Motor Neurone Disease Association of Tasmania

05/06/2026

Thank you to Latrobe Primary school.
Always fun time to raise funds and awareness of MND.
https://www.facebook.com/share/v/1GKjHMMsct/

03/06/2026

This is a big win for the MND community. 💙

Today, the Australian Government announced that people living with MND aged 65 and over will automatically be classified as "urgent" in the aged care system.

This means eligible people with MND should receive aged care support within 30 days instead of waiting months for help.

The Government has also committed to protecting the NDIS MND Priority Pathway, which gives people living with MND faster access to assessments, funding and reassessments when needs change.

For people living with MND, time matters. Support needs can change quickly, and delays can have a profound impact on quality of life.

Importantly, the aged care changes will also apply to people with MND who are already waiting for Support at Home funding.

This announcement follows years of advocacy by people living with MND, carers, State MND Associations, clinicians, researchers and supporters across Australia.

Thank you to everyone who has shared their stories, spoken up and helped make change possible.

There is still more work to do, but today is an important step forward.

Read more: https://www.mndaustralia.org.au/articles/mnd-australia-welcomes-landmark-commitment-to-fast-track-support-for-people-living-with-mnd

28/05/2026

27/05/2026

Tasmania's deputy premier, the Hon Guy Barnett, is a past President of MND Tasmania. He was recognised in Canberra last year for his advocacy for MND over many years.

25/05/2026

The Board and members of MND Tasmania pass on our sincere condolences to the Dainiher family, close friends and the Fight MND team, on the passing of Neale.

Neale's Advocacy, Fundraising for research and Care, raising awareness and respect he has achieved fighting MND will never be surpassed or forgotten.

We will "play on' as Neale has requested until a cure is found 💙

10/05/2026

May 10 - 16 2026 is National Palliative Care Week – an opportunity to raise awareness about the vital role of palliative care.

This year’s theme, “Getting to the heart of it: Big Questions. Real Answers”, encourages open and honest conversations about what matters most: helping people living with MND to make informed choices about their care, preferences and future.

Palliative care plays a crucial role in managing symptoms, improving quality of life, and ensuring dignity and comfort. This week provides the space to start important conversations and access available supports.

Together, we can build a more compassionate and informed community 💙

09/05/2026

Happy Mother's Day to all the mums out there! 💐

We're sending our love to all mothers, grandmothers, those who are missing their mums, and all mother figures this Mother's Day.

We are thinking especially of all those within the MND community, including the mums currently living with MND, the mums who have passed away from MND, and those who are caring for people with MND 💙

06/05/2026

Interested in hosting a fundraiser for MND Tasmania? Get in touch with us! 💌

Every fundraiser, big or small, helps MND Tasmania provide care, support, and essential equipment to people living with MND. This support is only possible because of our incredible community of fundraisers and donors.

Whether you have a fundraiser in mind or if you need support brainstorming ideas, we're here to help! Email [email protected] to get started today 💙

29/04/2026

MND Tasmania is proud to partner with Play for Purpose, Australia's charity raffle platform that puts the fun into fundraising. Every ticket you buy directly supports our work providing care, support and equipment to Tasmanians facing MND. And with life-changing prizes up for grabs, there's never been a better reason to get involved.

Every Play For Purpose ticket gives you the chance to win a first prize worth $300K and hundreds of other amazing prizes like cars, vouchers and more! 💙

Tickets are only $10 and best of all, 50% of every ticket purchased goes directly to MND Tasmania helping us care for and support people living with MND across the state

Get your ticket now: www.playforpurpose.com.au/mnd-tasmania

Raffle closes Thursday 21 May 2026! 📅

22/04/2026

This year, MND VIC, MND NSW, MNDSA, MND QLD and expert clinicians are partnering to deliver a series of 5 webinars. Expert presenters will share their knowledge and experience, and answer your questions 💻

This series is suited for health professionals working with people affected by MND, or with an interest in learning more about MND. Webinars can be attended live or viewed for the remainder of 2026.

🔗 Click here to register: www.mnd.org.au/events/383/2026-national-health-professionals-webinar-bundle