Mito Foundation

27/08/2026

🎧 New MitoCast episode: Understanding Autosomal Dominant Optic Atrophy (ADOA)

ADOA is a rare inherited condition that affects the optic nerves and is one of at least 350 known types of mitochondrial disease.

In this episode, we explore:
👁️ How ADOA affects vision
🧬 The role of the OPA1 gene and inheritance
🩺 How ADOA is diagnosed
💚 ADOA plus and additional symptoms some people may experience
🔬 Current research and ongoing support

🎧 Listen now: https://open.spotify.com/episode/1YHpVfqIYrHqrHucR8tUYu?si=PX7sSp-UQVaLb4ozLehklg

This episode has been created using Mito Foundation resources.

Get support: 1300 977 180 or mito.org.au



[Image description: Graphic for the latest MitoCast episode featuring the text “Listen Now” and “Let’s talk ADOA – Season 3, Episode 8” within a bright green music player illustration, alongside the MitoCast by Mito Foundation logo, microphone, headphones and playback controls.]

26/08/2026

26/08/2026

Calling all Mornington Peninsula friends! 💚

We need some bloody brilliant volunteers for Sunday 25 October.

Our volunteers are vital to the success of The Bloody Long Walk events. They assist with registrations, event operations, logistics, and traffic marshalling to get our walkers across the finish line!

If you’re participating in the walk, why not invite your friends and family to cheer you on from a front-row spot?

Click here for more info and please share it with your network!

https://www.bloodylongwalk.com.au/mornington-peninsula/volunteer/

26/08/2026

Woo hoo Sydney East! 🙌

The Bloody Long Walk Sydney East entries are now OPEN! Register now to SAVE $45 from your entry fee!

But hurry, because this special discount ends soon.

Are you up for it?

https://www.bloodylongwalk.com.au/sydney-east/

26/08/2026

Researchers at UNSW are inviting teenagers aged 12–18 years who have a sibling with mito and/or another long-term health condition to take part in a research study.

The study is exploring how siblings of children and young people with long-term health conditions find information and support, including how they use social media and AI tools such as ChatGPT.

✅ 10-minute online, anonymous survey
✅ Open to eligible teens living in Australia
✅ Chance to win 1 of 2 $50 gift cards

Siblings’ experiences are often overlooked, and this research aims to better understand how they can be supported. If you know a family who may be interested, please consider sharing this opportunity.

🔗 Survey: https://unsw.au1.qualtrics.com/jfe/form/SV_cSErpUbE0BSGBj8

📩 Questions? Contact Maddison Smith at [email protected]

This research is being conducted by researchers from UNSW Sydney. Mito Foundation is sharing this opportunity to help connect eligible families with research that may be of interest.

[Image description: A graphic on a textured green background features the text, “Calling teens in Australia with a brother or sister who has mito or another long term health condition.” Below the text are illustrations of two teenagers, a boy in a blue hoodie and a girl in a pink jacket, standing back-to-back. The Mito Foundation logo appears in the bottom left corner.]

23/08/2026

Save the date for Light Up for Mito on 19 September 2026.

Around the world, landmarks, buildings, homes, workplaces, and communities will shine green to raise awareness of mitochondrial disease.

You don't need to light up a landmark to take part. You can:
🟢 Light up your home with a green light
🟢 Use our virtual backgrounds and social media assets
🟢 Wear green and share your support online
🟢 Encourage your workplace, school, or local landmark to join
🟢 Add your Light Up activity to the Global Mito Map

Download the free Light Up for Mito Toolkit for ideas, editable resources, and everything you need to get involved.

Learn more at www.mitopatients.org/light-up-for-mito/

20/08/2026

Living with mitochondrial disease often means keeping track of a lot of important health information. The new MitoPlan helps keep it all in one place, making it easier to prepare for appointments and share key information with your healthcare team.

💚 Download the MitoPlan
💚 Read the instructions
💚 Register to provide feedback

🔗 Find out more: https://www.mito.org.au/mito-plan/

Developed by the Australian Institute of Health Innovation at Macquarie University in collaboration with adults living with mito and healthcare professionals, with funding from Mito Foundation.

Use the MitoPlan and share your feedback, with gift vouchers offered in recognition of your time.

The MitoPlan provides general information and is not a replacement for advice from your healthcare team.

[Image description: A graphic for the MitoPlan featuring the headline, “Supporting Conversations About Your Care.” A healthcare professional holds a tablet displaying the MitoPlan during a consultation. The Mito Foundation logo appears in the bottom right corner.]

19/08/2026

Recently, Mito Foundation CEO Sean Murray and Advocacy and Engagement Manager Clare Stuart represented the mito community at the Senate inquiry into the NDIS Amendment Bill 2026, ensuring the voices of people living with mito were heard throughout the reform process.

The Bill has now passed the Senate. While important changes were made during the parliamentary process, concerns remain for people living with rare, progressive, fluctuating and energy-limiting conditions. The reforms will also be introduced in stages, with many of the details still to be developed.

We’ll continue advocating to help ensure the needs of the mito community are recognised as these reforms are implemented.

Read more about what the changes could mean for people living with mito: https://www.mito.org.au/ndis-reforms-2026-mito-foundation/

[Image description: A graphic with the heading “NDIS Reform Bill Passes the Senate: What It Means for the Mito Community.” Below are screenshots of Mito Foundation CEO Sean Murray and Advocacy and Engagement Manager Clare Stuart giving evidence via video link at a Senate inquiry. The Mito Foundation logo appears in the bottom right corner.]

19/08/2026

Attention Adelaide!

We need some bloody brilliant volunteers for Sunday 18 October.

Our volunteers are vital to the success of The Bloody Long Walk events. Roles include checking in participants, handing out snacks and water at checkpoints, or cheering on the walkers as part of our 'Woo Crew.’

It’s a bloody great time! 🙌😊

If you’re participating in the walk, why not invite your friends and family to cheer you on from a front-row spot?

Click here for more info and please share it with your network!

https://www.bloodylongwalk.com.au/adelaide/volunteer/