Mito Foundation

04/06/2026

🧠 June is Migraine Awareness Month

Did you know that migraines are frequently observed in people with mitochondrial disorders?

💚 This Migraine Awareness Month, we aim to raise awareness about the lesser-known symptoms of mito and advocate for increased understanding, research, and support.

If you want to learn more, we have resources available to support you every step of the way.

🔗The Australian Patient Care Standards include information on migraine as a symptom of mito and are designed to help guide meaningful conversations with your doctor.

Learn more: https://www.mito.org.au/care-standards-for-mito/ 💚



[Image description: A Mito Foundation graphic recognising Migraine Awareness Month. The image shows a person seated indoors with their head resting on one hand, appearing to experience a headache or migraine. A red highlight is overlaid on their forehead to represent pain. Text at the top reads: “June is Migraine Awareness Month.” The Mito Foundation logo appears in the lower left corner, with green branded graphic elements framing the image.]

02/06/2026

Newcastle! Let’s do this! Entries are now OPEN for The Bloody Long Walk Newcastle!

Don’t miss out on our Bloody Great Price! The $45 discount ends soon.

http://www.bloodylongwalk.com.au/newcastle/

02/06/2026

Hey, amazing friends in Sydney! We need volunteers to help us make a difference!

If you or someone you know has a few hours to spare, join our awesome 'Woo Crew for the Sydney North event!

Volunteers help with registrations, manning check points, or cheering on the walkers.

To sign up click https://www.bloodylongwalk.com.au/sydney-north/volunteer/

02/06/2026

💚 Mito Meet-Up: Online Support Group

Looking to connect with others who understand life with mitochondrial disease?

Our regular online Mito Meet-Up offers a welcoming space to share experiences, build connections and find support within the mito community.

📅 Saturday 13 June 2026
🕥 10:30am – 11:30am AEST
💻 Online

Learn more and register:
https://www.mito.org.au/event/mito-meet-up-2-2026-06-13/



[Image description: A green Mito Foundation graphic promoting a June Mito Meet-Up. The image features a calendar illustration and the text: “Mito Meet Ups – June”. Below, the event details read: “Date: Saturday 13 June 2026” and “Time: 10:30 am – 11:30 am AEST”. The Mito Foundation logo appears in the lower left corner.]

31/05/2026

Today, on Global Day of Parents, we honour the strength, love, and dedication of parents and carers in the mito community. We recognise your strength, not just as carers, but as champions who advocate fiercely, carry hope, and build a resilient community.

Whether you are navigating a new diagnosis or have been on your family’s journey for a while, please know that there is a community that sees you and stands with you.

If you need support, please know you’re not alone.

📞 Visit our website for helpful resources and services. You can also contact our Helpline: https://www.mito.org.au/helpline/

🤝 Our Mito Meet-ups and Peer Support Network are here to connect you with the mito community who truly understand.

We’re here for you. 💚💚💚



[Image description: A close-up photograph of a baby’s feet gently cradled in the hands of two adults. Overlaid text reads “Global Day of Parents.” The Mito Foundation logo appears in the lower left corner. Green graphic elements frame the image, reflecting Mito Foundation branding.]

29/05/2026

Brave advocacy from mito community member Danielle who is asking for increased use of genomic testing in coronial investigations.

Danielle's children, Arlie and Sonny, passed away from a rare form of mitochondrial disease caused by a mutation in the PPA2 gene.

Mito Foundation is a proud supporter of the this campaign, the Coroner's Project, and acknowledges that genomic testing has the potential to provide answers and protect future generations.

Danielle Green lost her baby boy Sonny in 2021, a coronial investigation could not determine Sonny's cause of death.

When Ms Green and her husband Leon conceived another child in 2022, she said genetic testing was not discussed or offered, and "everyone was of the opinion [what happened to] Sonny was a very sad accident".

Their daughter Airlie was five months old when the family's nightmare repeated.

READ MORE: ab.co/4v8R2lT

Ms Green wants to see mandatory genetic testing for all children with an undetermined cause of death, and more education on pre-conception testing.

"If I had been offered genetic testing or understood what genetic testing was and available to me, I could have made an informed decision on what I wanted to do," she said.

29/05/2026

Meet Tyler.

Tyler has always loved dogs and has enjoyed drawing and painting for as long as he can remember. What began as a portrait for one of his teachers soon grew into something much bigger. The teacher shared his artwork, more requests followed, and before long people were asking Tyler to create custom portraits of their beloved pets.

Since then, Tyler has completed more than 50 pet portraits and saved every dollar towards a dream of his own: bringing home another puppy. He is now so close to reaching that goal that he has already met with the breeder and reserved his new furry friend. 🐾

Tyler has achieved this while living with mitochondrial disease. He has lost most of his vision, experiences involuntary head shakes, and faces many daily challenges. Yet he continues to do what he loves.

Tyler's story is a reminder that people living with mito are so much more than their diagnosis. Every day, they continue to build skills, chase goals, and find ways to do the things that matter to them.

We're incredibly proud of Tyler and all he has achieved.

You can follow or commission Tyler for a pet portrait on Instagram 💚

[Image description: A photo of Tyler with his physio and her new assistance dog. He is holding the portrait of the dog.]

26/05/2026

Families facing mito deserve support, connection and hope.

Audrey is 3 years old and lives with Leigh Syndrome, a rare form of mitochondrial disease.

Your tax-deductible donation before 30 June can help families like Audrey’s access vital support services today while helping fund research and clinical trials for tomorrow.

Donate today: https://bit.ly/4nK8U48

22/05/2026

Exploring hope for emerging mito therapies.

We’re now recruiting for a new Mito Stories Project focused on LC-FAODs (Long-Chain Fatty Acid Oxidation Disorders), including CPT I, CACT, CPT II, VLCAD, TFP and LCHAD.

As potential therapies for LC-FAODs continue to progress, your experience can help shape how they are evaluated and accessed in Australia.

If you are:

• Living with an LC-FAOD (including family members or carers), or

• A health professional supporting people with an LC-FAOD

We’d like to hear your story.

Help shape the future of mito therapies 💚

Learn more: https://www.mito.org.au/mito-stories/

[Image description: Green Mito Foundation graphic promoting the Mito Stories Project. White text reads “Mito Stories Project” and “LC-FAODs including CPT I, CACT, CPT II, VLCAD, TFP and LCHAD.” followed by “We’d like to hear from you.” The Mito Foundation logo appears at the top, with an abstract microscopic-style background in blue, green and yellow tones surrounding the central green panel.]