and her Nanna for finding these simple, entertaining to Goldie, toys. ❤️





****it

26/07/2026

Gah! Appointment with orthopaedics tomorrow (Monday) cancelled by them as they realised we will be in on Thursday for two appointments.
Let’s do it all in one day.
Makes sense, so now it’s back to 4 more days until we hopefully move forward.
Her bloody smile, contagious and helps me push through such a s**t ordeal, hard yakka life (sorry, but it’s true - doesn’t change my love for her or life).

24/07/2026

Kissing bubbles!
6 more days before xray and hopefully the best possible result which gives us a plan to rehabilitate.
You’re amazing Goldie.
No way I’d be smiling these past 11 weeks.