Motor Neurone Disease Association of Tasmania

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Motor Neurone Disease Association of Tasmania

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Care and support for people living with motor neurone disease (MND) in Tasmania 💙

04/11/2026

In its first 18 months, the Tasmanian Equipment Scheme has provided 209 items to 48 people, showing its immense impact for the MND and Kennedy's disease community.

The scheme gives people with MND/KD who aren’t on the NDIS fast access to the essential equipment they need — for safety, mobility, and comfort.

Thank you to Country Care Group at Invermay who deliver the service, and to everyone who donates surplus equipment back into the scheme.

02/11/2026

On Monday 26 October, MND Victoria and MND Tasmania hosted a community seminar in Hobart for people living with MND, their carers, and the health professionals who support them. We were delighted to welcome over 70 attendees.

The seminar featured research updates from Tasmanian researchers and a lived-experience panel sharing their perspectives on living well with MND. Calvary Health Care Bethlehem and local allied health specialists also joined us, sharing their expertise and connecting with the community. We were proud to close the morning with the signing of an agreement between MND Tasmania and the Menzies Institute for Medical Research. In the afternoon, health professionals and support providers joined a Professional Practice Masterclass.

Thank you to MND Tasmania, University of Tasmania, Country Care Group, Berrill & Watson Lawyers, Calvary Health Care Bethlehem, Lung and Heart Physiotherapy and the Old Woolstore Hotel & Apartments for their support.

It was a wonderful day of connection and shared learning. Events like this show the value of bringing people together locally, so individuals affected by MND can access information and support closer to home.

30/10/2026

Due to current works being undertaken at the Domain Athletics Centre, we have made the difficult decision to not go ahead with the Walk to Defeat event this year.

While we're disappointed to pause this much-loved event, our commitment to supporting Tasmanians living with MND and Kennedy's disease remains unchanged. 💙

As we look ahead and begin planning for the event's return in 2027, we encourage you to explore other ways to connect, support and get involved with our incredible MND community in Tasmania.

Every contribution helps us provide vital support, advocacy and services to people living with MND, their carers and families

29/10/2026

2026 marks 40 years since MND Tasmania was founded by a small group of volunteers who believed people living with MND in Tasmania deserved better support.

Four decades later, MND Tasmania remains proudly volunteer-run and driven by that same purpose — supporting people living with MND and Kennedy's disease, their families and carers, whilst raising awareness and advocating for better services.

As we reflect on how far we’ve come since 1986, we also look to the future with a continued commitment to ensuring no Tasmanian faces MND alone 💙

21/10/2026

Fundraiser Spotlight: Cressy Clay Target Club — MND Competition Day

In July, the Cressy Clay Target Club raised over $8,000 during their MND Competition Day, which drew participants from across the state. It was a fun, close competition, and we are very grateful for their support.

Interested in hosting your own fundraiser for MND Tasmania? Get in touch with us at [email protected] 💙

16/10/2026

This National Carers Week, we want to express our gratitude and appreciation for the 3 million Australians who provide unpaid care to a family member or friend.

The 2026 theme, “Care for a carer: Making carers visible,” shines a light on the invaluable contribution of unpaid carers and encourages all Australians to recognise, support and care for the carers in their families, workplaces and communities.

If you have cared, or are caring, for a loved one with MND, we see you and we support you 💙

08/10/2026

You're invited to Lived Experience Storytelling: an interactive workshop for people with lived experience of MND 💙

📅 Weds 14 October at 11am AEDT
Register via Zoom here: https://us06web.zoom.us/webinar/register/WN_wt3X-QOAT6y7pF0jN_qedQ

You’ll learn practical ways to:

• Be clear about why you are sharing your story and what you want people to understand
• Use simple storytelling tools and communication techniques to shape your story for different people, situations and purposes
• Decide what you are comfortable sharing, and what you want to keep private.

The workshop is a chance to connect, reflect and explore ideas in a supportive setting.

The workshop will be led by Kate May from Common Cause. Kate is a lived-experience advocate in women’s health, chronic pain and disability, with experience helping people to use storytelling to share their perspectives and advocate for change.

02/10/2026

A small purchase can make a BIG impact 💙

When you buy a $10 Play For Purpose ticket, 50% goes directly to MND Tasmania to help support people living with MND and Kennedy's disease.

Plus, you’ll go into the draw to win hundreds of amazing prizes. It’s a win-win! 🙌🏻

Get your ticket here: www.playforpurpose.com.au/mnd-tasmania

24/09/2026

MND Tasmania is dedicated to providing care and support for people living with motor neurone disease and Kennedy's disease in Tasmania 💙

Through our specialised services, we are able to help the MND community in Tasmania stay connected, engaged, safe, and supported during every stage of their journey.

Find out more about what we do on our website: www.mndtas.org.au

15/09/2026

Last week, MND Tasmania contributed to the annual National MND Conference in Adelaide. The conference provides a space for people living with MND and Kennedy's Disease, carers, health professionals, researchers, and support organisations to connect, as well as hear from experts and those with lived experience on a range of topics and issues relating to the MND community.

MND Tasmania President Chris Symonds chaired panels "Molecular Mechanisms 1" and "Therapeutic Development: Discovery to Clinical Trials", providing his valuable insights and experience as someone living with Kennedy's Disease.

We're grateful to have had the opportunity to contribute and learn from experts in the field, and ensure that MND Tasmania can continue to provide the best possible care and support for people impacted by MND.

Address

Sandy Bay, TAS
7006

Telephone

1800 806 632

Website

http://www.mndatas.asn.au/

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