Mito Foundation

30/10/2026

Can’t join us in Brisbane? You can still be part of the Mito Community Summit 2026 from wherever you are. 💚

Registrations are now open for the Summit livestream giving you the opportunity to:

• Hear from leading mito experts
• Learn about the latest research, treatments and support
• Connect with the mito community
• Be part of important conversations about the future of mito

View the program and register for the livestream:
https://www.mito.org.au/mito-community-summit-online-register/

We’d love to have you join us online!



[Image description: Green Mito Foundation graphic promoting the Mito Community Summit livestream. White text reads, “Join the Mito Community Summit from anywhere. Livestream registrations are now open.” Below is an image of a laptop showing Summit attendees seated at an in-person session, with one attendee holding a microphone. The white Mito Foundation logo appears at the bottom.]

29/10/2026

Today, we’re shining a light on the teachers who make a difference every day. 💚

For children living with mito, teachers play an important role in helping them feel understood, included and supported at school.

Our free Mito 4 Kids program provides resources to help teachers, parents and students in Years K–6 better understand mito and support children in the classroom.

Explore the resources: https://www.mito.org.au/school-education/



[Image description: A smiling teacher sits in a colourful classroom holding an open book. Text across the image reads “World Teacher’s Day”, with the Mito Foundation logo below. Green graphic elements frame the image.]

26/10/2026

📣 Help shape the new NDIS Support Needs Assessment

The NDIA is looking for adults with rare disease disability, including people with mito, and their NDIS plan nominees to help test the new assessment before it begins in April 2027.

✅ Help test the new assessment
✅ Help train future NDIA assessors
✅ Receive $200 per activity if selected
✅ No impact on your current NDIS plan, funding or budget

Your participation can help ensure the needs of people living with mito are represented in the testing process.

👉 Learn more and register through Rare Voices Australia: https://rarevoices.org.au/help-shape-the-new-ndis-support-needs-assessment/



[Image description: Mito Foundation graphic showing hands typing on a laptop. Text reads: “Help shape the new NDIS Support Needs Assessment” and “Paid testing opportunity for adults with rare disease disability and NDIS plan nominees.]

23/10/2026

Impacted by Leber hereditary optic neuropathy (LHON)? Have your say in this global forum.

When: Monday 16 November, 11:00 pm AEDT (Sydney/Melbourne), 10:30 pm Adelaide, 10:00 pm Brisbane, 9:30 pm Darwin, 8:00 pm Perth.

LHON Forum
Living with LHON? Your experience matters.
What resources would help you in everyday life? Which improvements to your quality of life would make the biggest difference?
Join IMP’s LHON Patient Forum on 16 November 2026 at 13:00 CET for a 90-minute discussion with people living with LHON from around the world. Sighted supporters are welcome.
By sharing your lived experience, you can help:
• Shape a technical aid toolkit for people living with LHON.
• Identify the quality-of-life improvements that matter most to you.
• Inform a framework for identifying meaningful outcomes for people with LHON and support a future publication.
Your perspective can help ensure this work reflects what matters in everyday life. We would love to hear from you.
Translation/interpretation will be available in a number of languages. Please tell us what you need on the registration form.
Register by Monday, 2 November 2026 so we have time to arrange language support and other logistics.
Register here:
https://docs.google.com/forms/d/e/1FAIpQLSevWaI_CgSpMnrp2dEPLjJ_N_b7SsTRT3FP7l9D4RIagChnEQ/viewform
The LHON Forum is organised by International Mito Patients (IMP) with the support of Chiesi Global Rare Diseases.


Alt Text for graphic
LHON Patient Forum. Your experience matters. Share what matters most to you. 16 November 2026 at 13:00 CET. Translation available. Registration link in post. Illustration of four people talking, with speech bubbles above them. International Mito Patients (IMP) logo at the bottom.

Chamber of Commerce: NL53416104
IMP c/o Lt. Gen. van Heutszlaan 6
3743 JN Baarn, The Netherlands

23/10/2026

⏰ Last chance to join us in Brisbane!

In-person registrations for the Mito Community Summit 2026 close next Friday, 30 October.

Join us on 28–29 November for two days of learning, conversation and connection with the mito community.

Need support to attend? Travel grant applications also close 30 October and may help with travel, accommodation, accessibility hire and registration costs.

We hope to see you there.

Register now: https://www.mito.org.au/mito_community_summit



[Image description: Green Mito Foundation graphic featuring a testimonial from a previous Mito Community Summit attendee about gaining knowledge to manage their disease and connecting with people who understand the lived experience of mito. A pink panel highlights that this is the last chance to join the Summit in Brisbane, with in-person registrations closing 30 October. The Summit takes place 28–29 November 2026 in Brisbane.]

21/10/2026

Celebrating an incredible fundraising milestone for Team Dot - Shaw and Partners! 💫

This weekend at The Bloody Long Walk Adelaide, we were thrilled to recognise Team Dot - Shaw and Partners for raising more than $350,000 in support of Mito Foundation, with the continued support of the Shaw and Partners Foundation.

Over 8 years, Team Dot - Shaw and Partners has walked, fundraised and rallied their community in honour of Dot Georgiou and everyone impacted by mitochondrial disease.

Dot’s mum Suzie Georgiou, a proud Shaw and Partners employee, is the heart of Team Dot - Shaw and Partners. The team's incredible commitment continues to raise vital funds and awareness for mito.

A huge thank you to Team Dot, the Shaw and Partners Foundation and every person who has walked, donated and supported their efforts along the way.

16/10/2026

🌎 Register for the global POLG EL-PFDD meeting on Sunday 18 November 2026 02:00 AM AEST.

POLG is a mitochondrial disorder caused by mutations in the POLG gene.

💙 Registration is now open for the POLG EL-PFDD meeting!

IMP invites you to this important Externally Led Patient-Focused Drug Development (EL-PFDD) meeting alongside MitoAction, the POLG Foundation and UMDF.

📅 17 November 2026

The meeting focuses on POLG and is relevant to the wider international mitochondrial disease community too. Everyone is welcome, including people living with mito, families, caregivers, clinicians, researchers and industry partners.

Please help us spread the word by sharing this invitation with your community and encouraging others to join. 🌍

🔗 Register here: https://mitoaction-org.zoom.us/webinar/register/WN_GX3iFfxESiqNMRzGcBQQ0A

We look forward to seeing you there!

14/10/2026

New prizes added! Have your say in the Mito Community Survey for a chance to win 🎁

2x $200 Coles gift cards
5x double registrations to the 2027 Bloody Long Walk
5x double registrations to the 2027 Mito Community Summit
5x $50 gift cards

If you’re over 16, in Australia and have a connection to mito, we’d love to hear from you. 👉 Complete the survey: https://morestrategic.qualtrics.com/jfe/form/SV_0H9OUSSSynWYnoq

Your feedback will help us understand what’s working, where more support is needed and where you think we should focus our efforts in the years ahead.

Prize draw terms and conditions apply. See full terms, including entry requirements and prize draw details: https://www.mito.org.au/mito-community-survey-2026-terms-and-conditions/

07/10/2026

🔔 An update for our mito community

The PRIZM trial conducted by Tisento Therapeutics testing zagociguat in adults with mitochondrial encephalomyopathy, lactic acidosis, and stroke-like episodes (MELAS) has been discontinued. Unfortunately, zagociguat did not show a treatment benefit compared with placebo on any of the trial's measures.

Tisento Therapeutics will stop developing zagociguat and the open-label extension study will also close. No safety concerns have been reported. Learn more about the PRIZM trial: https://www.mito.org.au/mito-therapies/zagociguat-melas/

We know participants and families invest a lot of time, energy and hope in clinical trials. This news may bring disappointment, sadness or a mix of feelings. People across our mito community may also feel its impact.

Our Helpline team is here to listen, answer questions and offer support. You can call us on 1300 977 180 or fill out a webform and our team will contact you: https://www.mito.org.au/helpline/

Every clinical trial helps scientists learn, even when the results aren’t what was hoped for. We recognise that this learning does not take away the disappointment that is shared by the Mito Foundation and Tisento Therapeutics.

Tisento Therapeutics is sharing study findings in a community webinar, co-hosted by mito organisations around the world.

Presenters will explain what has happened and share the latest information. A live question and answer session will follow. Participants, families and community members can ask the panel questions. A recording will be made available afterward.

📅 Friday 9 October 2026
🕙 10 am AEDT

Register: https://mitoaction-org.zoom.us/webinar/register/WN_78MMESJ_Rtu8jzLfaWwGLw #/registration

Tisento Therapeutics International Mito Patients The Lily Foundation Mitoaction MitoCanada - Insieme per lo Studio e la Cura delle Malattie Mitocondriali ODV Mitochondrial Disease Foundation (UMDF)

06/10/2026

💚 Win big while supporting the mito community!

The ASX Refinitiv Charity Foundation Raffle is now open with $29,938 worth of prizes up for grabs. Proceeds support charities including the Mito Foundation.

Tickets start from just $20 giving you the chance to win:

🚗 Brand new MG ZS Excite — valued at $26,990
💻 MacBook Air — valued at $2,099
⌚ Apple Watch Series 11 — valued at $849

Every ticket helps raise vital funds to support people and families impacted by mitochondrial disease. 💚

Get your tickets: https://www.asxrcfau.com/console/rafflepages/9/Mito-Foundation

Sales close midnight Friday, 5 March 2027.